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About Shymitten

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  1. Thank you so much for the wisdom you guys have offered. As dense as it sounds, I didn't even stop to think that I'm not the first one to self-medicate when there was no other option, then having to transition to legal medical care. One thing I did not mention that makes it more difficult is that I'm a military spouse and on Tricare Prime. It's absolutely fantastic cost-wise, but as far as control of physicians... I haven't tested those waters yet. My primary care manager seemed to be a decent doctor, although completely overwhelmed with the scope of my issues compared to his last patient, an adorable big-eyed little boy with a nasty case of the sniffles. But I have not yet been to the pain doc. So for right now, I'm making a bunch of appointments right now, because they think I may have cancer (as they always do, there are tumors but none of them have been malignant except for the ones on the outside of my uterus and a spot on my arm). I should be able to get in soon if they are informed about me losing 20 pounds in a month. I was on Percocet for quite a long time during the rounds of Lupron shots that triggered more bleeding in my lungs/intestines, and it was a rough balance between pain relief from it and pain caused by the use of it. I have frozen pelvis, IBS, IC, and Endometriosis Stage IV, RLS, and a few other things like chronic migraines. I was told that because of the risk of intestinal obstruction that my opiate use had to be limited, and that because of stomach ulcers Tylenol was out, and aspirin because of the periodic uncontrolled bleeding I experience from the growths that are in bad places like my lungs. As for pot itself, I've come to understand some huge differences in how it deals with my chronic pain versus opiates. I believe opiates restore more of a sense of overall well-being, meaning that peripheral pain in my arms/legs from growths/swelling, and they better control the large pain spikes that are a daily and unchanging feature of endo ever since it made it to my lungs. But the nausea from them is almost intolerable even on Zofran and other drugs, because I already have nausea to begin with. I also need to see a psychiatrist, but I'm not really sure how to make a primary care provider, a pain doc, and a counselor/psychiatrist work in tandem beyond just telling them "I need my care providers to work together".
  2. I appreciate the input, but that doesn't answer my other question... which can be rephrased as: how well does the average pain doc take care of their patient? I had an extremely bad experience last year with a pain specialist and I guess I just need some reassurance that there is a reasonable chance that my pain will be controlled enough for me to live a more normal life.
  3. Hi all.. Just decided to stop being a lurker and post about my situation. I recently acquired health insurance after being without for many years while recently moving to a very pot-unfriendly state from a state where I was going to obtain my medical card. My last two surgeries were done through a county charity program for people with serious illnesses but who were having trouble obtaining Medicaid. After losing charity health coverage last year, I began carefully using pot to control pain/severe nausea, both of which are debilitating without any pain control. NSAIDs don't touch the pain I have from the growths in my abdomen and the scar tissue from surgeries. You folks know that situation. I went to my first appointment with my primary care doc, and he gave me a referral to a pain specialist. Now, I don't know how they'll react to me testing positive for pot on a drug test, because I am sure they will give me one. I was given Ultram for pain control to last me until then, but only to take for breakthrough pain. Frankly, nausea is already a huge problem and the Ultram doesn't do much for the truly sharp/unbearable pain. I stopped smoking for a few days to give the Ultram a chance to work on its own before I tried carefully combining the two. It doesn't seem to do much other than make the nausea worse. So I'm in the unenviable position of needing to ask for a stronger medication, along the lines of a Schedule II med, while I'm going to test positive for THC. How is the pain doctor going to react? As long as my pain is *adequately* controlled, I have no issue with quitting pot entirely. I rarely feel much of a high from it, mostly the pain in my abdomen dulls to a tolerable level and I can keep food down. I am severely allergic to most anti-nausea meds, but willing to try more. I just don't know how honest to be. I have not had many sympathetic or understanding doctors. I am also dealing with horrific PTSD from an abusive relationship, and the last two psychiatrists that I had refused to address my anxiety issues with anything other than an antidepressant which gave me MUCH worse anxiety issues, as most antidepressants have in the best. Frankly, my story is complex and I could go on forever, but the main point of my query is this: How much of a hardass is the doc likely to be about my "illicit" drug use? How likely am I to be able to trust a pain doctor to give me an adequate amount of pain meds while pursuing a sane treatment plan that includes physical therapy and nerve blocker shots?
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