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About Butterflykisses

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  1. I have the exact same problem, I have ruined many nighttime shirts. Everything gets soaked. I wish I had a solution to offer you, but I would like to read how others have coped with this.
  2. I dont think my doctor prescribes benzos unfortunately. It comes in waves but its worse at night
  3. Feeling like I've got some word salad lately...feel unwell,
  4. I would get a 2nd opinion, reasons being I think the goal should be to minimize psychosis through medication. I explained to my pdoc that therapy never helped because when I go into psychosis I don't have the mental capacity to utilize coping skills..I am completely unable to reason with. So after failing on multiple AP/AAP my doctor put me on clozapine and I have been on it a great while, my psychosis is.a world of difference.
  5. At first when starting Clozaril I was getting anxious about getting tests done and needing the blood work sent to my pdoc and pharmacy every week. I felt like it was a lot of work orchestrating everything so I could get my meds every week. Turns out to be easy and blood work is always sent to my pharmacy and it has never been delayed
  6. I have been doing great - psychosis wise. The Clozaril really works well for my psychosis. I am still tapering off of the Seroquel and will get anxiety in waves but I think I will be fine, especially with 400mg of Clozaril. I also have already lost weight since tapering off the Seroquel.
  7. Why did he cancel on you? That would make me feel bad too, its kinda like a let down.
  8. Hi Cheese, Is there someone in your treatment team that you can call and possibly get in to see your pdoc sooner? I am concerned about you. I hope you and your pdoc can figure out your meds so you don't have to suffer. Sending comforting vibes your way.
  9. Now I am on 200mg in the AM and 200mg in the PM..400mg/total
  10. I am so glad to hear you and your pdoc are on the same page.
  11. The highest mine has ever been was 1.2 and with that I was crazy sick from dehydration, my dose was even small that time it happened. I am on a higher dose now and my level is about 0.7. Are you having any symptoms? Maybe get it re-checked to make sure it wasn't a lab error
  12. I take one in the morning and two at night.
  13. I have noticed increased anxiety from stopping my morning and afternoon dose of seroquel. I am still taking the 400mg at bedtime but am still having horrible withdrawals such as anxiety and hot flashes. Psychosis is still good with the 300mg of Clozaril...
  14. I hope the clozapine works for you, I love it Thats too bad about the clozapine, can you get a 2nd opinion?