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Butterflykisses

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  1. Could you increase your clozapine? Sorry if you already mentioned that.
  2. I only get sedation when I take my bedtime dose. I take 25mg in the morning and 300mg at night. The bedtime dose will put me to sleep within 1-2 hours. I don't really have day time sedation, surprisingly. I have had a large weight gain from it, and it is HARD to lose the weight. But, when weighing the pros and cons, clozapine's benefits will keep me on it. I have tried everything as well, it stinks. I think the med closest to it is Zyprexa...? Not to sure but that would be my second choice, if God forbid I had to get off of Clozapine.
  3. I don't know what I would do without Clozapine. All the blood work, REMS, frequent pdoc appointments, its all worth it.
  4. My processing abilities, working memory, fine motor, and recall abilities are considered "severe impairment", to the point I can come across "out of it" or "slow" or "space cadet". I was diagnosed with this at childhood during neuropsychological exam before psych meds and with psych meds they are MUCH worse. Like I said, Disabling.
  5. Vraylar was AWFUL for me. I went a week without sleeping, it made me have a stiff neck...I was a mess physically and psychologically.
  6. This may be out of the question, but perhaps you could replace zyprexa, Benzo, fanapt with clozapine? Sorry if thats a bad suggestion, just thought I would throw that out there.
  7. Prozac worked for about a year then it stopped, so I transitioned onto Paxil and I have been on the max dose for almost 2 years, it helps a little. Ativan helps to lessen my anxiety, which in turn helps my compulsions. OCD is really hard to treat in my opinion. I even did PHP and IOP which was very CBT based and though it helped a little OCD is still there.
  8. I was on 6mg of Invega for about 3 months after being on clozapine for 2 years. It definitely helped with mood and psychosis, but not enough as I was still having symptoms and insomnia, so I got back on clozapine, my tried and true antipsychotic. I found Invega to be stimulating too, and I tend to regress on any med that is stimulating.
  9. I love dunkin. I typically get a medium caramel iced coffee with extra cream and sugar. I haven't tried any lattes but have heard good things.
  10. When I was with my old pdoc I called often. Mostly because I was off the charts psychotic. She never controlled my symptoms right, and also, during that time I was in school and under a lot of stress. She would call me back, either by the end of the work day, or if it was after hours she would call within an hour or so. So she was pretty good about it. With my current pdoc of 3 years, I have only called once regarding symptoms, and was called promptly (within an hour). I have spoken to her secretary multiple times regarding my blood work being sent to pharmacy (re: clozapine).
  11. I really don't like it. I find is awkward. Then I get anxiety its not going to connect right. I am looking forward to going back to in-person appointments.
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