dtac

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About dtac

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  1. Not totally sure, as I couldn't get above 2mg for any length of time, but the anxiety never went away. Abilify just made my anxiety much more amplified while I was on it. It was a very frustrating side effect.
  2. I cross-tapered intially from 2mg Abilify -> 0.5mg Rexulti over 2 weeks, felt great, then had a dip when I went to just 0.5mg Rexulti by itself for 2 weeks. Once I bumped up to 1mg, I noticed a big difference, and that's where I've stayed. Also, I've found it to be sedating if taken in the AM, but not so much if taken in the PM. From my own experiences, I highly suggest taking it at roughly the same time every day. (Yes, I am aware it has a 75h+ half-life, and it shouldn't make one damn bit of difference, but the side effects tend to manifest when you vary the dose timing.) I did mood tracking for 2 months on Abilify and for 2 months while I transitioned to Rexulti, and it showed a marked improvement in my mood, especially once I bumped to 1mg. Unscientific, but with enough data points, you can help figure out if it's benefitting you or not. Sometimes I have a hard time telling if Rexulti is working or not, because I still have mood changes... then my tdoc reminds me that it's normal to have emotions and I shouldn't be flat emotionally... so I just accept it works
  3. Ahh the joys of seeing a neurologist and a psychiatrist, where the meds overlap, and so do the egos I am fortunate enough that my pdoc and neuro don't touch each other's meds, and will respect the other's choice...just don't tread into their territories. My pdoc was prescribing my mood stabilizers, neuro was fine with that. I stopped Trileptal, neuro started Trokendi, and pdoc will probably be fine with that (we discussed topiramate before, and he said he wouldn't rx it for BP treatment but had no problems if my neuro used it for migraine prophy.) Pdoc is ok with triptans as abortives, even given their primary MOA on serotonin (and Rexulti does touch serotonin more than Abilify does.) Hopefully you get a progressive neuro who doesn't just wipe your slate and start you on his own preferred cocktail. I hate doctors like that, but unfortunately they are pretty common.
  4. FDA monograph says that Trokendi is expected to have the same effect on the formation of kidney stones as IR topiramate. Looking at some of the reported data, that's a *really* low occurring side-effect. Damn psych meds and their side effects!
  5. The constant GI upset prevented me from gaining any weight. My stomach was upset pretty much every day, so I didn't eat nearly as much. Lithium did have a ton of side-effects for me, and I tried it for a solid year before I quit it. Depakote is better for rapid-cycling and killing mania; it did nothing for my depression, but I did gain a ton of weight on it, and started losing hair. My appetite went through the roof when I hit 1000mg, and was insatiable at 1500mg. But I think AEDs don't typically do much for me, as none of them have really done anything for my depression, including Lamictal.
  6. Has anyone ever taken Trokendi XR? I know it's a XR-formulation of topiramate, but with a 31h half-life for once-daily dosing. My neuro is trying it as migraine prophy, but I wanted to see if anyone has tried this specific formulation? I've read as much as I can about topiramate, but I found one resource that says Trokendi XR is not bioequivalent to the ER version, so it's probably not directly comparable to the IR version either.
  7. I believe the technical explanation is "shit works, and we don't fully know why." It appears to be all over the map, but it's also not an engineered drug like most modern pharmaceuticals. It's been trial and error with it over the past century. It generally is better at controlling mania than depression, although for some people it helps even out the cycles. I found it to be extremely rough on my GI system and never could fully tolerate it, even after a year. My last set of labs (while I was on it) showed my thyroid was getting out of line, and I had developed a slight tremor from it. I was on 900mg, split 300 am/600 pm, and I never gained any weight on it. I was extremely glad to get off of it, I had so many side effects, and it did very little for my depression. I hope it works for you!
  8. I think I'm the poster-child for Rexulti here 16 months on it continuously, at 1mg for 15 of those months. It's totally altered my baseline for my mood and makes life great It appears to play nice with just about everything else, so I having nothing but praises for it.
  9. My weight gain related directly to Rexulti at 1mg has been negligible for the past 16 months I've been on it. Since I stopped my mood stabilizer (Trileptal) and I'm just on Rexulti as my only maintenance psych med, I'm slowly losing weight.
  10. Not exactly the same, but I had side-effects every time my dose was adjusted up or down. It took about 5-7 days for my body to adjust and feel somewhat normal again.
  11. I've had cognitive issues from all mood-stabilizers I've tried, including Lamictal. It was probably the least worst, with Depakote being the absolute worst. It never went away, and continually frustrated me. I kinda got used to it happening, I just never was happy about it.
  12. Very, very slight akathisia, nothing at all like what Abilify caused. It's generally just me tapping my foot, randomly, like I'm bored. No floor-pacing-unable-to-sit-down-going-out-of-my-mind feelings, which I had a few episodes of with Abilify. Rexulti is far more predictable if you take it at the same-ish time every day.
  13. Rexulti is sedating if I take it in the AM, and it never fully went away, even after 6 months. Ironically, I switched it to PM, and it's not sedating at all. During the day, it would keep me mildly sedated all day, so I could nap at pretty much any time. I ran the risk of Xanax compounding the sedation if I took even as little as 0.5mg. I'm also only on 1mg of Rexulti, so perhaps it does act differently at the higher doses. I've done AM/PM trials of it for 3-6 months at each timing to give it a good shot. I'm also really sensitive to adjusting the timing of Rexulti, so when I've moved it from AM/PM (or vice versa) it takes me about 3-4 weeks to get acclimated and settled back down. It's a weird drug, but very effective IMO.
  14. I had horrible GI problems when I d/c'd Lamictal. It took several days to go away every time I adjusted the dose. I ended up titrating it off faster than planned because I was miserable, and at a low enough dose that I wasn't a seizure risk. Same thing happened when I d/c'd Depakote. That was really the only side effect I had.
  15. I see my tdoc bi-weekly, and I've been on that schedule for over a year now. I experience the same thing -- some sessions are really helpful, and some almost seem like a waste. I see it as regular maintenance. My tdoc told me part of the problem she sees with people in therapy is that they only show up when they're in a crisis, so the whole session is crisis management. There isn't enough time to work through the issues and help build better coping skills, which should ultimately be the goal, and people quit showing up when they feel better. I try to use those times when nothing is going on to learn new skills, or expand on positive ideas I might have, so that maybe I can feel better the next time things go south. I have to remind myself that MI is something that is never going to be cured, only maintained, and routine maintenance is vital (for me) to staying healthy.