KarateKid

Just got diagnosed with FMS (Fibromyalgia)

11 posts in this topic

Hey everyone, for those who know me and my history, it will make things a lot easier. I just recently got diagnosed with fibromyalgia by my pain specialist. He suggested I taper off the morphine and instead go in for weekly brain stem/spinal cord nerve block injections.
He also recommended Cymbalta, Lyrica, and acupuncture/physio/water exercise. He knows, however, that I have been on Lyrica before with no improvements so he recommended Cymbalta to be prescribed by my psychiatrist but he said because I am already taking Prozac & Elavil, that I would have to discuss this with my psychiatrist first because I cant be on Cymbalta AND Prozac for whatever reason.

My mom's insurance covers physiotherapy so I'm good in terms of that and my meds as well. Are there any other people out there who have been diagnosed with FMS? If so, how have you been able to cope with the excess sensitivity to pain?

Currently my family doctor is aware of everything and she will help me taper off the morphine and take care of me, after finding out about my new diagnosis. My current meds are listed in my signature.

 

Thanks,

KK

 

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I was diagnosed with FMS about 15 years ago.  I always have some background pain, but I get symptomatic in cycles which fortunately are getting further and further apart. I do have to take Ultram (trazadone) for this pain.

The reason you have to be careful taking Prozac and Cymbalta is that Prozac is an SSRI and Cymbalta is an SSNRI, so they both affect Serotonin receptors. You're pdoc will probably have a good idea about how to add Cymbalta.

I can't take SSRI and SSNRIs because they make me manic.  However, lithium has helped with some of my pain and fatigue. I also go to water aerobics 3 times a week, and that has helped, too.

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29 minutes ago, dilemma said:

I was diagnosed with FMS about 15 years ago.  I always have some background pain, but I get symptomatic in cycles which fortunately are getting further and further apart. I do have to take Ultram (trazadone) for this pain.

The reason you have to be careful taking Prozac and Cymbalta is that Prozac is an SSRI and Cymbalta is an SSNRI, so they both affect Serotonin receptors. You're pdoc will probably have a good idea about how to add Cymbalta.

I can't take SSRI and SSNRIs because they make me manic.  However, lithium has helped with some of my pain and fatigue. I also go to water aerobics 3 times a week, and that has helped, too.

Hi dilemma!

Thanks for responding. I am glad to hear the cycles of pain have been getting further and further apart for you. I hope mine eventually progress in the same manner.

Ill definitely chat with my pdoc about cymbalta and see what his opinion is.

I think im going to try the water aerobics since it seems like it has been working for you. 

I dont think im going to go for the weekly spinal cord brain stem nerve blocker injections. Ive read about the side effects and i definitelt dont want to experience those.

Thanks,

Hope to chat with you soon

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I dont think im going to go for the weekly spinal cord brain stem nerve blocker injections. Ive read about the side effects and i definitelt dont want to experience those.

^^This is what I was thinking too when I read your first post.  Personally, anything going into my spine will freak me out, even a spinal tap. 

Have you tried Neurontin/gabapentin?

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1 hour ago, melissaw72 said:

^^This is what I was thinking too when I read your first post.  Personally, anything going into my spine will freak me out, even a spinal tap. 

Have you tried Neurontin/gabapentin?

Hey Melissa, I did try gabapentin a long time ago but it was brief because the ER doc at that time told me to stop it. Although i wanted to keep going on it for the rest of the week.

I do remember it helped though. Ill bring it up as a suggestion. Thanks!

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Depending on what all is hurting, it may be possible to look at nerve blocks that are done in a different location. I know someone who had them in her upper back and found it amazingly helpful.  Lyrica was also fairly miserable for her at any dosage other than the starting one.

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17 hours ago, KarateKid said:

Hey everyone, for those who know me and my history, it will make things a lot easier. I just recently got diagnosed with fibromyalgia by my pain specialist. He suggested I taper off the morphine and instead go in for weekly brain stem/spinal cord nerve block injections.
He also recommended Cymbalta, Lyrica, and acupuncture/physio/water exercise. He knows, however, that I have been on Lyrica before with no improvements so he recommended Cymbalta to be prescribed by my psychiatrist but he said because I am already taking Prozac & Elavil, that I would have to discuss this with my psychiatrist first because I cant be on Cymbalta AND Prozac for whatever reason.

Thanks,

KK

 

(in bold) ... I just re-read the OP, and have something else to say that I'd missed when initially read it ... water exercise is (IMO) a great way to exercise if you are in pain.  It take all the pressure off of your joints so you can move around more.  I did this after I had hip surgery, and it was the most helpful things I could have done.  Physical therapy did not do a lot for me.

If there was a pool around here with water aerobic classes I could go to, I would LOVE to do water aerobics.

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14 hours ago, dancesintherain said:

Depending on what all is hurting, it may be possible to look at nerve blocks that are done in a different location. I know someone who had them in her upper back and found it amazingly helpful.  Lyrica was also fairly miserable for her at any dosage other than the starting one.

Hmm thanks for that suggestion. Although I think I've pretty much made up my mind that I'd rather go for physiotherapy/water aerobics and meditation along with my current meds to help (currently tapering off the morphine because I've come to accept the fact that at the age of 23, it isn't a long term solution due to the build up of tolerance). 

4 hours ago, melissaw72 said:

(in bold) ... I just re-read the OP, and have something else to say that I'd missed when initially read it ... water exercise is (IMO) a great way to exercise if you are in pain.  It take all the pressure off of your joints so you can move around more.  I did this after I had hip surgery, and it was the most helpful things I could have done.  Physical therapy did not do a lot for me.

If there was a pool around here with water aerobic classes I could go to, I would LOVE to do water aerobics.

Yea, I got a list printed out. I definitely think it will help! Staying positive!

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I have had fibromyalgia for at least a quarter of a century. (Wow.  Yeah, I guess I AM old.)  It went ballistic after a particularly bad horse accident involving head trauma.  Finally found an amazing rheumatologist who correctly diagnosed it and said, "First we address your sleep disorder." One of my principle symptoms at that time was cluster migraines.  Since then, I've read a LOT and had occasion to try a lot of dif. Med.s for the condition.  I've also noticed that the attendant idiopathic neuropathy and IBS-C that cropped up along the way have a lot of commonalities with FMS.  Lyrica helped, but caused such severe tinitus that I had to give that up. Gabapentin helps, too, mostly with the neuropathy--but causes less tinitus.  As a chamber musician, this is an issue for me.  So I've been taking SMALL, irregular amt.s of vicodin for 22 years.  ALL physicians (including my pain specialist) say I'll never get hooked because I take so little and not regularly.  But it's the only thing that REALLY works for me when the flare-ups get going.  I also take clonopin nightly---and have for 22 years---which enables my sleep.  More recently, I had to add in a SMALL dose of welbutrin (bupropion). My husband has Stage 6 Alzheimer's disease.  I kept him home with me sans family support for a year after the really bad sundowning started.  But eventually, he had to be institutionalized for his safety and mine. I was worn to a nub.  I still visit often and advocate daily.  His is a very severe type of sundowning.  All this adds to my own chronic pain problems.  But I wanted to mention here that the biggest help by far for the neuropathy and, I suspect, for some of the other pain is the use of neuropathytreatmentgroup.com 's  NerveRenew formula.  I ran out once.  ONCE.  Never again.

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I was Dx-ed with Fibromyalgia in 2007 and have been in pain since Feb. 2005. My worst pain that hardly ever goes away completely is my neck and shoulders. I just had a Major Depression episode and was given Saphris. In conjunction with light stretching?, which I was doing while hospitalized for the depression, my neck pain has just about vanished. I didn't expect this to happen with Saphris. I hate Saphris, and am getting off it with my psych dr.'s approval, but it really helped my fibro pain!

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I've had  FM for a long time but didn't accept the dx until a few years ago (I thought it was another way for them to say it was all in my head since it was a relatively new dx.) My rheumatologist diagnosed me in a real way with a full explanation and answered questions. She was kind about it rather than what prior Drs had done. Trileptal is the only med that has worked for my pain with very little side effects. The water PT is amazing! If my insurance would cover it forever I would be there everyday! That's a very good idea if your insurance covers it. It's very soothing. You feel heavy when you get out but you get stronger as you go on. It is a tough dx, I won't lie. Idk what psych issues you have but FM can make things tougher. AKF.

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