7 posts in this topic
Sorry to keep going on about side effects, I just want to know.
Has anyone had substantial (diffuse, all over perhaps) hair loss from any of the AED's, that upon quitting that medication, eventually that hair loss reversed and it regrew?
I know it sounds vain, and hair isn't everything to most people... but can it grow back - its diffuse loss for me right now. I am male, just turned 30. I don't have a recession or if I do its very mild. My hair had loss before, but it was controlled - and was due to Adderall just being on that a couple days actually (as strange as that may sound). BUT being on lamotrigine, years later - my hair no longer looks good, and is straw like and very thin. I had 80% of my hair and it looked amazing, as I started with a thick full head of hair. You could see expanded part lines and such when I had the incident on Adderall. ANd then I switched to Dexedrine eventually and used some Spironolactone cream at nights, to prevent shedding. When off Dexedrine I barely shed. Same with other meds. Dexedrine was less bad than Adderall. So that was my mid to late 20's hair and medication wise.
And in the last winter till April, I really tried to "get used" to the side effects of Lamictal, but I couldn't. I liked it and it did make me feel more resilient and grounded and calm and less depressed - but it simply wasn't good for me to have the side effects. They were affecting my self-esteem. I've been off of it since April 22 I think, and I hope hair regrows. I am now on Finasteride - and have been since January, but am taking a small break from that and then restarting it at a micro dose (as they have similar DHT inhibition anyways, and hopefully I can reduce side effects). I didn't even realize that I was losing hair on Lamotrigine, until at least a few weeks later or a month or so. I was more concerned with the death rash, and the other side effects.
EDIT: This is really disheartening... I guess it doesn't often reverse with Lamictal? I've read studies showing it's rare.
Hi, I'm new here and hoping one of you can help me out. I've taken Lamictal, 400 mg (max dose) for about 8 years. We added on Neurontin just 4 months ago ( 200 mg). 3 weeks ago I started itching. All over- even between my fingers. No rash but heat makes it worse. I've eliminated all obvious causes - lotions, shampoos, detergent, dryer sheets..so on. I've never been allergic to anything in my life (47). My Dr wants to titrate me off the meds, starting with the Neurontin. Last resort. Has anyone here had a reaction after being on a med for a long time ?
Hey there! I have been diagnosed with migraines to explain vertigo that started in 2012 on my honeymoon in Italy and lasted pretty much 1-2 years after that. It was off and on, more or less all of the time. I felt like a little boat tied to a dock. I went to several neurologists, and they said it was just migraines and put me on Topamax and then later switched it to Trokendi XR. Has anyone else experienced vertigo that lasted that long that someone said was just migraines?
Hi there. I'm a male, late twenties. I was diagnosed (correctly) with ADHD a few years ago. I take dexedrine on and off (mostly on during school or work - but I take breaks).
Many years ago I was prescribed Effexor XR (eventually Seroquel, Zoloft). I didn't realize at the time but (first time) I eventually became seriously Manic, and destroyed everything around me. That was my second year of university. That and untreated ADHD, and a lot of other bad things (that made me have to leave the country) happened - and it was really bad. I was dx G.A.D. then and later swore off all psyche meds ever. I got a lot better in some ways. Lost 30lb I gained, got better in sobriety, worked my ass off... BUT it was a major struggle. And quitting alcohol, later drugs, and smoking, and trying to piece together my life, and force myself not to be depressed/anxious - did not work. ADHD meds later helped with motivation, etc, but it was kind of late.
I recently (1.2years ago or so) saw someone who is one of the "experts" on Bipolar Disorder Research, in North America. He diagnosed me or "strongly suspects" me of having Bipolar II. I got a prescription from my regular Pdoc for lamotrigine (that other expert is hard to see and is a research doc/lecturer mostly I think). It was the generic. I was scared to try it and waited 9 months. I gave up after a month due to swelling/ bloating. That was September. Now I tried Brand name (GSK) and I think its better, its been 17 or so days. But I may quit - for the same reasons and dry/irritated eyes. I'm very serious about fitness/ lifting weights and the bloat is sabotaging me there. And I really need a job and to apply myself to get into grad school sooner than later. I feel anxiety decreased dramatically and there are antidepressant effects in lamictal. And perhaps that and dex are a great combo... but I worry about side-effects and the fact that lamotrigine binds to melanin. My eyes felt like they were burning day 16-17 at times. I had "red -pen marks/ scratchy" like rashes a few days in week 2 on 25mg... But they just occurred a couple hours after taking the medication (around 10pm every night).
This is probably the first medication or substance besides (alcohol, cocaine, original first time use of dexedrine/adderall) that "lifts" my depression. I wonder can I switch to something like Gabapentin? Is gabapentin good enough as a "mood leveler"? I usually can go out with people and be very fun to be around, for a while - but then I'm back on my own again. Like I did improv, was very funny, outgoing at different times in my teens and twenties --- but sustaining any relationships are HARD/ impossible for me. Agitation, impulsivity, anxiety, depression all seem to be reduced on Lamictal... Is there anything else that can do this and blend well with adhd meds?
I don't think I need any cocktail of meds like those often prescribed for Bipolar I. My therapist (PhD -psychology), and pdoc (Psychiatrist) see me more as ADHD. But, that serious depression is something they don't really see. At 16 I thought it was anxiety, then at 18-19 I treated that, ruined everything around 20-21... And rebuilt my life, the next 4-5 years. I was happy to be 40-50% functional on ADHD meds, but it doesn't seem enough. I will not go back on anything like Effexor... but maybe Wellbutrin or Gabapentin will help. Any insight into this? Thanks for reading.
Using only ADHD meds in my last university courses seemed to have helped -- but sometimes I was awake 3-4 days. This is kind of how I was during high school finals, job applications, two different universities - even without ADHD meds. BUT at least instead of taking lots of coffee and missing tests/ etc... I was alright. Getting B's and B+ on classes I hated at a school I hated... So that was OK, but now I'm off into the real world and need something more fast. I also think clearer, and such on lamictal. But it makes me fall asleep very late -- 9-10am... and while I sleep 8-9hours, its at the wrong time!!!!!
I am planning a major surgery, deciding for or against law school, and getting more work experience in this year.
-I am ADHD and Bipolar II (more time spent in depression).
-Lamictal seemed to be better as an antidepressant than I've ever experienced. I used generic 30days and brand name now 17 days.
-I'd like to quit and find something better, with less side effects. I'd like it not to mess with my ADHD treatment.
Comping off Luvox and Wellbutrin - migraines, nausea, dizziness, body aches and weakness - how long???????!!!By C_Bear
After some really unsettling stuff and suicidal ideation, I came off of Luvox and Wellbutrin XL under care of my psychiatrist. I hadn’t been on the Luvox very long and my last dose was Jan 3rd. I had been on Wellbutrin XL 300mg for 4+ years and tapered off with my last dose on Jan 12th. Again, I am under a doctor’s care and have regular appointments to check-in, but she wasn’t able to give much information about some weird possible side effects or any time time other than “it should hopefully get better soon.”
After the luvox, I had nausea and other intense GI symptoms, but they kind of reared their ugly head and then faded. Possibly because I was on it for so long, but I’m really struggling coming off the Wellbutrin which I though was supposed to have less withdrawal. Last week at the peak of feeling bad, I couldn’t even go into work. I had intense migraines, vertigo, and nausea, spent two days pretty much in bed just trying not to move with a sleep mask on. I also had acute joint pain, not 100% sure that it was caused by discontinuing the meds but the timeline fits, felt like I had aged 20 years overnight with pain in my hands (couldn’t open jars), feet, and knees.
Now I’m more than a week out and still with near continuous nausea and dizziness, headaches better than the raging migraines but still there on and off. I also feel like I am just uncomfortable all the time, just feel disconnected like my body is in the way of itself if that makes sense, trouble falling asleep no matter how tired I am because nothing is comfortable. I also felt really weak over the weekend, just couldn’t do normal activities like I had no strength and then was fatigued. My doctor said that since some antidepressants are used to treat fibromyalgia (something I’ve never had before), people can get rebound fibromyalgia symptoms when they discontinue them?
Please share your experiences. How long will this last? I feel better mentally, no more intrusive thoughts and so much less foggy, but feel too crappy physically to do much - so frustrating! The headaches, nausea, and dizziness I’m not too surprised about, just really hoping they go away. The weakness and ashiness and just constant discomfort, that was not expected. I keep thinking it’s not the meds, but not sure what else could have changed to bring on such a seemingly drastic change in how I feel physically. What the heck is going on with that? Has anyone else had that happen? When did it finally go away and was there anything you found that helped in the meantime? Again, I am seeing my psychiatrist but I'm concerned about all this because I'm struggling with these symptoms at work (missed days and trouble getting through long shifts) and especially as a mother to a young son. Please help - thanks!!!