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ACC_gal

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About ACC_gal

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    Member

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  • Yahoo
    urban_explorergirl@yahoo.com

Profile Information

  • Location
    mn
  • Interests
    computers,nature,gardening,art,painting,research,educating others about ACC/SOD, helping others,music,web design. cars,trains, tractors, old gas engines,antiques,mechanical things and fixing them, giving advise.

Recent Profile Visitors

1,354 profile views
  1. I was born with ACC ( agenesis of corpus callosum, or NO corpus callosum) so I chose ACC gal. I also run a forum called ACC Connections for other ACCers.. were more common then doctors once thought.
  2. My Therapist believes I have something called Complex PTSD due to having so many traumas during my lifetime.. each one makes me even more bitter
  3. <<<<<<<TRIGGER WARNING>>>>>>>>>Last friday ( Nov 14th) the house right next to mine burned down, nearly costing me my own house,pets and belongiings I was sittting on the couch doing my word finds which i ussually do to unwind when I heard this very loud BANG! that shook my house, saw smoke and heard my neighbor yelling GET OUT! YOU HAVE TO GET OUT!!! NOW! I saw flames shooting out of the windows and door of the house close to mine ( which was 10 feet away) and All I could think of was if I am gonna loose it all F**** it and let ME burn up too then. Then nighbors had been using like 7 space heaters at once becuz they refused to pay the gas bill ( using their money for not so great things but you know...). So they overloaded the fuses in the 100+ house. All I recall is myself being DRAGGED out of my own home by a cop becuz i was refusing to leave.. I wanted to just be left the F alone. I can't recall every specific detail and it still makes me very angry to discuss it so I will just post about my recent personality changes. I have become very hateful, Mistrusting and not wanting anyone near me lately. yet at the same time EVERYTHING scares me... even the broken windows my house has. I actually HATE my home now. being here makes me vomit. All i can see outside is the burned debris of what once was the nieghbors house ( never mind the fact these were not good people. I used to babysit their kid). This person turned on me and MY family and even blamed us for the fire. Then she lately emailed me and said " since I lost everything, your house should be next". I did contact the police and filed an order for protection but now i dont know who I can trust anymore.. people come up to me and my family and sneer at us or treat us like scum. it's hard to have sympathy for someone who caused their own plight and were chronic lawbreakers. I feel for their kids but I can't find any pity for the adults since the fire was their fault and they endangered others as well. All I feel is HATE and wanting to smash someone in the face. SURE things COULD have been worse for my family... but the trauma is there and I no longer feel secure.. like ANYTHING could ignite my home. I am also tired of others telling us " well you guys didn't loose anything.. you only have some damage to your home". I have gotten to the point where if someone comes up to me and mentions the fire.. asks questions. I snap and say LEAVE ME THE F ALONE! the other day some woman came up to my mother and handed her a 20$ bill and I snapped and told her I didn't need her pity. We still have to see the debris outside.. plus freeze becuz of busted windows. The broken windows themselves are a major trigger for me since I have a phobia of broken/crakced windows stemming from a childhood trauma. WHEN WILL THE TRUAMAS END?????
  4. or maybe we can just type in a specific animal we want to be? for me it's be a turtle or tortoise.
  5. I will never understand WHY people don't use logic. Like my nieghbors who COULD have prevented their house burning down ( and damaging MINE in the process GGRRR) by PAYING their gas bill and not using 7 space heaters which overloaded the fuses and caused the fire. So you CAN'T afford gas but you CAN afford a huge electric bill and having to replace all your things??? yea that makes alot of sense. Sorry but I couldn't agree MORE.... The thermostat was invented for a reason. SO was common sense.
  6. I'm dealing with this issue myself right now Mom always wants me to fight HER battles for her.. brother always needs this or that or wants money.. eats all our food but I better not touch his! ( besides healing from a recent pelvic surgery they all expect me NOT to have needs of my own) it gets tiring when everyone else has to come first and your needs are not met. it also sparks alot of anger. Sometimes you just have to put your foot down and say NO and think of your needs first. Afterall you're a person too and count.
  7. Hi velvet Elvis... I actually got addicted to Ultram becuase of my OCD.. The ultram made me "high" all the time and very compulsive.. I found it more addicting then any of the opiates. ALso wach out if they give you Lomotil( Diphenoxylate/atropine.. it's an antidiarheal but can cause a " high" in some folks with MI) The withdrawals from the Ultram/tramadol were so severe I had to go to the ER and get a sedative.. HORRIBLE symptoms.. Like seizures,hot/cold flashes,severe diarhea,muscle cramps,severe depression.. PLEASE , PLEASE AVOID! My docs will even admit tramadol/ultram SHOULD be classed narcotic. Ketorolac works good ( brand name TORADOL but not tramadol.. it's a very strong anti inflamatory but has always worked for me.. even after surgery). I hope I caught you in time.. I would hate for someone else to go through the HELL I went through with that pill
  8. Hi velvet Elvis... I actually got addicted to Ultram becuase of my OCD.. The ultram made me "high" all the time and very compulsive.. I found it more addicting then any of the opiates. ALso wach out if they give you Lomotil( Diphenoxylate/atropine.. it's an antidiarheal but can cause a " high" in some folks with MI) The withdrawals from the Ultram/tramadol were so severe I had to go to the ER and get a sedative.. HORRIBLE symptoms.. Like seizures,hot/cold flashes,severe diarhea,muscle cramps,severe depression.. PLEASE , PLEASE AVOID! My docs will even admit tramadol/ultram SHOULD be classed narcotic. Ketorolac works good ( brand name TORADOL but not tramadol.. it's a very strong anti inflamatory but has always worked for me.. even after surgery). I hope I caught you in time.. I would hate for someone else to go through the HELL I went through with that pill
  9. Glad to know I am not the only person with this crap... soo sick of repeated LPs ( to reduce the pressure,relieve my hedaches and save my vision). After skipped a few treatments.. I wound up in the ER with such a massive headache and dizzyness I couldn't keep anything down. I was drained and put on a massive course of prednisone to control my symptoms.. FYI psudotumor dont always show on a CT scan.. the only sure way to diagnose is by measuring the opening pressure during an LP. Unfortunately, I am now also suffering depression becuase of this condition.
  10. it makes me seriously wonder WHAT a doctor is thinking when they do things like this! how shameful! ANd this is not limited to Just mental health professionals either. I am dealing with a pretty uncaring sadistic doctor right now who will soon be reported to the board.
  11. ACC = agenesis of corpus callosum.. I am missing that part of my brain. I also have septo optic dysplasia, a chiari and dystonia. a neurologists DREAM
  12. agenesis of the corpus callosum can REaLLY make you feel like crap.. or at least a weirdo I don't seem to fit in anywhere and am often laughed at for saying some weird and randon things. The corpus callosum is a structure in the brain that connects and allows the right and left halves to communicate. so missing it makes life a bit interesting to say the least! if any one else here has ACC plz contact me.. I feel so out of place.
  13. yea I can get very paranoid just before a seizure, then I get a bit shaky,dizzy and light headed and sometimes start Yawning.. when these things happen I know I better find a place to lie down and let it pass.. I suffer from absence seizures due to my ACC and septo optic dysplasia. there worse if I don't get enough sleep or stressed out.
  14. First off I have to say KUDOS to the mods for this site.. their attitude is much like that of my own.. not afraid to speaik their minds. I am a 38 yr old woman with ACC ( in case your wondering.. WHAT THE HELL IS ACC?) it's aganesis of the corpus callosum.. I am split brainded so to speak. I also have septo optic dysplasia( send me a PM if you wanna know about it plz), severe OCD, An anger disorder, and PTSD as a wesult of repeated traumas. I am blind in my right eye.. no optic nerve. Sometimes I say or do stupid shit and don't realize it. Corrrect me if I do. I like that this site is not so uptight and OH LETS NOT TRIGGER SO AND SO.. I had too much of the happy joy joy thing and cyber hugs on other sites. Sometimes I am not well liked becuz I do speak my mind.. But I try NOT to offend someone unless they attack me first. feel free to ask me questions about my disorders or other things ( within reason of course).
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