This is something I’m thinking about a lot lately. People without a mental illness don’t understand the costs we have: broken relationships, lost jobs, and poor spending episodes (putting it mildly). Add in all the costs of meds, doctor visits, therapy appointments - I didn’t choose this, but it is what it is.
Staying on meds, for me, has created some stability after years without any. But now I face homelessness in a couple days unless a miracle occurs. I’m pissed off at myself for HAVING this, although I can’t control that I do.
I’ve been depressed for quite a while, but still able to get to work. Over a year ago, when first diagnosed, I was off a few months, a total wreck, and am still crawling out from the financial fallout. Last month the pdoc added a new med. Within a week, I was hearing voices (not something I do) and was terribly depressed and had suicidal ideation. I quit the med and felt better within a week. During that time I took two days off work and hibernated, feeling hopeless and majorly depressed the first day. The next day I went to the pdoc and told her the effects of the new med I’d stopped. I went because my work demands a dr note to return to work. Telling her I felt like crap but have to work because I’m alone and have no back-up for money, I needed the note. She refused and said I’d get no note until I went through IOP. I went and after week 3 I told a dr there I’m ok and can’t continue because I must work. Got the note, no problem. They said they wanted me to stay off at least 2 more weeks, maybe more, but gave me the release. *sigh*
Been back at work a couple wks and doing pretty well. The first of the month came and I had no way to pay my rent. A small disability pymt was expected but hadn’t arrived (not enough for rent anyway). The way our pay works, and since I was gone 3 wks, no pay for me until the end of the month.
Yesterday I came home to a 3 day notice on my door. The property management is a big corporation and not willing to even give a few days and see from my dr release I’ve been out, doctor’s orders. I’ve asked a couple of people but they can’t help. I’m sad that I’ve failed. Loathing myself and my illness at all right now, I’m just hit in the face how much having this sucks.
The costs go way beyond buying something one doesn’t need. Even when doing things the way they’re supposed to be done, it still can bite ya in the butt. Tired. Exhausted. Fed up.
I've posted on this topic before, because I'm really wondering why this is happening to me, but not on other people that have been on higher-dose stimulants (without breaks) for MUCH longer....
I re-instated Ritalin (after a 4 month break) due to increase in work focus-cognitive tasks and sustained motivation. My pdoc also increased the dosage because previous dose (only 20mgLA & 10mg IR) was low and wearing off early. Was told I could experiment, but to take weekends off in order to "rest" . In the last 3 weeks, I've noticed drastic improvements in my mood, motivation, ability to focus on intellectual tasks/reading, and a positivity, calmness in general.
Problem is, I am psychologically addicted. When I try to break on the weekends, I can't get out of bed, barely prepare food for myself (despite hunger), and shower, basically, these symptoms are MUCH worse than before I was taking it! I'm concerned that I'll need to keep increasing the dose, take it everyday, and eventually, it will make my condition/functioning worse in the long run (exacerbating the problem). I had old pdocs that would not prescribe me stimulants for exactly this reason.....
Any ideas guys? I'm very compliant, and have no inclination to abuse the dosage. This is the only thing that's made a dent in my mood and functioning and does not seem like a long-term solution!
So I saw my psych doc today and he feels the best reactions I have had to control most all my symptoms are in this class of medications. Where I do not like this "named" class, I will give this one drug one more try. I have been on them all but this one. All the others I can take for short bursts of time. We are trying to find something I can take long-term.
Starting tonight with 20 mg of Latuda. I also asked for Cogentin to help with the horrible muscle spasms and rigid muscles. Mail order will eventually get me the Trasadone to help with sleep and Cogentin for muscle issues. I asked for Xanax and he wouldn't allow that since it's too short acting. I tried to convince him I need something for emergency purposes and he still said no.
It's been 6 months since I have seen my psych doc and in 40 minutes he went thru all my back history, last 30 years to try to find something to help me. He also wrote to my landlord stating that my new kitten is my therapy cat and can therefore not charge me any pet deposits nor fees. I love him for doing that for me !!!
So, after 35 years of treating me I asked... am I BiPolar or what am I? He said basically I suffer under the umbrella of chronic PTSD, tramatic brain injury and childhood abuse. The symptoms I continue to have will not go away, but need to be treated, great, huh? At least he was truthful. Settling in for the long-haul or what's left of my life. Somehow I was magically under the illusion I would be cured, lol.
My groceries were delivered to the wrong building and apartment yesterday. The woman who came to my front door said my grocery delivery was sent to her address, so I grabbed my cart and followed her over to her apartment. I noticed there was something off about her and it got worse when I entered her apartment.
She had put all my groceries away in her kitchen, where she thought was the right place (in her mind). She put my ice cream in the cabinet, and you can guess the rest. Each of the 22 items she put away in different places all over her home. She would not give up the candy, I had to walk away from that.
Clearly this woman had dementia and there I was in her apartment, alone. And as I stood in her kitchen getting my groceries back, I could not reach my executive powers and realized I was dissociated and could not defend myself. In reality, I should never have gone into her home. I should have just walked away, gone home and called the grocery delivery service.
This woman signed my name on the form as instructed by the delivery person and now we are worried how much of a tip she gave him on my credit card.
I knew walking over there I felt extremely anxious, going into a strangers apartment who was acting oddly right from the start, so the anxiety drove the dissociation and anything could have happened to me, alone with a demented neighbor, I should have known better.
Two days ago, another neighbor stopped by to visit my new kitten. I should never have let her in, but there I went again, immediately into dissociation. This woman has been threatening to me in the past and yet I let her in my home and as I was sitting there looking at her, I sensed she should not be there and yet felt powerless over the situation so sat there and let the visit play itself out. Then this woman started taking pictures of my kitten without asking permission and I should have have stopped her, but I was totally powerless.
I feel that I just cannot function in the real world and protect myself. Dissociation is protecting myself, but it's leaving me very vulnerable and the consequences are that I am left with feeling very bad about myself.
This is what I go thru every day from the moment I wake up: anxiety throughout the day, uncontrollable anxiety and panic only when I leave my home, dissociation in times of high stress and high anxiety and panic, insomnia every night, daily depression, scary cycling mood swings.
My psych doc called me on a Saturday afternoon (now this doc is semi-retired and only works 3 days a week now). I was shocked when I saw his name come up on caller ID. He was calling to suggest I go into the hospital until I become stabilized. Stabilized in one week, no way I say. It's gonna take time for that to happen. He said with the dissociation and everything else I am going thru on a daily basis he is worried I might self harm. I assured him I am not at that point and he knows that I call him when I need to go back in, plus I have a new kitten and don't want anyone in my home anyway. I think I can manage all this at home. I will be seeing him on Tuesday. That was soo out of character for him to call me like that, kinda got my attention and am I worse off then I realize. I have known him for 30+ years and he knows me well, so I have to trust his direction. His concern is that I am in the middle of a perfect storm and anything can happen and he worries that if anything triggers me I might not be able to control what happens to me.
Then several neighbors stopped by to see if I was okay as they have not seen me last week, curtains have remained closed, not answering phones nor texts. I know I have been avoiding alot of neighbors now as I am selectively avoiding those that trigger me and those that knocked on my door I call them "the axis of terror" for what they have been known to do to other people here. So, I had their phones on block. I have been protecting myself while I work on medication and mood and it's nobody's business.
Had a game of RummyKub set up for this evening and really looked forward to this all week, and everyone just canceled, really bummed about that.
I have had no interest in bath, washing my hair, eating. I can't focus on TV, can't read, nor listen to my book tapes. No interest in anything, I am soo flooded with anxiety/panic.
My HMO has restricted how many benzos I take, I have been on Klonopin for 30 years and that takes the edge off, but have to stock pile them due to the restrictions and delays in getting the medication to me, so had to cut back and that makes my anxiety worse.
So, back to my psych doc. The plan is to keep me on Seroquel (1/2 of a 25 mg) at night for sleep and for mood control for now during the day until I see him next week. It just sedates me too much if I take more than 1/2 of 25 mg in a 24 hour period. But the Seroquel puts the breaks on mood cycling, I just can't tolerate the side effects, they never go away, just increase.
So, I am going to suggest to him for sleep (I want to get off Seroquel due to over sedation and muscle rigidity), Ambien or Trazodone. I read up that Trazodone helps with insomnia, panic, migraine. Then I need a mood stabilizer/seizure medication so may go back on Depakote and Xanax for rescue from intense anxiety/panic. I don't want to go back on Lithium.
Goal for the day, making my bed and taking a bath, maybe washing my hair.