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ahalo

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Everything posted by ahalo

  1. I was just wondering if anyone else has experienced strange side effects from any of their meds that weren't necessarily bad, just.... strange. For me it was lithium. I've been biting my nails since I was 4 years old. At 35 I went on lithium and the entire year I was on it, i did not bite my nails. i have no idea why. It was the only "side effect" I had from lithium and has me convinced my nail biting is chemical lol.
  2. I know I'm late on this thread but I wanted to say that I was on Thorazine for over a year for anxiety (25mg prn) and sleep (150mg/night). The sleepiness on the lower dose resolved after maybe a week. And Thorazine was very effective for my anxiety. I had tried vistaril, propranolol, another one I can't remember the name of but is often suggested, as well as clonazepam which only helped my anxiety because it made me goofy/drunk-like. I did, however, have to go off the Thorazine due to facial twitches that can be a side effect, but those resolved once I was off. I have to say I do miss it. It worked sooo well and I can't find anything that comes close to what it did for my sleep in particular.
  3. Oh I'm definitely working on it. I've lost 3 pounds in the last week, and have slow and steady goals. For me, eating can be a big problem but when I'm aware of what's going in my mouth I can usually drop weight. My only worry would be taking something that stacks the odds against me for losing weight; if I feel I'm doing what I should be doing, and yet I still am gaining weight, it's going to be a difficult thing for me. I don't expect any pill to help me lose weight; I just don't want one to make things more difficult.
  4. I am sure this has been brought up many times before but is anyone willing to share experiences with antipsychotics and weight? I know everyone's body is different but there are some meds that pretty much cause weight gain in most everyone who takes it, while others vary person to person. When it comes to other meds, I haven't experienced weight gain even on some that can cause it (Lexapro and Prozac, which surprised me to even see them on lists of meds that can cause weight gain). If anything, my mood improves and I rely less on food, so perhaps that helps to cancel out the weight issues. I guess, I'm looking for experiences of those who already might have been a bit heavier to start. I was off meds for awhile and gained a ridiculous amount of weight. Now I have sleep apnea and I really just can't gain more weight, if anything I need to lose it. But abilify isn't helping in the way it used to. I didn't gain or lose weight on it before, it was neutral. The antipsychotics I've been on before are Risperdal (went off due to side effects), Geodon (went off due to akathisia), and Seroquel (not very effective). I was also on Thorazine which was helpful but I ended up with some involuntary movements and my pdoc took me off it. Abilify isn't doing the trick anymore and my pdoc won't raise the dose while I'm on Ritalin LA (I have no idea why, I know they can have a small interaction but the risk is low--). I was on Latuda and Sapphris previously but it was a terrible time, and I can't even remember why I went off them. I was just desperate to find something to work but at the time what was going on was situational and no med on the planet was going to help. I had to get myself out of that, and I did. So my choices seem to be Latuda and Sapphris-- what am I forgetting? I don't know much about Fanapt or Invega... Not sure if they're newer or just a couple I didn't go through in 2012. If anyone is willing to share experiences, particularly those who've had weight issues, I'd so appreciate it. My history is that I've been pretty lucky when it comes to meds but at the same time I've got to lose some weight for health reasons. I am not obsessed with my weight, but I don't want my health issues to get worse. Thank you much!
  5. I have a bulging disc in my neck and my neurologist recommended getting a shot in my neck called a Cervical Epidural Block that is supposed to help with my neck pain. I'm really nervous about this procedure, I was wondering if anyone else has had it done and what the experience was like? I had a Lumbar Puncture last year and that wasn't bad, can anyone compare? I'm so anxious, and I'm on nothing right now for my anxiety. So I guess I'm hoping someone can let me know what to expect, and how bad it is. Thanks
  6. I have read that Savella (at least as of the time of the information I found) hasn't officially been approved for depression. I have fibromyalgia and my Cymbalta hasn't helped that. My neurologist rx'd Savella and I'm waiting to hear my pdoc's feedback on that change before I go through with it. I'm just curious if anyone who changed from Cymbalta to Savella-- or anyone who has been on Savella at all -- can tell me some experiences or whatever. I've seen very little about Savella on the couple boards I frequent. And if anyone can explain the basic differences. My neurologist explained a little me, that the make up of one is heavier in Seritonin than the other (3 to 1 vs 10 to 1 or something of that sort). What difference would the make up cause? I'm afraid to mes with my depression. But this pain is so ridiculously bad.... I have to try something.
  7. You probably wouldn't get an equivalent dose in methlyphenidate-- I too have the sleep issues on the adderall based meds. Methylphenidate doesn't do that but to me the effectiveness isn't as high. In theory ADHD meds (from what I've been told by both my pdoc and neurologist) should not cause sleep problems in people with ADHD because it's actually only speeding up a part of the brain that for folks with ADHD is too slow. So in theory stims should actually help people with ADHD sleep. Now-- I have Bipolar II on top of the ADHD so I believe that's where my sleep issues come in. Anyway, it might be a trade off. Methylphenidate is effective, but getting to that high of an equivalent dose is unlikely I believe plus like I said it's effects are milder. Good luck.
  8. The other day I went to see my neurologist. Eventually he stopped me and commented on how I clearly have ADHD and how I was jumping from topic to topic and he asked me to "slow down". The main issue for me right now is that I haven't been sleeping well at all and that REALLY aggravates my ADHD. I'm on a stimulant (Ritalin LA) but it doesn't work as well as the Adderall meds. My problem right now is my bp has been wonky so even getting to where I'm at with getting the stim has been difficult. My sister was there and she was offended for me, but I understood his frustration. I feel the inner frustration too. She had ADHD so maybe that's why she felt defensive of me. But it is kind of embarrassing to be "called out" or have my symptoms be so obvious. I'm not offended at all that he did it but I wish I could get that under control.
  9. Yes I was dx'd with MDD first. And getting to the Bipolar II was difficult because of the overlapping symptoms with my ADHD. It took almost 6 years of continuous psychiatric monitoring + a new pdoc + a very distinct mixed episode to get my diagnosis.
  10. I do have to say I personally found Strattera useless and woefully inadequate. But you might suggest that first, just to show that you're willing to exhaust other avenues first. You really need to focus on specific ways your ADHD impacts your life. That helped me personally when I asked to be put back on a stim (pdocs have become very hesitant in this area to rx stims to adults). And then if you are put on one please be very self aware. If you're taking an extra one here or there, or if you feel an urge to, you will want to evaluate the benefits vs the risk of becoming addicted when you're taking extra or want to. That's my best advice. Good luck
  11. My sister has severe ADHD. Years ago she developed a problem with her stimulant meds where she would take WAY too many, and then she would steal mine if I didn't keep the bottle with me at all times. I ended up having to commit her for substance abuse problems. At the hospital, the pdoc monitored her and when she was released to the treatment facility guess what rx she had-- Vyvanse. Because he had seen how "ADHD" she was and I guess he knew she really needed the med. I was livid, but now I understand that she needed to have the symptoms under control to really even function. So I'd say it really depends on how badly you need the meds. It's good stimulants weren't what you abused, but pdocs are hesitant to give people with drug history any controlled substance. Obviously there's a chance, and every pdoc is different.
  12. I was really thirsty on it. And it's not really a side effect but having to go without Ibuprofen was tough. A positive side effect was that I stopped biting my nails (after 25 years of being a serious nail-biter). once I went off lithium I went right back to biting them. I don't understand that to this day.
  13. I'm late, but Regis, I didn't have that problem on Zolpidem but my sister did. She would text people, email people, almost like she was drunk, then have no memory in the morning. I've heard of people being in an almost sleep-walking state. So definitely try to lie down within 15 minutes of taking it. If it's having that much of an effect on you it's bound to help you sleep. But don't worry because in some people that type of reaction is quite common. Be careful because people have even gone on drives while taking it and that sometimes didn't end well, take it within 15 minutes of when you plan to actually get in bed. Good luck
  14. Thank you for your responses! I'll read the link. I hadn't thought of gabapentin but I've heard of it before, just was never sure how it was effective for mental health. I'm on Cymbalta already. Definitely can check out a chiropractor too. I went to one as a teenager but the only time it wasn't helpful was when I went in (very rarely) without pain; I'd usually come out with pain. Thanks again If anyone has gabapentin or Lyrica stories please feel free to share.
  15. I received a fibromyalgia diagnosis a year ago. I'm not sure why, but my doctor hasn't prescribed me anything for it. I've heard a lot about Lyrica; can anyone share their experiences with it? Where I'm at opiate abuse is crazy high and most doctors won't prescribe it. I'm OK with that, I suppose, mostly because all of my immediate family (dad, mom, two brothers) as well as a half sister all have opiate addictions. My parents and one of my brothers have actual pain issues but they take it too far. I admit once or twice to asking my brother for help when I've been in particularly excruciating pain, but unless they're really the only things that help I feel OK trying to to steer clear. Are there other options besides Lyrica? Physical therapy scares me; I've tried it in the past for other issues and it's caused so much pain and seemed to aggravate the issues I was having. Thank you
  16. UPDATE: I got through the episode without having to call my pdoc. I'm fairly proud of myself. Sometimes in that state of mind I make bad decisions and I can say I didn't this time. I was aware of what was going on and I think for the first time in a long time I fought any urges I had to make those decisions (in the past it's been things like impulsive stealing for example). I'll take cleaning over risky behavior anytime, and hey for once it accomplished something. But my body didn't like it, so at my next appointment I think I'm going to discuss a different antipsychotic. At the place I go to, they believe for some reason that Abilify and my Ritalin LA interact, so won't raise my Abilify past 10 mg. I was on 25 or 35 mg in the past and that helped but this 10 mg thing doesn't. Now I'm at that sort of apathy stage that I feel could slip into depression but again, being aware of it is helping me. I'm working on genealogy and I find that to be a very good distraction from getting too caught up in how I feel. I'm not as interested in things that I usually am, but the distraction keeps me from thinking about it too much. I'm really really trying to control my urges on both sides. Of course I couldn't do it without my meds, but I feel like definitely this go around was milder than my other experiences the last couple of years. I can feel the depression creeping in and that's going to be more difficult to control and it's been awhile since I have felt like this so I'll call my pdoc. I know it sounds contradictory (if that's the right word) to not call when I was hypomanic, but my "rebound" depression can be a b*tch. and I don't want to risk that. I have too many responsibilities and I can't go to the psych ward.
  17. I've been doing a lot of cleaning, but because of my physical problems I'm now in a lot of pain especially my knees and lower back. And still barely sleeping. This was the second morning in a row that I woke up at 4:30 am, after going to sleep at 11pm the night before last and close to 2 last night. So I am getting some sleep, and even dozing off during the day inbetween bouts of energy. At this point though I'm not having any destructive behaviors and I really guess I don't mind that I'm more motivated to clean, so I don't know that I need to contact my pdoc as of yet. In my most recent episodes (the last being 8 months ago) I've made some bad decisions but this time it's not like that.
  18. Thank you everyone. I've been on Risperdal and Zyprexa before; Risperdal gave me the lactation issue and I was sleeping all the time on Zyprexa. And yes I took find it interesting about the "canceling out" thing. I once saw a pdoc who felt the same way but he was pretty old and I figured maybe he just wasn't up to date. But this is a big clinic that I go to know, based at a a University hospital. I was on both for several years and didn't see that happen. But maybe they're just trying to be conservative with how many scheduled meds someone is on. I might ask about Neurontin, that's one I've never tried. We'll see what he thinks that interacts with haha.
  19. I have a fibromyalgia diagnosis, but I think most of my pain is from: Being overweight and progressive C5 degenerative disc disease which I was diagnosed with two weeks ago following an MRI of my Neck. I've had neck pain since I was 12 years old. I've lived on Ibuprofen for the most part since then. Tylenol doesn't touch the pain. Lately I've been on Baclofen along with the Ibuprofen, after trying a couple other anti-inflammatory meds and finding that nothing works as well as ibuprofen. Anyway my neurologist wants me to get shots in my neck at the pain clinic and possibly have surgery which scares me. He said it won't take away my pain but will prevent nerve damage. I want the pain to be taken away The only good news is I've lately been able to sleep through the night because I got a contour? sleep pillow. It took a few days for it to start helping but it's definitely been good. I used to have to get up after about 4 hours of sleep then sleep on the loveseat propped half way up. Does anyone else have this condition (progressive degenerative disc disease)? Any other treatments that have been helpful? I'm worried how the Ibuprofen could damage my stomach but I've lived on it for most of the last 28 years. But if there are any other anti-inflammatories that have been effective with people, I'm open to suggestions. Does anyone have experience with Relafin (sp)? I might ask about that.
  20. I'm no longer on Benzos because my pdoc is among the pdocs who believes that Benzos and stimulants "cancel each other out". I need suggestions on alternative anxiety medications to Benzos. I was going through a tough time for about a year mostly in 2012 and I think I tried everything under the sun, but I am open to giving things a try. I tried: Buspar, Vistaril, Seroquel, Propranolol, and probably a few others I'm forgetting. Anyone have suggestions or personal experiences? My current psych meds are listed in my sig. I am supposed to be on 5 mg of Abilify but at the lower dose don't feel it does much, and my pdoc is also among the pdocs who believes that Abilify and stimulants "cancel each other out". Thanks for any suggestions and personal experiences. I was on Thorazine for awhile for anxiety which was helpful but started having side effects so had to go off it.
  21. I started this thread almost 2.5 years ago, so amazed to see it still going. My cocktail has changed since then so I thought I'd give an update: Cymbalta 60 mg - Depression, Fibromyalgia Lamictal 200 mg - Bipolar II Rozerem 8 mg - Sleep Ritalin LA 30 mg - ADHD Verapamil & Maxalt - Migraines Ibuprofen & Baclofen - Progressive Degenerative Disc Disease Vitamin D3 supplement - Vitamin D Deficiency
  22. I'm pretty sure I'm hypomanic at the moment. It's been awhile since this happened, and in the past it presented differently. But today I could barely sit still, I woke up after little sleep all amped up, talking a mile a minute, can't sleep tonight, thoughts racing. I don't even remember how to handle this type of episode. I'm on my meds but I feel like I can't handle this very well. Very anxious, it's almost like how I felt when I had akathesia with Geodon, in terms of physically not being able to sit without feeling extremely uncomfortable. Any advice?? I'm off benzos at the moment. My sleep meds don't work during times like this. I have extreme sleep issues anyway, so this on top of it makes it nearly impossible to sleep. Thanks
  23. The med change was due to a change of psychiatrist. My psychiatrist of 5 years left the clinic and the remaining doctors are taking all adults off stimulants. I've been on stimulants (either RItalin or Adderall) for 7 years altogether. The new PDOC (she's not even a real doctor, she's an ARNP or whatever they're called) said that because 1 doctor who treated me in the hospital said i have some sort of schizoid issue (which I've never ever heard any other pdoc i've seen, including in the other hospital) she was taking me off Adderall. The other changed was to my sleep medication. I had been on 20 mg of Ambien, which was higher than I guess people normally are on but it worked at 20 but not at 10. Thus between no getting enough sleep and not have my Adderall so I'd pay attention, I drove my car over a median and destroyed it. I don't know what happened, I was distracted or I fell asleep. Either way it really scary. I checked myself into a hospital Tuesday. They told me I'd have a doctor who I've heard has a great reputation. The next morning, they said in fact I'd have an ARNP. I got upset with them, because when I me with her all she did was saying something about raising my Abilify... When I told her my sleep was the issue. She didn't have any ideas at all. So I told the nurse, nurse manager, I called the patient advocate and told them I wanted an actual doctor who knows how to treat treatment resistant insomnia.I hadn't slept but 3.5 hours in 2 days so I was very irate. Anyway, i told them if they weren't going to help me with my sleep issues, I wanted to check myself out. I had not that day said anything about being suicidal, I just told my nurse why I came in the day before. They were going to discharge me but asked if I'd talk to a doctor who practices at the hospital. He spent a lot of time with me and I told him the only things that have helped for my insomnia were the Ambien at 20 mg and thorazine at 250 mg. (I didn't know until my conversation with him that Ambien is addictive. I loved my old pdoc but I'm not sure he knew what he was doing sometimes) Anyway, his idea what to give me Thioridazine which is apparently in the same class as Thorazine. I'll tell you I slept, boy did I sleep, 6pm-3:30pm. And I'm still groggy. They said I should take it three times a day but after the 6pm dose I was OUT. So I'll have to just do the one at night; which is good all the same bc if my ARNP doesn't keep prescribing it I can still take it (For some reason the people at the clinic I go to don't respect or follow med changes made by hospital pdocs. That's why I wanted the original doc with the good reputation, because he also works at the clinic). Come oct 12 I'll have a new doctor from a hospital. So I just have to get by for 3 more months. And hope the Thioridazine just once at night doesn't put me out for 15 hours. (It could have been my body needing sleep, 3.5 hours in two days is not good) Thanks.
  24. I feel like this board has died down so much. Did another replace it? Do people interact elsewhere besides message boards? I've been away and come back a few times and it's not anything like it was. But I'm still going to post and hope someone sees and can help me. I've been doing pretty well lately. I had an episode with severe pain in May that was unexplained and I was given the garbage bin Fibromyalgia dx which I really do not believe I have. Other than, I'd say for the most part i've been stable for over 2 years. Considering between March 2011 and February 2013, I was hospitalized 12 times - spending over 88 days in the hospital (10 in a state institution) most of them in 2012 -- and have not been hospitalized since the beginning of February 2013-- pretty well all things considered. March 2011 was my first ever hospitalization. February 2009 at age 33 was the first time I ever seriously considered suicide. I was always a lonely person, alternating from isolation to wanting to be with friends all the time, but knowing something was wrong with me. I've had so many dx's. I tend to believe Bipolar 2 is a very real one. The only dx I got from a psychologist interview was ADHD. Clearly I have anxiety. Anyway... I've been doing good. I take care of my sister, who is 25 but has some mental disabilities that make it difficult for her, and I help take care of her 7 year old son. I pretty much do all the taking care of him. She works full time and pays the bills, but money for food and other necessities is always an issue. Normally I can deal with that. I had a med change in April and since then things haven't been so good. But the last week has been truly awful. I don't know what's wrong with me. I feel overwhelmed suddenly by things I've been responsible for for a year and a half now. Things I can normally do without issue. There is actually so much more I could do than I am doing now. But I have had very low tolerance lately, I feel so depressed. I feel like I'm being crushed under the weight of this responsibility that usually comes so easily to me. I'm angry. I lash out at people. I snap at my little nephew. I hate myself for it. And I don' t know why I'm doing it. I think about leaving, knowing that when I'm alone I'm most at risk because I have no purpose. Knowing that without me my sister and her son would be in a very bad position. But feeling like I can't do this suddenly. And I can't walk away and then see them suffer and live with myself. I might as well be gone. I don't understand why this is happening. Nothing triggered it. I just suddenly started feeling like I can't do things that I always do. I'm mad at everyone. For no good reason. I'm so sad. I don't get dressed most days. And when I do it's just to go to the store to get food. I'm not taking care of myself. Sometimes I feel like walking the two blocks to the railroad tracks at night when the trains come. I don't want to hurt anymore, or be so selfish that I'd abandon my nephew and sister who need me because I can't do things that normal people would have no problem doing. I try to occupy myself with other interests but I'm not watching shows like I usually do. I have a concert coming up in august that I've waited two years for and I Don't even think I want to go. I just want to cease to exist. And I don't know why. I've had sleeping problems, and not sleeping 8.5-9.5 hours a night can make it hard for me to function. But I know in the last couple of years I've gone through times where it's been difficult to get that amount of sleep and I've not felt this way. Just like the stress at home, I feel the lack of sleep is simply aggravating the depression rather than causing it. But I don't know how to fix it. Every day my thoughts get more and more morbid. And i don't know WHY
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