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InfiniteInsanity

Member
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    555
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About InfiniteInsanity

  • Rank
    Member

Profile Information

  • Gender
    female
  • Location
    USA
  • Interests
    Horseback riding, reading, listening to music, taking long walks, skyping, science, mathematics, German + Russian languages

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4519 profile views
  1. Hi again. Well, I got an MRI done and I got my results back. The doctors did not see a tumor in my MRI. They said that one side of my pituitary gland is bigger than the other, so it is now asymmetrical. It sure as hell was not like that a few years ago. The Invega caused my pituitary gland to change its shape. That's extremely creepy and unacceptable. I am being referred to a neurosurgeon because nobody knows what's still causing the high prolactin despite being off meds for months now. A few years ago, I was put on risperdal for the first time. It made me lactate, so they took me off of it. My current pdoc put me on Invega claiming that Invega is such a gentle drug compared to risperdal. He put me on Invega despite knowing how similar it is to risperdal and I had told him that risperdal made me lactate. He still chose to put me on Invega. I should have not listened to my doctor's lies. How could I be so stupid?? I should have refused the medicine. My doctor putting me on that medicine was reckless and careless. I'm so angry at him and I'm angry at myself. I don't think I ever want to see him again. This is so awful that I either want my breasts removed or my pituitary gland removed. I'm not going to live like this too much longer. I refuse to. Invega has ruined my whole life. How can a drug change the shape of a gland??!! This drug poisoned me and it is an extreme danger. I want this all over the news so that people can learn the truth about it.
  2. Oh, ok. Hopefully my prolactin continues to go down. Maybe it just takes a really, really long time for it to go back to normal. I'm glad your levels are going down.
  3. Oh no! Sorry to scare you.
  4. Thank you for your reply. Were you ever tested for a prolactinoma?
  5. Hi guys. It feels great to be back here after being gone for so long. I'll get to the point now. For 2 or 3 months, I was put on the invega sustenna depo shot. Unfortunately, it caused my prolactin to get way too high, up to 53. So, they took me off the shot in November. I got my blood tested a couple weeks later. My prolactin went down to 52. A few weeks later, it shot up to 56 and I lost my period. A couple weeks ago, my prolactin went down to 45 and I got my period back. My pdoc said a couple weeks ago that if it is still high, I will have to call my regular doctor to order a brain scan to check for prolactinoma. I don't see my pdoc until March 7th, so he will tell me to call my regular doctor to get an MRI. I will be so upset if I have a prolactinoma. I have heard horror stories of the medicine people take for it. Radiation rarely works to cure it. Surgery is not fool-proof, but it is scary. I'm so sick of lactating. It's highly disturbing and it really grosses me out. I have been poisoned. My body is ruined. I might be stuck lactating for the rest of my life. I have no hope in having a normal body ever again now. This is terrifying. I am SO done with antipsychotics. I can't take them until my prolactin goes back to normal my pdoc said. I could have a mental breakdown any time. Things get crazy off my meds. So, if you have lactated from invega, how long did it take for your prolactin levels to go back to normal? My levels aren't normal even after 3 months of being off of it.
  6. I definitely have agitation. I bottle things up until I explode though. Simple things like someone driving too slowly in front of me, if they are well below the posted speed limit, can give me homicidal thoughts. People's lack of basic manners and how selfish people can give me very aggressive thoughts. If I am feeling very agitated, I will stay away from people. I end up hurting myself because I will never hurt another person physically, so I need to get it out. I hurt myself so that I have someone to take it all out on.
  7. trigger warning - self harm Someone has put bug eggs in my cheek. My skin is not right in a spot on my cheek. I am terrified of what could be in there. If the bug eggs grow, I will faint from being grossed out. They look innocent like pimples, but they are not. A whole area of skin is red and raised. It is not just a dot. I am itching to cut the area open and kill whatever is in there. It feels like things are wiggling in there. It grosses me out. If I open the area, I can clean it out.
  8. InfiniteInsanity

    Sleep Apnea

    Hi. Long time since I have been here, just needed a break. I just got diagnosed with sleep apnea after doing a sleep study. It was pure torture. I have to go back to the lab to get a sleep study done and try a cpap machine. Do any of you use a cpap? If so, what kind/ model do you have? How long did it take you to adjust to falling asleep with one of these machines? I am nervous that I will have to pound medicine to get some sleep with one of these things grabbing my face. I do look forward to feeling better though, so I am going to try it.
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