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Electroconvulsive therapy (ECT)


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#1 TOT

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Posted 24 January 2012 - 11:14 PM

OK, i want to do more discussion, not argument, on this topic. The other thread i found is locked.

I'm wondering if there's stuff you don't hear about that happens. And what questions should i ask my pdoc?



I'm currently scheduled to start treatments on Feb 8th.



I'm treatment-resistant bipolar I. I've been on over a dozen meds, 13 year documented history, suspected since childhood (i'm 32 now), 8 or 9 hospitalizations. VERY suicidal at nights for the last 2 1/2 or so weeks. Currently in IOP (4th time), DBT (2nd time), and a general MI support group. That's me.



Thanks :)




#2 Damik

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Posted 24 January 2012 - 11:24 PM

For me there wasn't anything that I hadn't heard about happening that happened. But it has truely changed my life. I'm MDD not bipolar so I can't really speak to your expierence, but I haven't been suicidal since we got me stabalized on ECT. I hope for the best for you and that it makes a real difference in your life, too.

DX: Generalized Anxiety Disorder, Attention Deficit Disorder, Post Traumatic Stress Disorder, Obsessive/Compulsive Disorder, Schizoaffective Disorder Depressive Type, Insomnia, Borderline Personality Disorder and Overly Dramatic Person Who Gets Worse With Treatment

RX: Neurontin 600mg 2x/day, Fanapt 8mg 2x/day, Synthroid 0.112mg, Prozac 40mg

Former RX: Zyprexa, Moban, Risperidone, Geodon, Methylin, Strattera, Seroquel, Abilify, Effexor, Latuda, Celexa, Lexapro, Paxil, Zoloft, Cymbalta, Wellbutrin, Zanax, Ativan, Depakote, Tegretol, Remeron, Luvox, Pristiq, Emsam, Trileptal, Restoril, Saphris, Topamax, Lithium, Seroquel, Thorazine, Klonipin

Time still goes on

Through each life of misery

Everybody's got a hold on hope

It's the last thing that's holding me

-Guided by Voices

 


#3 Penguin

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Posted 25 January 2012 - 12:45 AM

I had 9 bifrontal in october and it did not help me. No harm done either, though. I have a blog about it here on crazyboards, including journal entries from when I was in the hospital. I also have the blog at the url http://electroshockme.blogspot.com it should have identical posts. I hope it is helpful.

Something that was mentioned by my ECT doctor which I don't hear brought up often in ECT discussions... he said that people with a history of sexual abuse don't generally respond as well to ECT as people without. I am not stating this as a hard fact, I don't know his sources but the guy does perform ECT's 3 times a week, and works alongside a doctor who has been doing them for over 20 years, maybe 30.

Edited by Penguin, 25 January 2012 - 12:58 AM.

Current Dx: Bipolar Type 2; Anxiety Disorder NOS; Borderline Personality Disorder; Attention Deficit Disorder
Current Rx: Effexor (150mg), Latuda (40mg), Adderall (10mg), Celexa (40mg), Klonopin PRN (0.5mg)

Past Dx: Major Depression, Bipolar 1, Bipolar 2, Schizoaffective, Oppositional Defiant Disorder, ADHD, Post Traumatic Stress Disorder, Generalized Anxiety Disorder, Reactive Attachment Disorder, Personality Disorder NOS (Borderline Features), Mood Disorder NOS, Seasonal Affective Disorder
Past Rx: Zoloft, Prozac, Lexapro, Paxil, Abilify, Geodon, Buspar, Xanax, Wellbutrin, Concerta, Vyvanse, Depakote, Vistaril, Lithium, Risperdal, Lamictal, Seroquel
*Had 9x Bifrontal ECT in 10/2011

#4 malachite

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Posted 25 January 2012 - 01:06 AM

Make sure you are starting with unilateral treatments. Ask your doctor what kind of pulse s/he uses. Make sure you have someone who can be with you on the days you have treatment. I had it for MDD as well, not bipolar. It helped me a lot though and I wish I had done it sooner. If you have any questions, feel free to PM me.

Type of Crazy: MDD and GAD
Former meds: Geodon, Effexor, Wellbutrin, Prozac, Lithium, Xanax, Klonopin, Zoloft, Paxil, Lamictal, Temazapam, Risperdal, Serzone, Trazodone, Lexapro, Xanax XR, Buspar, Effexor, Desipramine, and about seven more I can't remember.
Current psych meds: Clomipramine (50mg.) Valium (2mg.4
x a day) Trileptal (600mg.) Lunesta (2.mg) OR Ambien (10mg.) Trazodone (100mg.)
Other Meds: Crestor, Metformin,Omeprazole, Propanalol
Physical woes: Migraine, PCOS, CFIDS, Diabetes, High cholesterol
ECT (Fall 2010), (Fall 2012)


#5 GoldCoin

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Posted 25 January 2012 - 01:20 AM

I have had ECT 3 times (12 rounds each) It really helped me a lot, however my memory of the time is a bit blurry.

I had bilateral treatment done.

Nothing out of the ordinary happened to me.

I was woken up at 5am, preped, taken to the waiting room, went in had treatment, woke up in recovery and had a normal day after that.

I did not feel groggy or have any side effects from the anesthetic, as i said before my memory was affected a little bit.

For me the effects of ECT do not last. I will feel really good, no suicidal thoughts or depression for a couple of months and then it rears its ugly head again.

I hope it works out well for you.

ps don't be scared. It's not scary
Past Diagnosis - Cluster A or B personality traits, Border Line Personality Disorder, Major Depressive Disorder, Cyclothymia, Psychosis NOS, Bi Polar, Dysthmia
Current Diagnosis - Schizoaffective Disorder (depression type), Social anxiety disorder

Past Medication- Effexor, Prozac, Diazepam, Mogodon, Temazepam, Sodium Valporate, Zyprexa, Ativan, Edronax, Lithium carbonate, clonazepam, , lamictal, Zeldox, Seroquel, Thorazine, Abilify, lamictal, Imovane, Lexapro
Current Medication -clozapine (400mg), Amisulpride (800mg), Clopixal (10mg), Clomipramine (100mg), xanax (1-4mg prn), Provigil (300mg) Lots of vitamins and minerals.

I also have had acuphase 3 times, have had many a ECT and have been through Depot injections.

Feel free to PM me.

#6 Velvet Elvis

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Posted 25 January 2012 - 01:43 AM

moved to the correct board . . .

De-gnosis: ADD, recurrent depression (or maybe bpII in the guise of such), Asperger's, OCD, social anxiety
Today's Pill Menu: Dexedrine, Wellbutrin (Budeprion), Strattera, Celexa, Risperdal, and clonazepam

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#7 Kodos

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Posted 25 January 2012 - 02:03 AM

TED talk on ECT (link)

#8 Damik

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Posted 25 January 2012 - 02:24 AM

Something that was mentioned by my ECT doctor which I don't hear brought up often in ECT discussions... he said that people with a history of sexual abuse don't generally respond as well to ECT as people without. I am not stating this as a hard fact, I don't know his sources but the guy does perform ECT's 3 times a week, and works alongside a doctor who has been doing them for over 20 years, maybe 30.


I have a history of sexual abuse. ECT is working for me, dispite this. I think it is probibly a YMMV guideline.

DX: Generalized Anxiety Disorder, Attention Deficit Disorder, Post Traumatic Stress Disorder, Obsessive/Compulsive Disorder, Schizoaffective Disorder Depressive Type, Insomnia, Borderline Personality Disorder and Overly Dramatic Person Who Gets Worse With Treatment

RX: Neurontin 600mg 2x/day, Fanapt 8mg 2x/day, Synthroid 0.112mg, Prozac 40mg

Former RX: Zyprexa, Moban, Risperidone, Geodon, Methylin, Strattera, Seroquel, Abilify, Effexor, Latuda, Celexa, Lexapro, Paxil, Zoloft, Cymbalta, Wellbutrin, Zanax, Ativan, Depakote, Tegretol, Remeron, Luvox, Pristiq, Emsam, Trileptal, Restoril, Saphris, Topamax, Lithium, Seroquel, Thorazine, Klonipin

Time still goes on

Through each life of misery

Everybody's got a hold on hope

It's the last thing that's holding me

-Guided by Voices

 


#9 Dusk

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Posted 25 January 2012 - 07:44 AM

I have 6 bilateral. It didn't work for me, but I've heard of tons of people it DID work for.

DX: Schizophrenia, OCD, type II diabetes

 

Current psych. RX: Risperdal, Lithium, Viibryd, Ambien

Tried previously: ECT, Paxil, Celexa, Zoloft, Effexor, Provigil, Remeron, Abilify, Geodon, Klonopin, Buspar, Lexapro, Trazodone, Luvox, Trilaphon, Pristiq, Loxapine, Pamelor, Neurontin, Lamictal, Ritalin, L-Methylfolate, Vistaril, Zyprexa, Seroquel IR and XR, Saphris, Latuda, Clozaril


#10 rowan77

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Posted 25 January 2012 - 02:50 PM

I had 6 ECT treatments in 2003 which worked really well for me, leaving me totally depression free.

I also had 11 ECT treatments in 2005, also extremely effective for my depression

DX: Bipolar Disorder, Social Anxiety Disorder

Current RX: Lithium Carbonate 800mg, Seroquel XR 800mg, Lamictal 100mg x2 daily, Procyclidine 5mg, prozac 40mg 

Also Yasmin 0.3/3mg for PCOS and Losec 20mg for Hiatus Hernia

 

Previous RX:
Anti-depressants: dothiepin, clomipramine, paroxetine, mirtazepine, lofepramine, venlafaxine, escitalopram, agomelatine
Anti-psychotics: thoridazine, risperidone, olanzapine, haloperidol, aripiprazole, chlorpromazine
Mood Stabilisers: carbamazepine, sodium valproate,
Anxiolytics: alprazolam, diazepam, lorazepam, clonazepam
Hypnotics: lormetazepam, temazepam, zopiclone, zolpidem, flurazepam
ECT: 6 Treatments in 2003; 11 Treatments in 2005

"Be yourself - everybody else is taken." Oscar Wilde


#11 daisy

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Posted 25 January 2012 - 06:15 PM

I read a lot about the side effects and didn't experience any (nor did I talk to anybody in the waiting room receiving ECT) that had experienced side effects that I hadn't heard about. Still, ask your doctors.

I was lucky that I didn't have any memory loss, but most people do have some short-term memory loss, so be prepared. I got really severe headaches after treatments, even though they gave me a lot of medications for them. That was really the only side effect I dealt with.

I started mine in August of last year. The first time I did it, I had fifteen unilateral treatments, and started to feel results around my 11th treatment, even though I was told I would probably start feeling results earlier. (That's really the only thing that was "wrong" about what I was told.) The results lasted for a month. I then went back and had 13 bilateral treatments, but had no response. Though I had no memory loss, the doctors stopped due to the fact that they didn't want to cause any long-term cognitive damage.

Would I do it again? Yes. I'm one of the rare people who just didn't respond. However, I saw SO MANY people who did respond. I saw people who transformed before my eyes... they looked like COMPLETELY different people. And for the month that the results did work for me? Wow. I had never felt that way in my life. I felt like I was living for the very first time. I wondered if this is how everybody normal feels... like every day. It was amazing. And the best part? Someone I knew well came up to me and said, "Wow, you look incredible! What did you do?" I had done my makeup the same, my hair the same, and was wearing my usual t-shirt and jeans. I realized then that I had transformed, too, just like the people in the waiting room. I looked happy.

As for side effects? YMMV. Some people had more memory loss than others. Some people didn't get any headache like I did. Some people got nauseated. It's different for everybody. And don't listen when people tell you when you'll feel results... I had so many people, both doctors and patients, tell me things... but everybody's body is different. So don't get discouraged like I did if it takes you longer than other people to feel results.

I would recommend ECT a thousand times over. (And for the record, every other patient that I met did respond to ECT, so it truly can be a lifesaver.)

As for what to ask your doc? Ask what kind of meds you can take and when -- both prescribed and over the counter. Ask if you'll be receiving unilateral or bilateral treatments, definitely. Bilateral treatments are usually (but not always) more effective for most people, but they also have more side effects, especially an increase in memory loss. Ask what side effects that they personally see most often. After you have your first session, see what side effects you personally have and ask the best way to treat them. Hmm... I can't think of any other questions right now, but I will be thinking about it and I'll reply again.

Love, Daisy

Dx: Severe, indigenous, treatment-resistant, and recurrent atypical Major Depressive Disorder. I also have General Anxiety Disorder with panic attacks, mild OCD, ADHD - inattentive, and insomnia. I also have Hopefulness, Optimism, Idealism & Surprisingly Happy Disorder. That helps! :)
Rx: Aplenzin 522 mg, Lamictal 400 mg, lithium 600 mg, Geodon 160 mg, Armour Thyroid 60 mg, Vyvanse 70 mg, clonazepam 1 mg TID, temazepam 30-60 mg, alprazolam 1 mg PRN, and Diet Dr Pepper 2x daily.
Previous Rx: Abilify, Adderall, Adderall XR, Ambien, Ambien CR, Concerta, Deplin, Effexor, Latuda, Lexapro, Lunesta, Parnate, Paxil, Pristiq, Prozac, Remeron, Ritalin, Seroquel, Sonata, Topamax, Trazodone, Wellbutrin SR, Wellbutrin XL, and Zoloft.
Other Treatments: 15 unilateral ECT treatments between August 5, 2011 to September 29, 2011; 13 bilateral ECT treatments between November 2, 2011 to December 16, 2011. Use of a light box.

"A dream is a wish your heart makes when you're fast asleep. In dreams, you will lose your heartaches. Whatever you wish for, you keep. Have faith in your dreams and someday your rainbow will come smiling through. No matter how your heart is grieving, if you keep on believing, the dreams that you wish will come true."
-- Cinderella

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"Do not let your fire go out, spark by irreplaceable spark, in the hopeless swamps of the not-quite, the not-yet, and the not-at-all. Do not let the hero in your soul perish in the lonely frustration for the life you deserved and have never been able to reach. The world you desire can be won. It exists. It is real. It is possible. It is yours."
-- Ayn Rand, Atlas Shrugged


#12 TOT

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Posted 28 January 2012 - 11:39 PM

Thanks all :)





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