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Rabidtears posted a topic in Seizure Disorders - Shake, Rattle and RollWell I posted a couple of weeks ago that my doctor was looking into a possible diagnosis between seizures, narcolepsy, and migraines. I am still waiting to see how that goes. Wednesday I had my consult with the sleep clinic which flagged me a lot for narcolepsy, which may or may not be relevant as I know these intermesh a lot with each other. I have continued logging all of my seizure like episodes since I've noticed that they were more than just typical chills. If I knew how to link that post I would .The gist is for those who have not read it is it a chill like feeling in the back of my Neck, head and shoulders. My eyes would roll back and eye lids would flutter. Started out lasting roughly 2-3 seconds then progressed over time to 3-5 seconds. There was a cold shiver included with the eye roll and my head would snap backwards. As time passed by symptoms slowly progressed. Some nights I would have 5 or 6 back to back, mainly if I were in a vehicle that had wind and ac sometimes none. Seems to be triggered by wind and cool/cold air. I cannot induce it nor does it happen all the time. Afterwards, I am sometimes sick or have aa headache, but I am always sleepy for the rest of the day. I have continued to maintain awareness. In the last week or so my arms have begun to jerk upwards during these 'episodes' and shake a touch. Not long. Like I said they only last a couple of seconds. Now...the newest thing that would freak me out if I were not on an awesome bipolar regimen that squashes my anxiety..... Yesterday I had an epidose. The heat index was about 100 degrees and I was sitting in front of a huge fan trying to stay cool. Hair was pulled up. Next thing I knew my arms, shoulders, neck, and head tensed and jerked. My head snapped back. Eyes rolled. Lids fluttered. I can't remember if I felt the usual cold shiver or not because when my arms jerked upwards I felt a warm tingle that felt like electricity [best way I can describe it] go all the way to my finger tips of both arms. It matched perfectly. It was not painful like neuropathy, not pins and needles, just a warm electrical tingly feeling if that makes sense... I don't know how else to describe it. It started and stopped with the episode. Does anyone have any ideas on this???
Has anyone tried this form of therapy? If so, what were your experiences and did it help at all? I've been on various SSRI's, SNRI's, AAP's, and Benzodiazepines to control my Social Anxiety in the past 12 years and only found relief with a Clonazepam and AAP combo. After 7 years, I had to discontinue both due to dependency (I sound like a broken record). Since then I've tried to focus on alternative treatments with my Pdoc (no, not in the "suck on this root and you'll be cured" kind). I've had very much success with a combination of Cognitive Behavioral Therapy and Mindfulness, and now been off all maintenance medications for anxiety for almost a year. Although I am 90% more functional than I was 12 years ago, I still struggle with aspects of Social Anxiety. I am prescribed a PRN beta-blocker for extra help but I try not to depend on it and would like a more long-term treatment. In my own understanding, Neurofeedback essentially does the same thing as CBT. It targets behaviors and thoughts (or rather brain wave dysregulation) and you learn to change them, creating long-term structural changes. Considering I did respond so well with therapy, and not so much which medications, my thinking is that I would benefit from what Neurofeedback offers. My goal is to have as much control over my anxiety as possible instead of playing "Russian Roulette" with my symptoms every day. I already have an appt. to talk to my Pdoc about her opinion on my candidacy. My main issue here isn't so much it not working, but money. My insurance only covers a small portion and I'm left with a hefty co-pay so I want to know it's something worth trying before I take the leap. So any and all replies are appreciated.