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Found 7 results

  1. Hello spokety here. I'm a sufferer of neuroleptic (anti-psychotic) induced "anhedonia." I don't enjoy anything anymore, I don't feel pleasure. I don't feel happiness, sadness, excitement, anger, or any other emotions. I've lost my libido (sex drive) completely. I'm not able to understand movies I watch, or read books anymore. Food doesn't taste nearly as good anymore. I have no energy or desire to do anything, I have lost all my physical strength and stamina, I can't laugh, can't cry, can't sing or dance anymore, and I can't enjoy music. I'm sick of living but I'm too afraid to commit suicide. I'm not depressed, it's not the illness and if you're thinking about commenting that please don't waste your time. And yes I've tried more then one anti-psychotic, and it has nothing to do with that. I'm looking for other people who have been damaged by the medication and are in a desperate state for recovery, if you have please respond.
  2. Because of my extremely negative reactions to almost all the AP injections down the list, my probation officer and my psych are allowing me to switch to an oral medication for my last month on probation before I graduate. They know it's not even a risk if I didn't take it (which I'm going to) because it usually takes me many months to a year for me to become symptomatic and have a relapse. I'm not one of those type of people who relapse in less than a week or even a month. So this Tuesday, I have an appointment with my psych to discuss my options with the oral medications. According to my psych and what I know, I'm very responsive to low doses of anti-psychotics, almost becoming completely rational in a few hours of taking Zyprexa 2.5mg or Abilify 2mg. However, I'm also very sensitive at the same time and experience severe amounts of Akathisia that last all day from the moment I wake up to when I go to sleep. I could pace back and forth all day if there were no interruptions. I feel like I want to jump through a ceiling or run through a glass door to alleviate the constant need to be moving. We have tried everything from Cogentin, Artane, Propanolol, Clonazepam, Benadryl, and now Gabapentin 600mg 3x per day and all it's doing is helping with my anxiety and stabilizing my mood but not relieving the Akathisia. The counteractive drugs simply don't work for me. Never did. They're to weak compared to the agent that's causing the Akathisia. I saw a commercial over the summer that claims that Fanapt has a lower Akathisia risk than other atypical anti-psychotics but I'm not entirely sure. It seems that Fanapt has to be taken twice a day and is recommended at at least 6mg after the 1mg starting dose. I want something that can remain low. I've also read that Seroquel, at the higher doses, like 400mg to 800mg can treat schizophrenia with less of the Parkinson like side effects. I've discussed this with my psych and he says he wants to keep Seroquel as a last resort because of its low efficacy. He may not be realizing that I don't have the average type of schizoaffective disorder (if that exists). He's fearing that my claims of the extremely low-dose oral meds while I was in jail is not a true account. So. conclusively, what is the best option for a schizoaffective patient who's highest priority is ridding the Akathisia while still taking the medication consistently? I don't care about the 100% efficacy or having some symptoms. I just want the ******** akathisia gone. I also have other side effects from this crap they've been sticking in my arm for the last 15 months such as Weight Gain, Gynecomastia (just won a huge lawsuit against Janssen Pharmaceuticals for Invega), Sedation, Fatigue, Depression, Anxiety, Panic Attacks, Anhedonia, Throat Swelling, Involuntary Eye Movements, and Suicidal Ideation. Just to name a good amount of them. Please help me as my appointment takes place later this week and I want more knowledge going into it. Thanks
  3. I've had two previous major psychotic episodes while off my medication for long periods. These episodes put me into a manic frenzy that caused legal problems. Once where I isolated and resisted arrest on foot and the other where I resisted / eluded by motor vehicle across 3 counties. One occurred during a heat wave in mid-July and the next during frigid temperatures in mid-January, thus extreme temperatures are one of my triggers. Thankfully there was little damage and no one was hurt either time. My lifestyle pattern involves me taking anti-psychotic medication by court order (usually by injection) for 1 to 2 years for probation before going off and feeling consistently better from the lack of adverse side effects (akathisia, drowsiness, suicide ideation, anxiety, panic attacks, anhedonia, hopelessness, severe weight gain, etc). I do well for about 7 to 8 months but then begin to isolate in my apartment and decompensate and become delusional and manic, thinking I possess special abilities and evolutionary traits and can communicate with a higher power. There is some paranoia involved as well. Sometimes I hallucinate. Then I relapse and become frenetic. There is however, little to no depression when I'm off the anti-psychotics. When I take them I'm severely depressed. I have seen a number of psychiatrists since I developed this illness in 2011 at age 22 and been labeled Paranoid Schizophrenic, Schizoaffective, and Bipolar 1 With Mania. None of them are completely synonymous and my current psych can't make up his mind. I'm very sensitive to anti-psychotics. Only 1.25mg of Zyprexa zapped my delusional thinking and hallucinations in a few hours and Invega Sustenna 39mg (what I'm currently taking) is more than enough for treating my symptoms as well. The same thing with 2mg of Abilify. I'm just saying this because I've heard that some individuals need moderate to higher dosages for the medications to be effective. I'm not one of them. Anyway, I came across one psychiatrist who was part of the justice system (in the beginning of my term) who refused to place me on an anti-psychotic claiming I was too focused during my occurrences with the police for him to diagnose me Schizoaffective. He said that I still retained some sanity based on what he was told and wasn't trying to murder anyone or hurt myself. He refuted Schizoaffective Disorder and labeled me Bipolar 1 With Mania And Temporary Psychosis and said I had one of the most extreme cases of Mania he had ever seen. He recommended a heavy mood-stabilizer instead of an anti-psychotic. He said there may be some delusional thinking but I will remain baseline and wont act upon them. Unfortunately, I was extradited within a few weeks and placed out of his care and the next psych I came across was an AP dispenser and convinced me to take it so probation would accept me. The only mood-stabilizer I've tried is Nuerontin or Gabapentin and I wasn't on it long enough to know if it treated my symptoms effectively. I come off probation in December and don't want to get in trouble with the law once again, but at the same time I despise what these anti-psychotics are currently doing to me. Some things I wouldn't wish upon my worst enemy. Being on the anti-psychotic leads to depression, anxiety, suicidal thoughts, akathisia, hating every aspect of life, and weight gain and coming off completely means thinking I have 38 girlfriends and can stop missiles in their tracks. Could a mood-stabilizer be the appropriate balance to end this nightmare? Can someone have Bipolar Mania so severe they develop Psychosis but not actually be Schizoaffective?
  4. I am posting this here because it isn't about any specific type of medicine, otherwise I would have posted it below in that section. But if I overlooked a section down there, admins, please feel free to move it. Anyway, I have been having some issues with [minor, though bothersome] side-effects for a while now and was just curious as to whether any of you might have some thoughts/insights or suggestions for me as to what meds/kind of meds you have experience with that I might bring up with my pdoc. When I first began treatment a few years ago my first pdoc put me on abilify (10m; later lowered to 7.5mg). I was on abilify for a few years, and, though it worked wonders at controlling my symptoms, it made me gain a shit-ton of weight (when I started I was about 160lbs, now I'm about 220lbs!). So my new pdoc, out of health worries (due to the weight gain) is currently weaning me off of the abilify and has put me on lithium (1200mg). I was hesitant to go on lithium because I had heard it interacts with psoriasis. I've had a mild case of psoriasis since, oh, my late teens or so (before then it was minor). I brought this up with my pdoc, but she had no idea what I was talking about. I opted to give the lithium a try anyway since I was going to be going to see a dermatologist soon. So, I saw the dermatologist, but I had barely started on the lithium, so there was no real difference in my psoriasis then. But in the few months since then, my psoriasis has fucking exploded! I am getting it in places it never was before and it is no-doubt due to the lithium (the dermatologist confirmed to me that lithium does in fact cause psoriasis flare-ups... and my pdoc looked it up online, so, yeah). So, my question(s) is/are... have any of you ever had similar problems? I will assume weight gain because I have seen it around the boards before, but how about the psoriasis or similar conditions? What do you think are the best meds or best kind of meds with limited side-effects (overall. I mean, I know it varies from person to person.). I will be honest, I can deal with side-effects like nausea, diarrhea, spacing out, etc., it's really the weight gain and psoriasis I'm worried about. Basically, have you been on any weight-neutral mood stabilizer or APs that have worked well for you that I might look into and ask my pdoc about? My AD is fine. Working great. No side-effects. It's primarily mood stabilizers/APs I'm curious about. Initially, I went with the lithium because I underestimated the psoriasis flare-ups and I figured, "sanity over vanity," but it's seriously getting ridiculous. I see my pdoc on Thursday and my dermatologist on May 11. Should I bring up a switch in meds Thursday or wait it out until I see my dermatologist? I'm going to ask the dermatologist about a pill to fight the psoriasis from the inside, but I'm not sure if it will be powerful enough to ward off the effects of the lithium. Okay, this is getting long, so I'll end it here. Thanks in advance for any input!
  5. Hello, I'm 25 and was hospitalized in September 2014 for manic episodes. The doctors put me on 3mg of risperidone (risperdal) and 750mg of depakote daily. After 9 months of taking the medication I really started to see a decline in sexual drive and performance; my libido was essentially taken away. The risperidone/depakote pretty much kills orgasm and gives me erectile issues... I can't maintain an erection. It's like getting your manhood stripped. I feel helpless, I'm at wits end, and I don't know what to do. I talked to my psychiatrist about my erectile dysfunction issues and he decided to lower the risperidone to 1mg and leave the depakote the same. So I've been on 1mg of risperidone for the past month but lowering the medication didn't really do anything. How am I still having this erectile dysfunction problem if I'm only on 1mg of risperidone and 750mg of depakote daily? The bigger question is how am I going to be able to solve this problem that's making me question whether I want to live anymore. My penis was my biggest asset, no pun intended. But now if I don't have that, I feel useless and like nothing, worthless. It's like I'm half a man because I'm only 25 and am already having erectile dysfunction. I don't want to have to start taking any more pills to solve this problem! No viagra, wellbutrin, or any other pill. I ultimately want to get off this medication so I can live my life normally without dependence on any pharmaceutical drug. I'm tired of being a chemical prisoner and just want to live the rest of my 20s like a man should, with a lot of sex. What should I do?
  6. Heya I went to the Doctors on Tuesday, turns out I'm now in the over weight range. She spoke to me about going on Diabetes meds for weight loss. Has anybody here tried it? I would like to know if anyone has and what the results were. Thank-you!
  7. What has your experience been with Latuda and other AP's on your weight? Everything I've read about and been told says Latuda's supposedly weight neutral; however, I know that all AP's increase blood sugar, and this leads to weight gain. I've been on 80mg of Latuda for a year now, and I've gained a little over 5 lbs, which is not a lot, but there's more to it, read on. Prior to starting the Latuda I had a brief stint on Risperdol, but it increased my Prolactin levels and made me stop getting my period, so I had to go off it. I didn't notice any changes in my weight on Risperdol. Before that I was on Clozaril for about 6 months and gained 30lbs. It was a last resort. I had tried everything else( including risperdol and latuda neither of which worked prior to the Clozaril) and had treatment resistant auditory hallucinations for 5 years. I figured I would lose some of the weight from the Clozaril when I started the Latuda, since most of my weight gain was from medication.I am in recovery from anorexia ( starting when I began the Clozaril) and the only way I agreed to take Clozaril was if they gave me Metformin. They only gave me 500mg of Metformin, which isn't enough to really help with weight loss, but I didn't know that at the time. I wasn't as concerned about food or my body but hadn't increased my caloric intake that much and was still only eating once a day. I continued to exercise moderately and still do. Given my small amount of food intake and exercise, I should have lost weight weight when I discontinued the Clozaril because that's what made me gain mostly and at a very rapid pace. Instead I have maintained all that weight and managed to gain even more weight on the Latuda. I don't think Latuda is as weight neutral as they claim. I know I would weigh less if I didn't take it or if I reduced my dose. I don't want to become anorexic again, but I don't want to gain anymore weight either. I discussed my concerns with doctor, and she prescribed me Metformin again after a 45 minute discussion. She's not pleased about the Metformin and was upset about my once a day eating regime. I had to agree to eat 3 small protein based meals a day, and she advised me to avoid sugar. She only prescribed the Metformin because she doesn't want me to reduce my Latuda or go off it because I'm doing so well. Has anyone else experienced weight gain on Latuda? Even a small amount? How has it affected your weight? I've always seemed to gain weight on the supposedly weight neutral AP's. I gained a ton of weight on Abilify (when I took it before I was psychotic, took it again after I was psychotic but cut my dose down to a tiny amount) and gained weight on Geodon. My doctor told me the other day that Abilify and Geodon aren't weight neutral. Anyone else gain weight on these? Which meds have caused weight gain? I was anorexic and weighed 93lbs when I started the Clozaril. Normally I never would have taken a med that caused so much weight gain, but I was in an excellent hospital seeking help mainly for my depression. I wasn't looking for help with my eating disorder, and considering I had tried nearly every med possible with no relief, I didn't think they'd be able to make the voices go away.They were determined to treat all my syptoms at once- the psychosis, anorexia, and depression. Normally I avoided AP's that caused weight gain. Zyprexa was my worst nightmare, but I had tried it. I didn't really gain weight on it, but I wasn't on it long and it didn't work. I would try AP's, but if they caused the slightest bit of weight gain I either went off them or reduced the dose ( with or without my doctor's permission). I respected the doctors in this hospital and probably would not have been willing to try Clozaril anywhere else. They told me that I had to gain weight in order to get better and for some reason, I listened to them when I had ignored everyone else. the anorexia became really bad when I was 29 and got into recovery from substance abuse. I've been to inpatient treatment for ED's twice and had seen numerous specialists. Plus that's the field that I pursued for my academics and professional work, so I knew all about it. I hated the Clozaril because of all the side effects, which is why I came off it. I prefer Latuda and am able to cope with it's side effects by taking other meds to counter act them. I'm glad the Latuda works to control my auditory hallucinations now, but I think that ECT and the Namenda play a big role in that too. As much as I'd love to come off an AP, I'm scared to mess with my current meds. I don't want the psychosis to come back. I doing so well now. But it's really hard to go from 93lbs to what I weigh now. I'm more than 35lbs heavier. I'm 5'4, so my BMI is still in the normal range, but I don't want to become overweight. I've weighed a little bit more before ( when I was 29 and on Abilify,before I got into recovery from substance abuse) and my horror at being so heavy triggered a massive slide into severe anorexia. What do you do to cope with weight gain from meds? In your experience what is the med that caused the least and most weight gain? I know it varies from person to person. Anyone else prescribed Metformin to help with AP weight gain? Do you think the benefits of AP"s are greater than gaining some weight? Have you ever reduced your dose to lose weight? Would love to hear your stories.
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