Jump to content


  • Content Count

  • Joined

  • Last visited


About Sunshine

  • Rank

Contact Methods

  • Website URL
  • ICQ

Profile Information

  • Gender
  • Location
    Midwest, USA
  • Interests
    Previous crazy meds that worked: Cymbalta, Provigil, Prozac, Remeron, Strattera (effectiveness debatable), Wellbutrin, Zoloft.
    Previous crazy meds that didn't work: Chloral Hydrate, Gabitril, Lunesta, Midrin, Trazodone, and Zyprexa.
    Previous migraine meds that worked: Imitrex (nothing's better for my migraines, but my heart doesn't like it).
    Previous migraine meds that didn't work as good as Imitrex: Axert, Frova, Maxalt, Relpax.
    I've also had brief affairs with Celexa, Lexapro, and Serafem.

Recent Profile Visitors

1,491 profile views
  1. I took Danazol for several years for severe PMDD and menstrual migraine with relatively good success. It's an old-school drug for endometriosis and suppresses menstruation if taken continuously. He originally had me taking it like birth control - 25 days on and 5 off (it builds up or something), but the 5 days off resulted in severe migraine. I switched to every other day (I think 200 mg, which is a very small dose). I was able to take that continuous for several years. It does not induce chemical menopause at that dose. 6 months ago I finally got up the nerve to ask my OB/GYN about a hysterectomy (mainly removal of the ovaries). I never thought she would consider it purely on the basis of PMDD, but she did. I did a 6 month trial of Lupron-Depot (monthly injections) - another treatment for endometriosis that DOES induce chemical (but reversible) menopause. Mood-wise, I never felt better, but was getting migraines every 2-3 days. A very low dose of estrogen add-back corrected that and I had a total hysterectomy yesterday. Keeping my fingers crossed that this will solve a LOT of problems! I'm 43 and didn't want more children - obviously that's a factor for someone younger.
  2. As of today, Medco (online pharmacy) had brand Adderall (immediate release) in 10 mg (out of other doses). They told me they would fill with brand even if my script wasn't written "Dispense as Written" (though I assume the higher co-pay I have for brand would have applied). Also, if you are in southeast Michigan, the CVS in Rochester Hills (Adams and Walton) has generic in 10 mg (I didn't ask about other doses or brand).
  3. It's been a while since this original post, but thought I'd add that I spent a couple of years going down this road and finally settled on Danazol. Your doctor may go "Huh?" if you mention it - it's pretty old-school (formerly used to treat uterine bleeding). It has completly stabilized my mood. No menstrual cycle. I had hoped it would help with the migraine, but alas, no luck on that front. I've been on it a little over a year. Just got a second opinion about the treatment from another doctor. 200 mg every other day with 100 mg of Aldactone to keep me from turning into a man.
  4. I do not work in healthcare, but due to the nature of my job, I probably know as much about H1N1 as most general practioners. I sometimes don't realize that not everyone has read and researched as much as I have. I thought I'd share some of what I've learned since April 24. Thimerosal Thimerosal is a preservative that contains trace amounts of mercury. It is used in muti-dose vials of vaccines - bottles that contain more than one dose. Even a sterile needle can pick up trace amounts of bacteria from the time it is removed from the package and inserted in the bottle. Without the preservative, that bacteria could grow and contaminate subsequent doses. Thimerosal has been eliminated from most routine childhood vaccines - not because it is actually harmful, but because so many people believed it's harmful that they stopped immunizing their kids. The nasal mist version of both seasonal and H1N1 vaccine do NOT contain thimerosal. Single-use vials of H1N1 vaccine do NOT contain thimerosal (more likely to find these at a pediatrician's office). FWIW, the seasonal vaccine I received this year contained thimerosal and I'm still alive and well. I would have no problem giving my child a vaccine that contained thimerosal. Gullain Barre Syndrome (GBS) GBS is caused by an immune response to foreign antigens (such as infectious agents) that are mistargeted at host nerve tissues instead. The odds of getting GBS as the result of influenza are 1 in 10,000. 33% of the U.S. population contract influenza every year. Since a vaccine triggers an immune response, theoretically it could trigger GBS, though this has never been proven - even after the H1N1 vaccination program in the 1970s. Even if the flu vaccine causes GBS, the odds are 1 in 1-2 million. Seasonal flu vs H1N1 vs Common cold There is a ton of misinformation circulating about the difference between H1N1 and seasonal flu. The symptoms are identical. Even a doctor cannot tell the difference based on a physical examination. Only a laboratory test (not a rapid test that can be performed in the doctor's office) can tell the difference between H1N1 and seasonal flu. The only possible difference is that nausea, vomitting, and diarrhea (uncommon with seasonal flu, especially adults) occurs in about 30% of H1N1 cases (mostly children). The onset of flu is sudden - usually 3-6 hours. A high fever and headache are classic symptoms. Fatigue and body aches are extreme. Cough is usually dry. Sneezing, congestion, and/or runny nose may be present, but these symptoms, especially if no fever is present, are classic symptoms of the common cold or other mild upper respiratory infection. With any type of flu, if your fever goes away and then comes back a day or two, immediately see your doctor or go to the emergency room as this is indication of a secondary infection and that's what usually causes complications and death. Otherwise, you can probably recover without medical care. H1N1 Severity As more and more data becomes availble, it's becoming clearer that H1N1 is no more severe than seasonal flu. It's starting to look like it's less severe. An average of 35,000 people die every year in the U.S. from seasonal flu. They are usually infants, the elderly, have underlying health conditions or are otherwise immune-compromised. This is largely the case with H1N1 (except that the elderly are generally not even contracting H1N1), though more people in non-risk groups have died than is normally seen with seasonal flu. Given that the majority of the population has no immunity to H1N1, it's likely that more than 33% of the population will end up getting it. So the overall number of deaths from flu will probably increase this year. But your individual odds of dying if you get H1N1 aren't any higher than if you get seasonal flu. H1N1 Transmission Only 8-12% of household members of those diagnosed with the flu (including H1N1) develop it themselves. It's not that contagious. Considering that while you probably spend as much time with your coworkers as your family, you probably don't wipe snot off their faces, pick up their used tissues, kiss them, or drink out of their glasses. In otherwords, if someone at work gets H1N1, there's no reason to freak out. Final thoughts There is SO much misinformation on the web. Please don't make decisions about your health or that of your children based on what you read on message boards (even this post!), YouTube, or even the mainstream media (remember that scare tactics and hype sell newspapers). If you don't trust the government, there are many other reliable sources of information. On a personal note, there's a pretty good chance I had H1N1 in August (I didn't go to the doctor at first, so I never got tested). I was on my ass in bed for three straight days and felt sick for a solid week. I got better for a couple of days and then developed bronchitis. When it was all said and done, I was sick for three full weeks. Availability of the vaccine in my area has been extremely limited, even to the high risk group, until last week. Even though the case rate has declined dramatically in our area over the last few weeks, flu season doesn't usually peak here until January or February, so they are expecting a third wave then. We're all our vaccinations on Monday (even me, because I could have just had a bad respiratory infection in August).
  5. This seems to be the most current topic on Vyvanse (in general). I'm surprised since it's still pretty new. Thought I'd add my two cents. Just switched to it after being on Adderall for 12 years (20 mg XR). Never been on anything else for ADD. Adderall seemed to be slightly losing its effectiveness, so pdoc has me trying this. I procrastinated for a while because when he first prescribed it, they didn't have all the different doses and he wanted me to start at 30 mg so I had to go through this complicated routine of dissolving the contents of a 70 mg capsule in 7 tablespoons of liquid and then taking 3 TB (he says you can pre-mix it and store it for at least a week). I've only been on it for a few days and the only major difference I've noticed is an even lower appetite than usual. In my case this is not desirable as I'm chronically (and sometimes dangerously) underweight. Hopefully that will improve. My pdoc said it doesn't kick in as fast/abruptly as Adderall, but I never noticed that with the Adderall. Overall it seems to be working at least as good as Adderall, possibly slightly better. No issues with sleep (insomnia is reasonably under control with medication). Am interested in hearing newer stories - especially from people who have been on it for a while. Thanks!
  6. I haven't been on the boards in a really long time (been doing very well) and I apologize for not searching first, but all I've got is my Blackberry for a few days. Anyway... I was wondering if anyone has ever heard of compulsive skin picking as a side effect of medication. I vaguely remember reading about it at one time or another here but Google isn't turning up much. I am 99% sure is not a body image/self-mutilization thing. I have zero history of either (and I'm 39). It could be stress, though I'm not currently under any more stress than usual. It started about a month ago about the same time as some med changes. I'm currently taking Adderall XR (20 mg), Xanax XR (1 mg), Remeron (8 mg), and Ambien (10 mg). That hasn't changed for a few years. What's new is Danazol - some kind of hormone that blocks estrogen production. It's an old-school drug that was used to treat uterine bleeding and endometriosis. I'm on it for PMDD and menstrual migraine - which it has all but cured. 200 mg every other day. Along with that I'm taking spironolactonate (sp?). It's a "water pill" to counter the andronic effects of the Danazol. Finally, I'm getting weekly injections of anabolic steroids - I had zero testosterone and was way out of range for DSH and "sex binding hormone." It's a combination of three different steroids. I don't know the exact ones at the moment. I'm not entirely sure this doctor isn't a quack yet (he's a ob/gyn). So... To make a short story long, I canNOT stop picking at my cuticles. It's driving me nuts. I bit my nails and cuticles when I was younger, but stopped completely when I was around 20. I can't think of any reason why I'm doing it now except that one of the new meds is causing it. Thoughts?
  7. I was investigating beta blockers as a migraine preventative, but when I mentioned it to my pdoc, he was emphatically against it as they can worsen or induce depression. But I have/had unipolar depression. Maybe it's not the same with bipolar, but something to at least ask about.
  8. I was once diagnosed as having asthma and tachycardia, but in retrospect, I think they were panic attacks. So for me, it was a tightness in the chest, felt like I couldn't get a full breath, and increased heart rate.
  9. I'd been a member here for about a year when Hurricane Katrina hit three years ago. There were a number of members who went through pure hell in the following weeks because pharmacies were closed, the roads to the pharmacies were blocked, their doctors were not available, and/or there was no mail delivery. I remember one member in particular who ran out of a benzo and sufferred terribly from withdrawal (including seizures) for several days. If evacuations are ordered and you leave the state, remember that pharmacies in other states might not be able to fill your prescriptions (unless your doctor happens to be licensed in the state to which you temporarily relocate). In the event of a severe storm, getting your meds, especially controlled ones like benzos, could be extremely difficult - perhaps impossible - for several days or possibily weeks. Unfortunately, despite the fact that mental illness can be as life threatening as any other illness/injury, emergency treatment will be difficult/impossible to find in the event of a catastrophe like Katrina - even if you have top-notch insurance and/or plenty of cash. If you live on the Gulf Coast, please, please, please make sure you have at least a couple week's worth of your prescriptions on hand. You've got two business days to contact your doctor to get new prescriptions, if necessary. Even if it's not time to refill them, I'm guessing most insurance companies and most pharmacies will cut you some slack (for most, but probably not all meds) if you tell them you have less than two weeks left and want to be prepared.
  10. I'm on my second Pargard and I really have no complaints. I didn't make my cycle irregular, but my periods were slightly heavier and longer than normal (I say "was" because in addition to the Paragard, I've been on BCPs for the last year or so and don't have periods at all anymore!).
  11. There must be some correlation between Vitamin D and depression (or at least speculation within the psychiatric community) because my pdoc is all over this. He was downright excited when my levels came back deficient (15 ng/dl) - said it was his first documented case (though I'm not sure how often he tests for such things as it was my first time and I've been seeing him for 10 years). The little bit of reading I've done on Vitamin D supplements is that absorption can be difficult. It's best to try to increase your levels through diet and sun exposure. I just started taking the supplements, though. It will be interesting to see what the next round of blood tests show.
  12. I read this article last week and my first thought was "Did the mother discreetly notify the flight attendant(s) of her son's condition before there was a situation? Seems to me that if you had a child who had a condition that could cause a disruption like this you'd be inclined to give people the head's up - I'm sure the attendant's would have at least attempted to respond differently had they known what was up. Not to offend anyone, but I imagine only a highly trained child development professional can diagnose autism - and even they usually need more than 2 minutes to do so.
  13. I can totally relate. But I'm not 100% convinced it's due to the ADD. It seems to be worse since I started taking Xanax a few years ago. And regular use of Ambien is certainly not happening. In your case, I'd be inclined to blame it on the Topamax or the Ativan. But it certainly could be a symptom of ADD.
  14. I haven't tried it yet, but my pdoc suggested it last time I saw him (it's expensive!). He's into a lot of the "natural" remedies (in addition to traditional treatment). The level of depression I'm experiencing now is barely perceptible and most likely due to birth control pills. No where near bad enough for me to consider antidepressants. I may give it a try, but I've got a handful of supplements, etc. he wants me to add and I prefer to add things one (even supplements) at a time so I can pinpoint effectiveness and causes of side effects.
  15. Clear case of "your mileage may vary." While I don't disagree in the least that Ambien can trigger depression (as can other meds, like benzos), that does not appear to be the case for me. Before my last bout of depression (started about 5 years ago and lasted 2-3 years), I'd been on Ambien on and off with no apparent affect on my mood. I've been on it non-stop since the last episode of depression. While the depression has been in remission for a good 2 years, unfortunately the insomnia is not. Though it may also be a case of Ambien dependence. I'd like to take a week or two off work and go cold turkey on both the Ambien and Xanax because tapering on either just isn't pretty. One of these days...
  • Create New...