Jump to content
CrazyBoards.org

Search the Community

Showing results for tags 'Neuro Malignant Syndrome'.



More search options

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


Forums

  • Stuff That Makes You Feel Like Crap
    • Bipolar Spectrum Disorder - The Pole Dance
    • Depression - Let a WHAT Be My Fucking Umbrella? (Sod You, Perry Como)
    • Self-injury - The Cutting Board
    • Personality Disorders - Fuck Off! No, Wait. Fuck Me Now!
    • Eating Disorders - Hell's Kitchen
    • Substance Abuse / Addictive Behavior - 8-balls, Highballs, Deal Me in One Last Time
    • Panic / Anxiety Disorders - What, Me Worry?
    • PTSD and Trauma- Duck and Cover. Again and Again.
    • Obsessive-Compulsive Disorder - Click Here Repeatedly
    • Social Phobia - Behind Paranoid Eyes
    • Dissociative Disorders - Now where was I?
    • Schizophrenia and Various Psychoses -- Jesus Had a Twin Who Knew Nothing About Sin
    • ADD/ADHD - Could You Say That Again? I Was Listening to My Head.
    • Autistic Spectrum Disorders - What Part of English Don't You Understand?
    • Migraines and Other Headaches - Not Tonight, Dear
    • Neuropathic and Chronic Pain
    • Seizure Disorders - Shake, Rattle and Roll
    • Sleep Disorders - Perchance to Dream
    • Allergies: Benadryl? No, But I Have a Cousin Who Was a Dremel.
    • Hormone and Glandular Problems - How Do You Make a Hormone? Kick Her in the Ankle.
    • Not Otherwise Specified - Put your finger on your NOS, on your NOS
  • Meds and Other Crap That Make Life Tolerable
    • Anticonvulsants / Mood Stabilizers - Bodies A-Twitchin', Moods A-Switchin'
    • Antidepressants - If You're Crappy and You Know It
    • Cocktails - Medicated to the Gills and Floundering
    • Antipsychotics / Neuroleptics / Major Tranquilizers - The Acme Pill-O-Matics
    • Miscellaneous Medications & Miscellaneous Questions About Meds
    • Benzodiazepines - Take a Chill Pill!
    • CNS Stimulants - Warped & Wired
    • Side Effects - It Turned Me into a Newt! A Newt? I Got Better.
    • What The Hell is THAT? - Medical, Nutritional, and Lifestyle Alternatives
    • Therapy - The Other Half of the Puzzle
    • ECT etc. - Watt's up, Doc?
  • Crap You Read About
    • Academic Interests - Geek Out While You Freak Out
    • Books Reviews - Self Help and Otherwise
  • Life Cycle: Mate Spawn and Die
    • Family Feud
    • Parenting/Pregnancy/Childhood Issues - Nature or Nurture
    • Relationship Issues - Crazy For Loving You
    • Aging Issues: Hot Flashes and Hot Rods? Midlife Crisis, Menopause, and Beyond
    • Spirituality - Luminous Beings Are We, Not This Crude Matter
    • Grief, Death and Dying
  • Your Crappy Life
    • The Health Care System Sucks!
    • Law, Money, and Employment -- Send Lawyers Guns and Money
    • Technology Sucks! - Luddites Unite!
    • News and Politics - Next on Sick Sad World
    • People Suck!
    • Gay/Lesbian/Bi/Transgendered Issues - Out of the Closet and Out of Our Minds
    • Intro to Being a Crazy Student - Whatsamatta U
    • The Confessional
    • I've *Still* Got Issues!
  • Other Crap
    • Whatever
    • I Got the Good Stuff Here
  • Generic Forum Crap
    • Board News - Incoming Message from The Big Giant Head
    • Suggestion Board - I'm Sorry Dave, I'm Afraid I Can't Do That
    • New User Info - It's Not Easy Being Green
    • Introductions - Who The Hell Are You?
    • Moderators - Pay No Attention to the People Behind the Curtain
    • Test Board - Do Not Push the Big Red Button!
  • Coronavirus: Because You Don’t Have Enough Crap On Your Mind
    • I Need An Adult!: Where to Find Accurate Information
    • Has Anyone Told the Amish?: Covid-19 in the Media
    • Social Distancing: I’ve Never Felt Closer to You
    • Telemedicine: Is This Thing On? Getting the Most Out of Screen Time With Your Doctor
    • Oh, No, I Couldn’t... Well, Maybe Just One More: Hoarding. Or, uh, Being Prepared
    • Casual Everyday: How to Stop Watching Cat Videos and Get Some Work Done At Home
    • Absolutely No One Walked Into a Bar: Best of Coronavirus Humor
    • But I Need a Damn Haircut: When You Don’t Have the Virus, But You’re Still Falling Apart
    • Countin’ Flowers On the Wall: So Bored We Need a Board For It

Find results in...

Find results that contain...


Date Created

  • Start

    End


Last Updated

  • Start

    End


Filter by number of...

Joined

  • Start

    End


Group


AIM


MSN


Website URL


ICQ


Yahoo


Jabber


Skype


Location


Interests

Found 1 result

  1. Hi, I just joined these boards, mostly to toss a big old warning to people just starting Latuda. I have suffered from depression for years, the most recent episode since around 2008. Prior to that I have had trichotillomania which went into remission but came back in 2011. In 2006 I was diagnosed with POTS, postural orthostatic tachycardia syndrome, a type of autonomic nervous system disorder. Around that time also I began to have severe panic attacks but wasn't given Ativan until I ended up in the ER one night with sinus tachycardia at 180bpm sitting. In the past three years I have been on a massive manic spending spree, racking up big time debt, working 70 hours a week, and in 2008 I finished a second master's degree while working full time. A week ago I was diagnosed with bipolar disorder. (Not sure if he's put me in I or II, I'm assuming I.) Also obviously anxiety disorder. I cut my Lexapro from 20mg to 15 to 10 starting in mid-Feb. Current meds are: Lexapro 10mg Lyrica 75mg morn and evening Metformin 1000mg morn and evening meals Metoprolol 50mg morn Tramadol 50-100mg as needed, usually 2-3 per day Ativan as needed - .5mg Vitamin D 50,000IU twice weekly Fish oil, B-vitamins etc etc Psych added: Lamictal -1 tab morning for 7 days, going to 2 tabs for 7, 3 tabs for 7, reaching 4 tabs per day Latuda - 20mg with evening meal for 7 days (sample pack) Lamictal was fine....No telltale rash. Latuda -- Oh. My. God. First two nights on Latuda were unreal. I took it and within 30 minutes I could feel myself changing with waves. Within two hours I was knocked out cold. Third day on Latuda I was out of it, but managed to get a few loads of laundry done. I still had lots left on my to-do list but wrote it off as an "adjustment" day. That evening while reading and browsing the web I noticed my hands, legs, and abs were twitching pretty hard. Day four I felt like my head was on backwards. My whole being felt flip-flopped. I went to my acupuncturist for my regular pain therapy, and the needles hurt. (they never even feel like anything). One even was for all intents and purposes "bounced out" of my shoulder my muscle was so tight. I screamed in pain. Monday night I could not sleep. I sat in a catatonic trance on my couch until 3:30am and pulled almost 1/4 of my hair out. Day five was the beginning of hell. I craved salt. I killed two big bags of potato chips. My throat hurt. I thought I was getting a cold. (It is cold and flu season.) I cancelled my morning therapy. I was tired and agitated but couldn't sleep. My muscles were still twitching. I read the side effect sheet, and although it said to watch out for stiff muscles or twitching, it also said to look out for fever. I took my temperature and it was only 98.2. Even though I run cold, I know that fever is absolute so I just sloughed it off saying I would talk to my doctor later in the week. BIG MISTAKE. I sat spaced out on the couch again for all of day five determined to find a dog on the internet to adopt. Also still yanking my hair out. No sleep again that night. Day six sucked, but my lack of sleep now turned into some kind of zombie horror movie euphoria. More hair pulling, binge eating alternating with nausea and fasting for long periods. I had an acupuncture appointment at 3pm that I managed to pull myself together for, and she was shocked at how hot and dry my skin was. She also said that the needles were going through very stiff muscles. She encouraged me to hydrate. BEST ADVICE EVER. She treated my yin points and I left feeling grounded and cool. However my car broke down on the way home and by 6pm I had a core meltdown. When I got home I was in full-on rage to my husband, my heart was hammering hard, and I was ready to take a sledgehammer to the entire house. I caught myself and downed an Ativan as fast as I could. My throat was swelling even worse and pills were hard to take. The Ativan took the edge off, and after watching TV I was exhausted and collapsed into bed around 8:30pm and didn't wake up until 7 the next morning. I dragged myself into therapy the next day and was shaking frantically trying to get ready. I could barely swallow pills from swelling and pain in my throat and I was incredibly anxious. I stopped into my doctor's office but he was unavailable and I put off until Friday seeing him. Thursday night again no sleep, but when I did wake finally on Friday morning, I thought I was dying. I was drenched in sweat, felt like I had a belt squeezing my head and pinching my brain, my muscles hurt. I knew at this point without a doubt it was the Latuda. I talked to doc and he said to discontinue immediately, and to hydrate like hell. I went back to my patient leaflet and did some more research on Neuro Malignant Syndrome. I hope to God my twitching stops and that I haven't damaged my kidneys. Guys, this shit is seriously scary stuff. Don't do what I did and put off stopping it thinking "Oh I have to feel worse before I feel better." This is dangerous dangerous medication if it is not right for you. STOP IMMEDIATELY if you feel yourself changing or having a racing heart of are thirsty or sweat too much or don't sweat at all, or get headaches or get angry easy or start crying at the drop of a hat. STOP STOP STOP STOP.
×
×
  • Create New...