46 replies to this topic

[2boysand1girl]

I'm Apologising in advance for mispelled words, there was no spell check!!   Hi there, i have been scouring the internet in hopes to find answers, but i havent had any luck.  Hope someone will read  this and let me know what they think.  I'm a 36 year old female just diagnosed with ADHD(inatitive).  My Dr. started me off on 50mg of Vyvance, it was a mid point and stated that it has nothiong to do with weight, size, age or sex.  The fist day was great i felt as though I was on top of the world, could have run a marathan!!  After the second day on 50mg vyvance' i statrted to fill like i was on speed and i had a sota corpal tunel in my Right finger joints and a freezing sensation down my Right arm. It makes me crack my nuckles impulsively.   I had a tightening in my frontal lobe part of my brain and hart racing but i didn't feel anxious.  I did love the motivation it gave me and sorta stoped my procrastinations and gave me more patience.  I have 3 kids, almost 10(boy) ,almost 8(boy)and almost 2(girl).  I took myself off of the vyvance' to see if the symptoms would go away and they did.  I went to my Dr. (Family Dr.) who tryed me on Concerta(18mg) instead to see since it was on the other side(Ritilin).  However i was told to increase it by one pill every 3 days until i feel that it is working.  By the time i got up to 3 pills(18mgeach-54mg) my Left arm started to do the same Freezing/burning sensation as the vyvanse' just in the oposite arm.  I was told that i could break open the vyvance' capsels if i needed a lower dosage, so since i liked the way the vyvance' motivated me and the concerta too @ 54mg had same symptoms i desided to retry the vyvance at a lower dose.  However i still had arm freezing-sorta like someone rubbed my arm with Icy-Hot and then i put it in front of a fan.  I went to my Dr. a Third time and told him again what i had done and my experiances.  He thinks that the Vyvance' dose @ 25mg(cut them in 1/2) is not strong enough..since i told him it gives me a HAPPY feeling but still not a good clear focus.  I was still forgetfull and unable to concentrate.  He,  despite what i said about the arm bumped up my Vyvance to 60mg so that when i cut them it is 30mg.  I'm afraid that im doing harm to my arm/body with this pain.  I also get it in the ball of my shoulders( where my arm ball joint is conected to shoulder) and back ribcage tightness. I've noticed the freeze start at my ear through my neck , down shoulder and arm. On the warning lable of the Vyvance that come from the pharmists stated seek emergancy help if you feel these sensations but it states LEFT arm not the RT arm.  I looked up online about this in my rt arm and it stated it may be a lack of oxygen to the Heart(had a name for it but i forgot.)  I'm very scared but need the meds, any suggestions?  I think i will go and see a Phycharatist instead of my family Dr. because he just sorta told me well you've tried both sides and they both give you this side effect??  I know many parents who's children have been through a hand full of these drugs to get the right one +regaurdless if they are still on the Aderoll or Ritlin sides.  I was also told that a Phychatrist has more experiance with the drug as they use it more often and are more familiar with its run ins.   My Dr. may have been prescribing it for years but may not have run into problems  such as mine. Where I'm from and at my age if a women mentions that she is taking ADHD meds one assumes that she is taking it for weight loss.  So maybe that is the extent of experiance that my Family Dr. has with this medication.  Don't know just would like someone to tell me if i should stop taking it because of the arm pain.  Some times i'll do every other day just because i need the meds but hate the Arm pain.  thanks for listening.

[null0trooper]

sharot, on 21 November 2009 - 10:34 PM, said:

my grandson has been on vyvanse for 3 days and now has a terrible rash on body and face is really flushed

1. This isn't a caregiver support site.  There are plenty of sites that do a much better job of that.

2. Assuming you actually have a grandchild, wouldn't it have been more responsible to tell the kid's doctor by now, just in case it's an allergy? It wouldn't have hurt to have taken his temperature by now either, because Vyvanse won't do a damned thing to halt any of a number of childhood rashes, some of which are more than just an annoyance.

[null0trooper]

Cline, on 10 January 2010 - 10:06 PM, said:

I've been taking vyvanse for the same amount of time-- about 9 months and THE EXACT same thing is happening to me. My doctor really pushed it on me and it worked the best out of everything but now I'm constantly getting a weird rash and right now I have a circle like cluster of what look like welts on my shoulder. They're on my chest too in little clusters. I thought I had bed bugs or something! I have a dust mite cover and my mattress is new so that couldn't be it. It must be the vyvanse. This is really really strange. I hate this!

Did you ever bother to have a general physician look at it, maybe an allergist if your doctor was stumped?

Here's a clue: if it's a real allergy to the medication, it won't get better on its own.  And let's not forget skin fungus infections - taking Vyvanse won't prevent those.  Heaven help you if it's a rash from a tick bite that you've decided to whine about instead of having looked at...

[Shortstuff]

I got the same thing on Ritalin. I got hot flashes, had eczema on my arms, my face was red and looked crappy all the time, and my skin was itching, probably from sweating so much. As soon as I was off the Ritalin a few days, it was gone. Now I'm on Strattera and I don't have that problem with it.

[springer10]

I was on Vyvanse 50mg for 6 months and had the same symptoms regarding the itching, hot flashes, break-outs, profuse sweating with exertion. Well, I switched to generic adderall and am still having the same symptoms. I thought I was going crazy as my doc said these side effects are rare. Thank God I found this forum! Has anyone had any luck with another drug or what can be done?

[Recluse]

A lot of what you are all describing sounds like allergic reactions to the drug.  It might be one of the fillers Shire uses in the capsules.  I'm having some of the same issues, however I'm allergic to beef/gelatin...so although they are the same symptoms, the potential cause is a little different.  Consider speaking to your collective doctors about switching to a different medication, or mentioning that you are reacting to it with hives and other histamine-type responses.