StormBeforeCalm

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About StormBeforeCalm

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  1. I have been dealing with a variety of medical problems since mid-2015. At this point the doctors have ruled out every possible diagnosis, but their tests still show something serious is wrong with my central nervous system. I've been hanging in there until I see yet another doctor in five weeks who is supposed to be fantastic, but the last few days I've been feeling awful: extreme fatigue, widespread pain, shortness of breath, intermittent numbness, blurry vision, etc. I've had all these symptoms before but never all at the same time. I slept 14 hours last night and I can't work today because I can't concentrate on anything for more than two minutes. I'm frustrated to the point of smashing up the house, and I cry several times a day. At what point do I take myself to the hospital and refuse to leave until I get the right answer to WTF is going on? When do you know that you absolutely need medical help now and cannot wait any longer? Edit: I know this is not strictly an MI post. I do not know where else to post it.
  2. I'm so sorry, Duelist. I lost my father to lung cancer 11 years ago and it still hurts. It just doesn't hurt as much as it used to. The first few weeks were awful for me and gradually the pain lessened. Keep putting one foot in front of the other and in time you will feel better than you do now.
  3. Heading straight for it first thing in the morning. Hoping that my family will realize this is a Really Bad Idea before we hit the road...
  4. I got progressives six months ago and the optometrist recommended them in large part because they give me three ranges: the top for distance, the middle for computer work (roughly arms' length), and the bottom for close-up reading. In reality, things haven't worked quite that way. I find it really annoying to wear them when I'm doing close-up reading, and even a lot of computer work, because I am warm all the time, to the point where my glasses fog up. The glasses were very expensive, and if I had to do it all over again, I think I would have stuck with my old (regular) glasses for at least another year or two. If I wasn't so warm all the time, maybe I would have a different opinion.
  5. I'm a professional non-fiction writer. I have degrees in a scientific field and also a degree in technical writing. I'm currently self-employed as a freelance writer in that scientific field, and I've been a full-time writer for the past 13 years. The biggest lesson that I've learned during my work, which seems like it would be just as relevant to you with fiction, is to first know what you want to say and then figure out how to say it. I can't tell you how many authors I've worked with who struggle with writing because they don't take the time to fully understand their topic and plan their writing before actually sitting down to write. On a major project, I used to spend 10% of my time planning, another 40% writing the first draft, and the remaining 50% doing revisions. Planning includes everything from doing research to make sure that I really understand the subject matter to organizing the flow of the material, developing a structure, deciding which topics to cover in which order, etc. I also think about my audience (who am I writing this for? what are their expectations? what do they already know or not know?) and my purpose in writing the document. What do you want to communicate to others? Is there a key message or group of messages that you want people to remember? Are you trying to entertain people, educate people, persuade people, etc.? I would guess that if you're going to write a work of fiction and you simply sit down and start writing, it's not going to go well. Not that you need to plan out every detail, but you need to do some high-level planning before you jump in. On the other hand, when you write, you don't want to overanalyze every word as you write it. You'll make yourself crazy. Focus on getting your thoughts down, and polish your words later. Be prepared to do a lot of rewriting. As I said above, you will probably spend more time rewriting than you spent writing in the first place, at least when you're first starting out. Finishing your first draft is a huge accomplishment, but it's only part of the whole process. I wish you the best of luck in your writing!
  6. I know, and I've been checking those out. My interest in asking on CB is that the primary treatment for this form of neuropathy is typically antidepressants and other psych meds. So far my neurologist and GP have come up with two ideas to help with my pain, and my pdoc has shot them both down because they affect serotonin and may have nasty interactions with my existing meds. I'm looking for a new pdoc (since mine is moving next month anyway) who is familiar with neuropathy treatment and might have some non-psych med suggestions for me.
  7. I have, and some of the information in there is inconsistent with what I've read from more authoritative sources, unfortunately. I spent a good chunk of yesterday reading more about small fiber neuropathy in general, instead of just looking for info on my variant, and nothing I read was encouraging. Most folks have pain from the neuropathy, so treatments are heavily focused on suppressing pain. That's good, but I also have motor and autonomic issues in addition to sensory. For example, my blood pressure keeps skyrocketing for no reason, and sometimes I have trouble swallowing. I can't find anything about treating those issues. I think what makes me so nuts is that I've been diagnosed by two neurologists as having an incurable and largely untreatable disease, but neither of them has made any effort to help me with what treatments are available. They seem to think that my situation is no big deal and that I should be fine with living with these symptoms without any treatment or further investigation. Meanwhile, I continue to get worse from week to week, and I wonder what is next.
  8. I have just been diagnosed with non length dependent small fiber neuropathy. (See rant at http://www.crazyboards.org/forums/index.php?/blogs/entry/73508-my-thoughts-on-the-medical-profession/.) Looking for anyone with the same condition. There's very little information on the Internet and my doctors are pretty much useless.
  9. It's rapidly approaching infinity. I think this week it's ten plus a few to be taken as needed that I haven't taken lately. This is a good reminder to me to update my signature...
  10. Sending a new message is broken for me as well. My box looks just like the one in the original post. I've tried it in three different browsers on my laptop, and I've tried it on two mobile devices, all on three different networks, and I always get the same thing. So that rules out pretty much everything I have any control over.
  11. Glad I stumbled across this discussion. My GP is thinking about putting me on Lyrica or Neurontin. I have peripheral neuropathy from an unknown cause and it would be great to have something to reduce the pain while we are trying to find the underlying cause. I started taking Robaxin last week when the muscle tightness in my neck and head was so bad that I couldn't stand it any more. Taking one (500 mg) does nothing for me. Taking two helps me to sleep and takes away maybe 80% of the pain and discomfort. The last few days I've been doing fine without it, but I can feel the tightness coming on again now.
  12. Thanks for the feedback. My pdoc made it clear, in no uncertain terms, that changing my meds in this way is a REALLY bad idea, and gave me about six reasons why. Suffice it to say that I am staying with my good old 80 mg of Prozac for the foreseeable future! I started muscle relaxants two nights ago to reduce the pain so I can sleep better, and they're helping a lot. I am still dealing with a lot of pain during the day, but my neck/shoulder heating pad is helping more since I bought an Ace bandage to hold it in place on the back of my neck, where the pain is worst. Three doctors told me this week to use heat, so I am listening to my doctors, and because I work from home, I can just plug in my heating pad whenever and type away.
  13. I've been on Prozac 80 mg for several years and it's done wonders for my depression and anxiety, plus it's nearly eliminated my migraines. I am also on 15 mg Buspar a day and 15 mg Deplin a day. I am dealing with chronic pain issues involving muscle, joint, and bone pain throughout my body, cause yet to be determined. My family doctor has recommended that I drop from 80 to 40 mg of Prozac, keep the Buspar and Deplin the same, and add 30 mg of Cymbalta. As much as I'd like the pain to go away, I am *really* reluctant to change my med dosages after Prozac has been so good to me for so long at 80 mg. Has anyone else gone through this and if so, what words of wisdom do you have? I already left a message for my pdoc, but she's gone to part-time and I'm 99% sure she's going to say no to the request anyway and offer no alternatives. It may be time for me to find a new pdoc that is a bit more willing to change things (we've had ongoing issues about Abilify for years and I still haven't gotten up the guts to tell her I stopped taking it a year ago).
  14. @TakeAChillPill: I started walking 15 minutes a day to improve my health at the beginning of May. Within a week I had self-diagnosed plantar fasciitis in my left foot. I ignored the pain and kept walking, but the pain kept getting worse. After about a week of pain, the pain suddenly got much worse, so I went to an orthopedic doctor. Turns out I had both plantar fasciitis AND a stress fracture. I spent almost a month in a walking boot, with my only exercise being stretches, pretty much. Then I spent a month doing more rigorous physical therapy exercises every day, like squats and step-ups. The plantar fasciitis seemed to go away, and the stress fracture didn't bother me any more, but the back of my heel kept getting sore and burning. Last week I was diagnosed with achilles tendinitis, so I'm back in the boot and doing no exercise other than stretches again. It sucks. It really sucks. I would absolutely love to be doing a daily walk for exercise, but that's just not possible right now. I do my physical therapy exercises every day, and I lose weight almost exclusively because of my food choices and not exercise. I know that aerobically I am a mess; I'll just have to start over with aerobic exercise after my foot is better, and even then, I'll have to ramp up gradually so that I don't restart the plantar fasciitis. I hope you find the right combo of healthy eating and exercise that works for you. I'm so sorry that you have plantar fasciitis; I know how incredibly painful it can be. Hang in there and keep seeing that physical therapist.
  15. I have not been formally diagnosed with an eating disorder, but I gained 70 pounds in a year and a half primarily through binging: eating massive quantities of high-calorie junk to try to make myself feel better, especially to deal with bad anxiety. I had strong impulses at times to make myself vomit but did not follow through on them. I have been heavy before, but I hit my all-time peak weight about six months ago, 246 pounds (I'm 5'5"). My BMI was over 41, which labels me as morbidly obese. I thought that Abilify was at least partially to blame for the weight gain because it had been causing severe fatigue, so I went off it (but stayed on all my other meds) and the fatigue got somewhat better, but not as improved as I was expecting. The weight gain stopped and the binging was much more controllable. But I was so full of anxiety that I couldn't really function any more, certainly not work, and I was just a real mess. Thanks to advice from my tdoc, I finally recognized that I was neglecting all aspects of my health: physical, mental, emotional, and spiritual (spiritual meaning having a purpose to your life, not necessarily having religious beliefs). I was basically making myself miserable because I kept going for short-term pleasure instead of long-term improvements. On May 1st of this year I committed to getting healthy. I don't eat any junk any more...I have completely overhauled how I work to greatly reduce stress and burnout...I have been taking time out to take care of myself on a daily basis. And I have recommitted to my purpose in life. This all probably sounds really lame, and I'm generally an incredibly sarcastic and cynical person, but it's made a huge difference in my life. So far I have lost 32 pounds. I haven't binged. My fatigue is much better and I exercise every day and enjoy it. I have become, dare I say it, a bit of an optimist. I am happy most of the time and my anxiety is the best it's been in several years. I actually get up at 6 a.m. every day, willingly, instead of sleeping in until 10 or later because I can't stand to be awake and thinking. Some days I even look forward to working. I don't claim to have all the answers, and god knows I've been overweight pretty much continuously since I was a baby, except for about twelve years ago where I got my weight down to 150 for a year or two. Even then I was borderline overweight. But for me the key has been educating myself about what health really involves, and focusing on permanently changing my lifestyle to achieve better physical, mental, emotional, and spiritual health. I swear by MyFitnessPal and the community there; my friends there are incredibly supportive and we all help each other out on a daily basis. I also get a lot of support from family and friends. But the most important thing is that I am doing this for myself, and no one else.