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aura

Oversleeping, disorder?

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Left to my own devices I sleep between 12-15 hours every day, unless I have appointments that I need to wake up for. Could the problem be my meds? Or might I have developed some kind of sleep disorder? Anyone else have this problem? 

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Was it like that before you had meds, and if there was ever a time when you didn't have MI symptoms, was your sleep still long like that?

The only TRUE way to find out if it's caused by your meds would be totally irresponsible to suggest as an experiment (ie discontinuing then restarting).

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I have always needed a lot of sleep too, even before I started taking medication. 12 hours is my minimum and i could sleep a lot more if I didn't make myself get up

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@aura I was thinking the same. That a sleep study or at a least a consultation with a sleep Dr specialist couldn't hurt. 

For me sleeping that much was a combination of: sleep apnea/possible other sleep disorders, my thyroid being out of whack (hashimoto's disease), the sedating meds themselves, etc. 

So you see that sleep issues can be from many different causes. It's best to see a specialist to rule out things like hypothyroid issues and sleep apnea or other sleep disorders. 

Did you always sleep this much or just after starting meds? Either way it would be a good idea to see someone about this. Sleeping so much is so frustrating IME. I hated sleeping my life away. Now it's better because I use a CPAP and take nuvigil and a thyroid pill but it's not perfect. But at least I'm not sleeping 18 or more hours a day!

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16 hours ago, Wooster said:

Was it like that before you had meds, and if there was ever a time when you didn't have MI symptoms, was your sleep still long like that?

The only TRUE way to find out if it's caused by your meds would be totally irresponsible to suggest as an experiment (ie discontinuing then restarting).

@aura This is what a true day time sleep study for testing for things like narcolepsy would want you to do. They would ideally want you on no meds. 

Luckily I have a very good sleep Dr and she knew it would be very risky and horrible for me to go off all my meds just for the sake of a sleep study.

I still had a day time sleep study done, but the results of course were inconclusive because I fell asleep but didn't hit the REM stage on all 5 "naps" during the day. Frustrating. So she is treating me for possible narcolepsy but it could also be chronic fatigue. But the meds block the REM stage somehow so when I napped during the day I didn't hit that stage. 

The only way to know for sure she said would be to go off all meds and wait a few weeks then repeat the study. No thanks. But she is a great Dr and would never put me through that. Thank goodness. 

 

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The problem started after going on meds. I used to be a morning person! So I've just been assuming the problem is the meds. But at the same time I wonder if seeing a sleep doctor might not help. Thanks all for the advice!

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Posted (edited)

I saw a sleep Dr and had a sleep study done. I couldn't handle the mask.

he gave me Provigil and it helped.

my insurance wouldn't pay for but I get it Costco for $25/ month.

Edited by Savannah

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i have this same issue, whether I take sleeping meds or not. This past weekend I spent a total of 31 hours sleeping from Friday evening to Sunday early in the morning, waking a few times to use the bathroom, get a drink of water, eat a bite of food, but I REALLY cannot understand how when I get up after sleeping for 14 hours I can just grab a glass of water and chill for 10 minutes then head back to bed for an additional 8 hours. It really is a problem because it's out of my control, leads to judicial consequences in my life, and impairs my functioning, academics and turning assignments/exams on time, making it to meeting on time or at all. 

I have really been searching for an answer because this can't continue to go on. I've already had 2 sleep studies but am going to schedule another one with either Johns Hopkins or University of Maryland, both in Baltimore. Like @Wonderful.Cheese did, I need to find myself a sleep specialists to get to the bottom of this because it honestly messes with so many areas of your life

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Posted (edited)
23 hours ago, mmaryland said:

i have this same issue, whether I take sleeping meds or not. This past weekend I spent a total of 31 hours sleeping from Friday evening to Sunday early in the morning, waking a few times to use the bathroom, get a drink of water, eat a bite of food, but I REALLY cannot understand how when I get up after sleeping for 14 hours I can just grab a glass of water and chill for 10 minutes then head back to bed for an additional 8 hours. It really is a problem because it's out of my control, leads to judicial consequences in my life, and impairs my functioning, academics and turning assignments/exams on time, making it to meeting on time or at all. 

I have really been searching for an answer because this can't continue to go on. I've already had 2 sleep studies but am going to schedule another one with either Johns Hopkins or University of Maryland, both in Baltimore. Like @Wonderful.Cheese did, I need to find myself a sleep specialists to get to the bottom of this because it honestly messes with so many areas of your life

Have you ever had a daytime sleep study? I had 2 night sleep studies and have extremely mild sleep apnea but they decided to put me on a CPAP to see if it would help (it hasn’t). I’ve also had one daytime sleep study. 

Do you drink caffeine?

 I love my sleep specialist. She is amazing. If you find a good knowledgeable one they can be life changing!!!!! The scary part is that in order to do a “proper” sleep study for the daytime one you have to have your body cleared of all meds she told me. This would mean several weeks without meds *at minimum* she said. She said I was on a lot of meds that blocked REM sleep stage so that my results would not be accurate anyway. But that to get insurance to pay for the nuvigil it would be best to do the daytime study.

So during the daytime sleep study I did fall asleep for all five 5-10 minute “naps” (more like torture naps because they wake you up just after a few minutes of sleep and I was sooooo tired). But because of meds I did not hit that REM stage during the “naps”. Plus there is a daycare next door to the sleep center I go to so during my daytime sleep study I heard kids screaming next door. Whoever thought that that was a good combo for a strip mall? Yikes. But I still fell asleep no problem.

Nuvigil has made a good difference in my life but I still sleep 11 or more hours. I was doing better but I’ve slipped. I could go up to the highest dose but I worry because what if that stops working. Then what? I hate sleeping my life away. You sound like me pre nuvigil. I would sleep my life away completely. I couldn’t function. I would sleep minimum 12-14 hours then nap a few hours minimum a day. I was probably sleeping 18-20 hours a day. 

One last thought. Has your thyroid been checked recently? Mine was wacky and I have hashimotos disease which rendered me super tired (amongst other things) on top of the probable narcolepsy or chronic fatigue. So I was hit with a double whammy. I take levothyroxine now and it has helped a tiny bit but my TSH level is still somewhat high but my endocrinologist doesn’t want to increase my dose. So that stinks. I’d probably be sleeping more like 8 hours if he would get my TSH level down a little bit more. It’s barely within normal limits. And I get tired during the afternoons and need naps at times. Ugh. 

Edited by Wonderful.Cheese

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Yeah I read in a magazine there are "long sleepers" and "short sleepers" so while we all read that everyone should get 8 hours a day, some people need 10+ to feel refreshed and some lucky people only need 4! I've always been a long sleeper, I could sleep 12 hours easily, but I usually wake up after 9 to go to the bathroom and make myself get up so I won't keep going. I wilil yawn a lot with 8 hours sleep and be a ball of stress and grumpiness with 7.

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