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  1. It could be many things.. Blood pressure, blood sugar, syncope; just to name a few All can cause one to feel faint, dizzy, dissociative, and pass out, and even seize (if they are so hell bent on it being a seizure). Did anymore see it happen, or just the paramedics say that when they got there? The doctor will be able to sift through the details and your tests (or whatever he or she decides to do) and give you better concrete and more comforting answers. I hope you are doing better, and have not had any more episodes!
  2. I am very excited to hear this myself, and am looking into employment there in the future while attending school. I was actually told to either take my piercings out (lip, eyebrow) and cover my tattoos or I would be fired; AFTER policy was CHANGED. Meaning that I was hired with all my differences. I was quite upset, especially because I had no choice. The piercings were taken out and the tattoos were covered. Unfortunately I am a fast healer, and my lip piercing was healed after the 9.5 hour shift. Over 100$ in piercing and accessories in the garbage, as well as a piece of my identity & pride down the drain, all for 7.25$ an hour. I am pierced and tattooed not to purposefully look different or to even stand out, but because I love the art and when I put the art on my body it becomes a part of me. When I am unable to have that, I lose a little bit of my own identity.
  3. My cousin is a great Obamacare supporter, and was ecstatic to sign up. She recently found out it would not cover her diabetes medication she has taken (and has kept her stable) for over 9 years, and it would be around an extra $500 a month to stay on it. She is not as ecstatic, to say the least. I am wondering about my own circumstances, and how that will play out with my own medications
  4. My experience with electronics has to do photosensitivity, and is the greatest triggers for my seizures (second being little sleep & stress). Basically meaning moving lights & patterns trigger the electrical activity in my brain (to put it simply, but more info on the interwebs). And it tends to occur when I'm watching a program (on a television, in a theatre, or a projector in a classroom), riding in the car and seeing the sun through the trees, or watching patterns move on the computer, phone, tablet (or even paper!). But in a more specific example: I start to feel woozy, and I tend to become confused & disoriented, I often get jamais vu (most common) or deja vu (less common). I often get a funny taste in my mouth, and start to smell burnt plastic or rubber. I get the feelings of pins and needles, and at times I feel like my extremities are either vibrating, or unattached. Sometimes (but not always) I get jerky movements of my arms, hands, legs or fingers. Also my entire Autonomic System goes completely out of whack, and causes me a lot of discomfort (my heart pounds, my head feels fuzzy, my chest gets tight, my stomach gets uneasy). These are categorized by my neurologist as Simple Partial Seizures, or Auras if you will. When I black out (semi), start walking around and smacking my lips and have no clue I am doing it, it is then categorized as a Complex Partial Seizure. I hope that helps. Seizures for every person can be experienced differently, but it still helps to hear others experiences because sometimes they can be relatable. But whether what occurs are seizures are not, I am glad to hear you are going to see a different neurologist. Everyone deserves to be taken seriously, and to be treated correctly. No matter what their history (or current crazy medication regimen) is.
  5. OR have you ever had the idea of trying to exhaust your thoughts (as in, think until you run out of thoughts) so it stops the "thinking cycle"? It sounds GREAT in theory. But yeah, uh...no. Also my MIL always tells me to "just close your eyes, breathe, and relax" and at that point in time I want to punch her in the face. TBH after trying several sleep-aids including OTC & prescription (everything from Trazadone to Ambien to Seroquel), and nothing worked.... I, myself, had over a year long battle of getting off all BP, depression & anxiety meds to "start my body fresh" after a bad chemical dependence on an AAP & Benzo (per pdocs advice and under doctor supervision). My personal battle is that I had to find out why exactly my sleep fucking sucked, and what my body & brain needed to fix it. However do understand, in retrospect, I did not have just insomnia. I would have insomnia strikes and then go on sleep binges. My sleep was royally fucked up.
  6. Wow! 60% really?? I believe it, but yet its hard to empathize because the majority of my migraines come with pain and aura. And without medication, I have a migraine on average 3-6 x a week. So when I think migraine I think pain. Thanks for asking I should have updated when I had the EEG done. I did have the EEG done, and it came back normal. Neuro said he had no explanation for it because it only happened those 2 times last December. And that was about it. He does ask if I'd had the smells every time I see him (about once a month) so I know it is in the back of his mind, but there was nothing done after the EEG because it was normal. It's good to hear the EEG came back normal! Well on the one hand. On the other, it makes you still wonder what it could be???
  7. I understand the issue with the lights & colors, I also have that with computer screens, televisions, phones, tablets, and other electronics along with projectors. However I am not understanding what you mean by 'slight convulsions in your neck and chest'? What do you classify as a convulsion?? I agree a great deal with O's comments about having an understanding with your psychiatrist; and let him know that you are worried about seizures. That way he can stay away from medications that lower the seizure threshold, and try to prescribe medications than can help when treating other issues. But my own personal advice is that if you are still concerned about seizures, then to see a (different) neurologist for a second opinion. The thing about EEG's is that it is not a tool used to confirm or deny the diagnosis of Epilepsy, but rather when it catches seizure activity to identity what part of the brain it is coming from. Also if you feel that you were mistaken because of your previous history, that is more than enough cause to ask for a second opinion.
  8. Sometimes, when watching movies I have to "take breaks" because of intense parts. It also happens while on the internet reading articles, and stories, and such. Most (if not all) of he time it is in conjunction when I relate to it, especially with MI & past trauma.
  9. I had the quote issue when I updated to the new Explorer. Something with IE11 I believe.
  10. Have you ever gotten up for work, showered/washed hair, put your make-up on, started to put mousse in your hair and instead rubbed it all over your face? Some days I think I belong in a nursing home where someone can take care of me.

    1. upset.the.world


      I nearly put chapstick under my arm instead of deodorant the other day. Does that count?

  11. Many of today's studies on gut issues are coming up with mind-cut connections; ranging from Celiac, to Crohn's, to Colitis, to IBS. As well there is an inquisition on the matter of the gut containing a large portion of our immune system & balances (as well as our immune deficits). Makes you think twice about what food you put in your body. Say, what?? I have never heard of such a thing! For some odd reason it brought to mind of new mothers eating their placenta to balance out their body after birth. I can't say I am surprised to hear it has been thought of and being practiced, however. I myself am gluten & lactose intolerant, with a immunodeficiency (as well as brain issues, go figure) so I can understand why people would try anything to get better.
  12. What. The. Fuck. Really??? In what medical book, exam, experiment, or lecture, did ophthalmologists (or any specialist) learn that anxiety & depression cause direct vision problems (or severe joint pain? or severe fatigue?) to the point it should not be treated by medical professionals? I had an ophthalmologist during a routine eye exam give me a lecture because I explained how I thought I had astigmatism. He became agitated, gave me a brochure on astigmatism and said "read this outloud". So I did. And he said, "what does that mean?!". And I said "It means exactly what I explained". He then got this dumbfounded look on his face and mumbled, "yes it is. Because you have astigmatism". WTF? Who else knows my experience better than me? A doctor, just because I have anxiety and depression? Fuck you doc, sit down.
  13. Exactly. The term "high functioning" is greatly misinterpreted with neurotypicals, including professionals. People make the mistake in comparing high functioning autistics to people not on the spectrum because we can function relatively normally, instead of comparing to people on the lower end of the spectrum. FWIW Gearhead, I bolded that because I relate to it immensely. I can not read analog clocks, I have trouble with visual-spatial problems and numbers, and when it comes to time...I can not differentiate time much at all. For me, there is little difference between 2 days and 7 days, as well as 2 weeks and 6 weeks, as well as 3 months, 6 months, and 2 years. But yet, I am married and work full time. I am able to make my own appointments and take my own medication. So even though I am unable to complete certain tasks on my own, or hold down certain jobs, I am considered "high functioning" because I can perform everyday tasks at hand at a satisfactory level. Key word here: satisfactory.
  14. I despise this. Especially when I have to get a referral for each specialist I see, it takes weeks to get an appointment to see such specialist, and then I have to travel an hour into the city to get to that appointment. Just to be humored & turned around, and then later told by my psychiatrist why that specialist was wrong and how I "should see (specialist)...". It's ridiculous.
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