5 posts in this topic
I don't want to step on any toes, or say that you should do this or that, but I went from 14 years of chronic migraines (15+/month) to now only one a month. This is my story.
I got my first one in kindergarten. It was unbearable. I laid in a dark room in tears, begging for relief. This never stopped. I got one every other day for 14 years. I missed so much school I had to place special request forms to repeal my absences other wise I'd be kicked out. I slept for my entire elementary and junior high years. When I was awake and out of pain I'd only do school work. I managed to keep an A average, something I know many aren't lucky enough to have. I didn't have friends. It was sleep and school.
I went to doctor after doctor after doctor, no one had an answer. My brain scans all came back clean. I was hypersensitive to drugs and with every one I was prescribed I endured every symptom alongside. I tried alternative medicine, I tried voodoo (kinda joking, but honestly some of the crap I did may as well be), I tried every pinterest suggestion, I tried every kind of therapy, aroma, oils, cleanses, I tried everything.
I held out on going to the ER. My parents aren't well off and each trip was a kick in our bank accounts special parts. In 2015 I had a three month period from hell. Every day I was in pain. Every. Day. I lived in a dark room, black paper taped to the windows and extra thick black curtains cover those. I had my own mini freezer filled with ice packs and empty bottles of excedrin and ibuprofen (three excedrin and four ibuprofen were my friends) scattered everywhere. I dropped most of my college classes except for the online ones and those who didn't take attendance. (I was 21 at this point).
After three weeks straight of a migraine, no break, I couldn't take it. I had been in my room drifting in and out of sleep and agonizing hours of being awake for three weeks. I didn't go to school, I didn't leave my room except to use the bathroom and take hot baths in the middle of the night. It was hell. I finally had a mental break down and stumbled into my parents room balling. I laid in their bed as my mom held me, rubbing my temples and whispering to my dad. They finally made the call and rushed me to the ER.
It was a clean bill, of course, but the doctor hooked me up to an IV and I got my very first migraine cocktail. After three weeks I finally felt nothing. The next morning the migraines returned and continued three days in a row for the next two months. I had a new doctor who was very attentive and sweet, she gave me a list of options to try to combat it. My body rejected it all.
Finally my mom called her doctor. She had been getting hormone pellets to make up the lack of estrogen in her body from her hysterectomy. An appointment was made and my road to relief was paved.
Before my appointment my doctor had my hormones tested. I was perfect. In every aspect I was completely healthy. She sat down with me and reviewed my history, what I had tried, what never worked. She then proposed an experiment for me to try. She'd give me 6mg dose of estrogen, a pellet that she'd slit into a cut on my hip, and my body would feed off of it for the next three months. Every three months I'd be required to get another dose. She said that by doing so, I'd get constant level of estrogen, my hormones would no longer fluctuate and my body would no longer be triggered from the ups and downs.
Three months of straight pain, a day or two of relief in between, I signed right up. She cut a slit into my side, slipped it in, covered it with a bandaid and sent me on my way. Immediately I went from a migraine every day, to once a week. From there it only got better. By the three month period I was down to once a month.
Unfortunately that wasn't permanent for me. Within the next six months stress from school and family issues (ER visits aren't cheap, and we didn't have the money to get me another pellet), I was back to every other day. It got to be too much for me so I left. I moved across the country into a new, stress free environment and I'm fine now.
It's been 18 months. I get one migraine every month, right before my period. The hormone pellet helped me as I was stuck in a stressful situation. I've been mostly migraine free for 18 months because I'm in a happier place, I don't have pressure of family and I'm in an entirely new environment. I'm a big believer that air pressure and stress has a lot to do with why I was in pain for so long.
Anyway that's my tale. From 14 years of hell to one a month triggered by hormones, I'll take that anyday. Hang in there, I know it hurts. Believe me, I know it hurts. This isn't forever.
Hello! I've been on Trintellix for 10 weeks now. Started at 5mg for 1 week, then 10mg for 4 weeks. Bumped up to 20mg for 2 weeks but the headaches were so bad that I went back down to 10mg since then. As per PDOC - Wanting to increase dosage back to 20mg and then slowly to 30mg in hopes of getting anxiety under control. Do the headaches ever go away? If I know that there's a light at the end of the tunnel I think I can knuckle through the rough part. Headaches (migraine quality) are my only side effect. No nausea.
I'm newly diagnosed with what my pshychiatrist put to me as "mild bipolar", whatever the hell that means, but I've had depression and severe anxiety disorder for years.
I've been taking 300mg wellbutrin for my anxiety for a few years now, and I've been on 200mg Topamax for chronic migraines for almost 4 years.
My new Psychiatrist just added Lamictal to my regimen today to try to aid with my mood swings. Has anyone been on this combo before? And Did it help? just looking for info on what I might be expecting.
Well I posted a couple of weeks ago that my doctor was looking into a possible diagnosis between seizures, narcolepsy, and migraines. I am still waiting to see how that goes.
Wednesday I had my consult with the sleep clinic which flagged me a lot for narcolepsy, which may or may not be relevant as I know these intermesh a lot with each other.
I have continued logging all of my seizure like episodes since I've noticed that they were more than just typical chills. If I knew how to link that post I would .The gist is for those who have not read it is it a chill like feeling in the back of my Neck, head and shoulders. My eyes would roll back and eye lids would flutter. Started out lasting roughly 2-3 seconds then progressed over time to 3-5 seconds. There was a cold shiver included with the eye roll and my head would snap backwards.
As time passed by symptoms slowly progressed. Some nights I would have 5 or 6 back to back, mainly if I were in a vehicle that had wind and ac sometimes none. Seems to be triggered by wind and cool/cold air. I cannot induce it nor does it happen all the time. Afterwards, I am sometimes sick or have aa headache, but I am always sleepy for the rest of the day.
I have continued to maintain awareness. In the last week or so my arms have begun to jerk upwards during these 'episodes' and shake a touch. Not long. Like I said they only last a couple of seconds.
Now...the newest thing that would freak me out if I were not on an awesome bipolar regimen that squashes my anxiety.....
Yesterday I had an epidose. The heat index was about 100 degrees and I was sitting in front of a huge fan trying to stay cool. Hair was pulled up. Next thing I knew my arms, shoulders, neck, and head tensed and jerked. My head snapped back. Eyes rolled. Lids fluttered. I can't remember if I felt the usual cold shiver or not because when my arms jerked upwards I felt a warm tingle that felt like electricity [best way I can describe it] go all the way to my finger tips of both arms. It matched perfectly. It was not painful like neuropathy, not pins and needles, just a warm electrical tingly feeling if that makes sense... I don't know how else to describe it. It started and stopped with the episode.
Does anyone have any ideas on this???
I've had migraines since I was about 6 years old. When I was 12 I was prescribed sumatriptan and I feel like it's been a miracle drug for me. However, more recently I've had migraines more frequently (once or twice a week), and sometimes the sumatriptan isn't helping as much as it used too. I went to the ER once a few months ago because I had a migraine so bad I felt like I was actually going to die. I'm prescribed the highest possible dose (100mg). I'm thinking of opting for some sort of treatment that would reduce the frequency of my migraines. I know of some of them I wanted to know if anyone has personally tried preventive treatments, and how they worked and how effective they are.