I'm currently on 1200mg of Tegretol retard a day (400 morning/800 night). A year and a half ago I was on 600mg (300 morning/300 night). In the meantime I tried Trileptal (900mg/day), and it was wonderful. The fog around/in my head lifted, and I had a lot of extra energy. But it seemed that the Trileptal stopped working after about 6 months, and I had 3 GTK's in one night. It scared me out of my mind. I could not get an appointment with my neurologist, so I was left with my regular doc's knowledge of epilepsy (basically zero!) After about a month I upped the dosage to 1200mg/day after consulting the not so knowing doc. I then took a blood-test to check my serum levels, and it turned out to be way under the recommended concentration. I had another seizure a few weeks later and kept on upping the dosage until I got to 2100mg/day. I finally got an appointment with my neurologist after five months and switched back to Tegretol, but at a higher dosage than before. Have been seizure free since then, but developed anxiety/panic attacks instead while waiting to see the neurologist. The panic attacks were the main reason I kept on upping the dosage as I mistook them for epileptic activity.
But to get to the point. If I had had regular blood-work done I would have discovered that I needed an adjustment in my Trileptal dosage. But I only see my neurologist once every one or two years, and that's the only time any blood-work is done. How often are the rest of you getting blood-work done? And how often would you recommend? And what other than serum levels should I keep an eye on? I could get the work done at my regular doc more frequently, but have never been recommended to do so...
Edited by st.helge, 15 September 2005 - 03:10 PM.