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thought i'd start a thread where folks can talk about their lyrica experience thus far (if you wanna).

it's frustrating to me to start a med this new - i can't read a thousand posts about whether this pill will make me fat or stupid or crazier or actually happy (gasp). i'm used to researching the hell out of every pill i swallow, and i can't this time (what's the icon for chewing fingernails?). ;)

so please, if you're taking Lyrica for mood stabilizing, tell us about it!

i've been taking 150 mg (75mg x 2) lyrica for a week now. for the first three days i felt better than i have in a loooong time (so long i can't remember). previously, i was feeling like i had the worst PMS all the time (raging then crying then raging then crying). i stopped wanting to do either one (yay!). now for the last few days i'm back down again. i'm due to see my GP tomorrow for an increase in dose.

so far no side effects except i am typing-challenged and talking-challenged. i erase and making the same typo 4 or 5 times before i get it right at least once in every damned sentence. i keep forgetting the words for things (tip of the tongue phenomenon).

i'm not tired nor stimulated. i'm not craving food, but i'm not having trouble eating either. it's a little harder to go to sleep and harder to wake up, but not too bad.

after tomorrow i should be able to post what 225mg feels like!

thanks in advance to anyone who can add to this thread.

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Funny that is almost exactly the opposite to my 2 wk experience on Lyrica.

I was prescribed for migraine. 75 mgs. am/pm. Sedation, some cognitive delay. Food cravings and, as usual, headache (behind my eyes).

Week 2 150 x 2 per day. Fucked me up. Heavy sedation, serious cognitive disruption and I ate non-stop.

I have other neuropathic pain, I take cymbalta for depression and it works well on the neuropathy in my leg, so I ditched the lyrica before I got hooked. I couldn't deal. I have the same experience with Topamax but was waaaaaaaaaay stoooopid. Ridiculous even for me. ;)

FWIW.

S9

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taper as slow as you possibly can.

seriously, i mean it.

first time on it i tried to taper up to 300mg way too fast and lost my ability to control my tounge without sluring along the way. so i stopped taking it, and now i'm on it again as school is out and i can slur at people all i want right now. but i tapered up super slow this time, and stopped at 225, but i don't think other that one or two days, that i've had any cognitive etc. side effects.

i think it's much better to take it 3xs a day if you can manage doing so. it has a pretty short half-life and i think 3xs a day dosing keeps it more even.

i'm not taking it for mood stabilization, i'm on it for anxiety and pain, but it works really well for those.

i didn't get food cravings from it, so i don't think that's universal. i am wondering if it is fucking up my gums though, but i can't find info on that...

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NailBiting.gif

here's you a nail biting smilie ;)

i was on lyrica 150 2xday for migraines. didn't do squat for those but worked great on my anxiety! good bye xanax! but it really wasn't worth it in the long run for me since it didn't get rid of those nasty migraines and it was causing food cravings and weight gain (don't need that). so with my neuro's blessing, i decided to quit. i did a taper but apparently it was not slow enough. nasty, nasty, nasty side effects! i'm happy to report that i'm finally off of it (using xanax again of course) and i do miss the mood stabilization because it did work well with my lamictal. but i just couldn't justify paying for it. and it's the one med that my neuro didn't have samples of.

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a nailbiter smiley! awesome!

funny you should mention your doc didn't have any samples-

i started out with three sample boxes from my GP, then researched whether my insurance is going to pay for this if it actually works. nope! shit. so i tell this to my GP today, thinking maybe we'd switch to something that's covered (like topomax). instead, he goes digging around the entire clinic looking for more sample boxes. not finding any, he's decided that i have to stay on 150mg for the next two weeks - because that's how long it will take him to contact the company to get more.

so i'm not titrating to 225mg yet, because i only have enough sample boxes to do 150mg. crap. i feel terrible and i wanted to get this titration over with. i wanna know if this is going to work already, argh. now just more waiting at a sub-therapeutic dose (for me). and sometimes knowing i've done "something" (changing a med, titrating, tapering, whatever) makes my agitated brain feel a little better in a placebo-like way.

i am so not in a position to actually pay out of pocket, or i would have today.

found out they won't pay for wellbutrin XR either, so i have to stay on my SR version. oh well.

i should just shut my ungrateful trap and be thankful i can get meds at all!

*goes looking for the grateful stick to beat self with*

ooh and i forgot to say thanks for the advice about tapering. i've been through effexor tapering and i never want to do THAT again - this time i'll be really really slow about it. thanks!

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pdoc wanted to add on lyrica to my current cocktail to fight anxiety. I said "no" for now because I am unsure of my health insurance, but I will be eager to see if it helped anyone else with anxiety issues.

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  • 4 weeks later...

pdoc wanted to add on lyrica to my current cocktail to fight anxiety. I said "no" for now because I am unsure of my health insurance, but I will be eager to see if it helped anyone else with anxiety issues.

well, i have to say it worked great on my anxiety AND agitation, without feeling stoned like benzos or APs. i would definitely recommend Lyrica for anxiety.

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i know this is a really, really long post. but since i started this Lyrica anecdotes thread, i'd feel remiss if i didn't come back to say i won't be taking Lyrica much longer. maybe it doesn't belong here, but i really wanted to share WHY i won't be taking it anymore - even though i WANTED to.

this is a loose transcript of my appointment with my GP two weeks ago. again, this is long, feel free to space out ;)

Dr. M: "What can I do for you today?"

Lysergia: "I'm here to see if you found me those Lyrica samples yet."

Dr. M: *blank look, opens file folder on desk*

Lysergia: "You started me on Lyrica three weeks ago. I told you it wasn't covered by my insurance, so you said you would get me some when I came back in two weeks. That's today." Actually, I told you I didn't think I should continue on a medication that isn't covered and I can't afford, and asked you about Topamax instead. You pshawed me and said you would rather get samples for me because Lyrica is So Much Better . Please don't say you forgot or I am going to have a meltdown right here.

Dr. M: "How have you been feeling?"

Lysergia: "Not good. I feel fine for a few hours, then I'm sobbing over nothing for a few hours, then I feel so agitated I would do anything to get out of my own skin."

Dr. M: "Agitated?"

Lysergia: Is this a new word for you? "Yeah, agitated. Like I'm really wound up about something, but my mind won't settle on a reason. I can't think straight, and I can't calm down - but it's different than my usual anxiety. I'm not afraid of anything, or panicking like usual - actually my anxiety level is still remarkably good since I started the Wellbutrin. There's just these surges of really uncomfortable and paralyzing energy and emotion that I can't describe."

Dr. M: "And the Lyrica isn't helping that at all?"

Lysergia: "No. It is helping me feel way less ragey, though, which was my major concern when you put me on the Lyrica. I'm not inappropriately angry anymore. I'm just agitated instead. For two days during the first week I felt pretty good, then I went back to crying and pacing." Just like I told you two weeks ago, it's written right there in your notes!

Dr. M: *pause, stare at folder*

"And you're still taking 300mg of the Wellbutrin right?"

Lysergia: "Right."

Dr. M: "And you didn't like the Mirtazapine because..."

Lysergia: Fine, for the hundredth fucking time I'll tell you again. "It made me waaaaaaaay too tired and I gained too much weight. Plus I was still depressed, so there didn't seem to be much benefit in continuing. So I asked about a mood stablilzer and you agreed, and gave me Lyrica. You were going to increase the dose two weeks ago until you discovered you didn't have enough samples left, so you told me to come back today for more."

Dr. M: "Maybe if we adjusted the dose of the Mirtazapine. We could try half the dose you were taking and you'd probably be less tired."

Lysergia: Ohforfuckssake please god give me the patience not to punch this man. "You already had me breaking pills in half. I DO NOT want to go back on mirtazapine."

Not to mention that it is more sedating at lower doses you idiot. If I know that why don't YOU know that?

Dr. M: *gets up to go find Lyrica boxes*

*stops halfway to the door, sits back down at desk*

"And what about Seroquel? How did you do on the Seroquel?"

Lysergia: Can you not read your own goddamned handwriting? "Seroquel makes me calmer, but tired and stupid and still depressed. I don't think it's a good long-term plan."

Dr. M: *sighs, looks at folder some more*

"How long have you been feeling this way?"

Lysergia: "What way? Depressed? Agitated?"

Dr. M: "Depressed."

Lysergia: Oh fuck - did he really just ask me that? "Um, for about ten years, almost the entire time that you've been my doctor."

Dr. M: "Were you depressed as a child?"

Lysergia: "Yes, but it didn't debilitate me until I was in my mid-twenties. I had a major depressive episode at 25 and I've never completely recovered. Same goes for the anxiety, the dissociation, the agitation, everything." You've been my doctor for twelve years. You've been the one person who has prescribed every single psych med I've ever taken. All seven antidepressants, two antipsychotics, two antianxieties, and one anticonvulsant. You've been the person I've come to when I'm suicidal, when I'm having panic attacks, when I think I'm losing my mind. And you don't fucking remember anything about me. I'm a new patient every fucking time I walk into your office, aren't I? I should fucking tell you I'm Anne of Green fucking Gables next time and see if you're really listening.

Dr. M: "So do you think the Wellbutrin is helping at all?"

Lysergia: All right, I'll play along and tell you this one more time. "Yes, it's keeping me out of bed and giving me a little motivation. And my anxiety is way better since starting Wellbutrin. But I'm still quite depressed, and it's not helping the agitation at all."

Dr. M: "So what are you doing for the agitation now?"

Lysergia: "Smoking more pot than I want to. I've even started to contemplate drinking again, and I haven't done that for years."

Dr. M: "Oh, don't start drinking! You'll just make things worse."

Lysergia: Duh. "I know. I don't even want to smoke as much pot as I do, I just feel desperate."

Dr. M: "You shouldn't smoke pot you know."

Lysergia: Um, you're the one who wrote me the note for the Cannabis Association three years ago so I could buy from them, because it helped my anxiety... oh, is THAT not in your notes? "If my meds were actually doing what they're supposed to, I wouldn't be feeling desperate enough to smoke so much or think about drinking! That's why I'm here and not at a bar!" Calm down Lysergia, don't scream at him. He's an asshat. He won't help you if you're an asshat too.

Dr. M: "So when was the last time you felt good?"

Lysergia: *laughs uncontrollably, clears throat*

"How many years do you want me to go back?"

Dr. M: "Has it been that long?"

Lysergia: No, it really hasn't... I snuck into your office last night and edited my file to include a false psychiatric diagnosis, complete with medication history and hospitalizations and referrals to shrinks. "Yes! We have been trying for ten years to find the right meds! And they have never worked more than six months at a time."

Dr. M: "Which ones worked for six months?"

Lysergia: This is exactly the same question you asked me three weeks ago. We spent twenty minutes going through a whole list of meds and debating the pros and cons before you settled on Lyrica. I'm the one who's supposed to have the spotty memory you fucking crackhead. "Prozac and Effexor. Effexor worked the longest."

Dr. M: "Why did you stop the Effexor?"

Lysergia: "It stopped all on it's own. I got superdepressed and superanxious, even when we increased the dose to 300mg. So I weaned off and it was absolute hell. Acutally it was exactly this time last year that I had just gotten through withdrawal, and I was going out of my mind with exactly the same symptoms I am telling you about right now, except with panic attacks. I ended up at the emergency room because of this last year. I DON'T want to do that again!"

Dr. M: "Well, since the Lyrica doesn't seem to be doing anything, let's try the Effexor again. Stop taking the Lyrica and we'll start you on 37.5 of Effexor. And keep taking the Wellbutrin."

Lysergia: Oh, because THAT combo sounds like it will really calm me down... fucking brilliant! "Um, don't you want me to taper off the Lyrica? I read that there's some nasty withdrawal effects."

Dr. M: *blank look, stammers*

"Ahh, well, um, well... well then take 75mg per day for the next two weeks instead of 150mg. Then come back and see me."

*writes script for Effexor*

Lysergia: "Um, I need samples of the Lyrica, remember?"

Dr. M: *goes out to get samples*

"See you in two weeks."

Lysergia: "Um, I need a script for Wellbutrin too, since you won't give me more than four weeks at a time."

Dr. M: *sighs audibly*

*writes script*

"See you in two weeks."

Lysergia: "Yeah, thanks."

Dr. M: *pauses in doorway*

"You know, you should start exercising. Regular exercise helps depression."

Lysergia: I will not kill him. Jail is no fun. I will not kill him. Jail is no fun. I will not kill him. Jail is no fun. "Yeah, what a good idea, I'll get right on that."

Dr. M: *flies out the door*

so, for the record, 75mg of Lyrica doesn't feel any different than 150 did. i'd still be flying off the handle and breaking shit if i wasn't smoking :/

however, the effexor is doing nice things for my depression already, so maybe it'll work again (it pooped out a year ago). not being so depressed gives me more patience with myself for feeling like a monster half the time.

thanks for reading if you did. i'm still stunned that my GP did that, and i'll be shopping for a new doctor that doesn't yank a new med away from me after three weeks because it isn't working fast enough :/

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  • 7 months later...

lysergia: you need a new doc. that one is an idiot.

after my wreck and the litany of dr's telling me there is nothing wrong, im making it up, i want drugs; i made a rule.

never go back to a stupid doctor. no matter what. if they screw up and don't know what they are doing, they damn sure don't need to be in charge of my health.

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lysergia,

your doctor sounds like a total tool. maybe he was having an off day... sometimes my doctor forgets things... but... no... forgetting you've been depressed for 10 years? that's a bit thick.

i hope that either the effexor works or you get a new pdoc.

__________________________

oh, and FWIW in terms of lyrica anecdotes

i'm still on lyrica

i take 100mg three times a day.

i found that it only really became effective for anxiety once i reached 300mgs. (i still take xanax though... i'm an anxiety mess.)

it's also been a godsend for pain.

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  • 6 months later...

Lysergia - You totally crack my ass up! I have run into idiocy in high places, but that takes a big slice of cake.

Last week, I went in to get my allergy shot (weekly) but told the nurse I wasn't feeling so hot. The front office scheduled an appointment with my allergist. Looking at ALL of my meds, he proceeded to put me on yet another anti-histamine/decongestant combo (when I already have 2 or 3 Rx others at home), Prednisone and Augmentin (antibiotic for 14 days).

The next day, I had an appointment with The Pain Center for my spine and back (had surgery last winter). The specialist - with my VERY NEATLY SPELLED OUT MED LIST- that included lithium, topomax, lamictal, cymbalta, seroquel, trazodone and all my other allergy and asthma meds and a muscle relaxer - added Lyrica and a stronger analgesic to the mix.

I'm almost afraid to tell my pdoc, who is the opposite of your pdoc. She goes over each med religiously. I think maybe I'll ask her to put me on a donor list for a liver. What say you?

But, truth be told, I haven't cycled since June/July (hypo/Manic) and before that a nasty depression in April/May.. But I am hypersensitive and get agitated and irritable when the outside world conflicts with my internal settings. The pain specialist felt the Lyrica will really help with the neuropathic pain from my discectomies and scar tissue and help more with the anxiety.

So we'll see.

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My experience with neurontin and gabitril is that the therapeutic effect is only present when the cognitive delays are present. With the good feelings, comes the bad stuff. I assume lyrica would present the same side effects for me as these other meds. It seems like GABA drugs give me edema, cognitive delays, irritated joints, hairloss, and increased sexual desire (I like that). I like what they do for my anxiety, although I require a pretty high dose. Might give lyrica a try in the future...

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Was put on Lyrica for anxiety while I was in-patient for a few days this summer. 2 x 75 mg for 4 days, then 2 x 150 mg, so a pretty fast titration. The first couple of days I didn't notice much other than sleeping better. But when I upped the dosage - wham! Huge mood lift, I was practically euphoric for a week.

After that, back to earth. It did help some against anxiety though and I could sleep without sleeping pills. But I grew more and more tired in the daytime, hungry, anorgasmia, don't think I became all-over stupid but I did become noticably typing-challenged and sometimes couldn't find words. And the thing that got to me most - developed a constant body pain. I actually had a fibromyalgia problem (diagnosed) 15-20 years ago, that went away after some major lifestyle changes (like getting rid of a husband ;) ). This Lyrica pain felt very similar - just my luck, to take a fibromyalgia med and get that crap! After two months of this (and 7 kgs/15 lbs more of ass and belly, which I didn't really need), I talked it over with pdoc and went off it.

Tapered down rather quickly, one week at 150 mg, then zero. It wasn't that awful, I don't think, or maybe I just have a high tolerance level for withdrawal stuff after having gone on and off so many meds... Some increased anxiety, some akathisia (restless crawling sensation), some mental zoning-out, hair loss. The munchies stopped already after lowering to 150 mg, but the pain didn't give up until I had quit completely.

(And after a few completely med-free weeks - I never cease hoping that will work out, it never does - I had to bite the bullet and go back to pdoc today. So now I'm psyching myself up for another turn on the med-go-round, Lamictal this time.)

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Lyrica's very expensive ($100 for three months if I order it through my insurance's mail order pharmacy - couldn't possibly afford it at the drugstore). For me, it's the only thing that's worked for my weird idiopathic neuralgia, and it's worth it to be without pain for the first time in years. (I took Neurontin for a while too - worked OK, but I couldn't stay awake during the day on it. Lyrica works for me with only very mild drowsiness.) Nothing else, from other meds to pain shots, worked anywhere near as well.

I notice too that it does have a relaxing effect. When I forget a dose, I notice it, first from the pain...but if I only have two doses during the day instead of three (I take 50 mg tid) I can have a hard time falling asleep. So I suspect it does work on anxiety.

As for me, no particular food cravings, no effect on libido, occasional mild dizziness and lack of coordination. (But it didn't make me totally stupid or uncoordinated - the Lamictal did that.)

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  • 2 weeks later...
Guest Guest_victoria_*

taper as slow as you possibly can.

seriously, i mean it.

first time on it i tried to taper up to 300mg way too fast and lost my ability to control my tounge without sluring along the way. so i stopped taking it, and now i'm on it again as school is out and i can slur at people all i want right now. but i tapered up super slow this time, and stopped at 225, but i don't think other that one or two days, that i've had any cognitive etc. side effects.

i think it's much better to take it 3xs a day if you can manage doing so. it has a pretty short half-life and i think 3xs a day dosing keeps it more even.

i'm not taking it for mood stabilization, i'm on it for anxiety and pain, but it works really well for those.

i didn't get food cravings from it, so i don't think that's universal. i am wondering if it is fucking up my gums though, but i can't find info on that...

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taper as slow as you possibly can.

seriously, i mean it.

first time on it i tried to taper up to 300mg way too fast and lost my ability to control my tounge without sluring along the way. so i stopped taking it, and now i'm on it again as school is out and i can slur at people all i want right now. but i tapered up super slow this time, and stopped at 225, but i don't think other that one or two days, that i've had any cognitive etc. side effects.

i think it's much better to take it 3xs a day if you can manage doing so. it has a pretty short half-life and i think 3xs a day dosing keeps it more even.

i'm not taking it for mood stabilization, i'm on it for anxiety and pain, but it works really well for those.

i didn't get food cravings from it, so i don't think that's universal. i am wondering if it is fucking up my gums though, but i can't find info on that...

I think it's messing up my gums, too... Hmmm...

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Lysergia,

i don't wanna read about your total asshat "pro" any more. i am still licking the wounds generated by the dumbest, thickest, lazy pdoc that is the action here for vets.

my puss is all twisted up, don't know if i should laugh or cry because of the dissing you handed out in your post. where do these people come from? i know the answer, i know ....

can you not ditch the GP and chance a pdoc outta the blue? that's percentages at work huh. one of the fucking eejits gotta have chops but we are in for a fandango while cruising for the connection.

you don't take yourself seriously. that's gotta be, just has to be, a real good indicator. leave the bottle for the pro's, jail food is not know to keep one's eyes from rolling around in their orbits.

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Was put on Lyrica for anxiety while I was in-patient for a few days this summer. 2 x 75 mg for 4 days, then 2 x 150 mg, so a pretty fast titration. The first couple of days I didn't notice much other than sleeping better. But when I upped the dosage - wham! Huge mood lift, I was practically euphoric for a week.

After that, back to earth. It did help some against anxiety though and I could sleep without sleeping pills. But I grew more and more tired in the daytime, hungry, anorgasmia, don't think I became all-over stupid but I did become noticably typing-challenged and sometimes couldn't find words. And the thing that got to me most - developed a constant body pain. I actually had a fibromyalgia problem (diagnosed) 15-20 years ago, that went away after some major lifestyle changes (like getting rid of a husband ;) ). This Lyrica pain felt very similar - just my luck, to take a fibromyalgia med and get that crap! After two months of this (and 7 kgs/15 lbs more of ass and belly, which I didn't really need), I talked it over with pdoc and went off it.

Tapered down rather quickly, one week at 150 mg, then zero. It wasn't that awful, I don't think, or maybe I just have a high tolerance level for withdrawal stuff after having gone on and off so many meds... Some increased anxiety, some akathisia (restless crawling sensation), some mental zoning-out, hair loss. The munchies stopped already after lowering to 150 mg, but the pain didn't give up until I had quit completely.

(And after a few completely med-free weeks - I never cease hoping that will work out, it never does - I had to bite the bullet and go back to pdoc today. So now I'm psyching myself up for another turn on the med-go-round, Lamictal this time.)

I've never had a belly before now (well, in some time), and I am seriously not dealing well with it. Caloric intake seems to have no effect on chub growth. Neither does flushing the system with water, etc... I feel like I'm pregnant with a fucking ball of demonic toxic waste. Well, maybe not so bad as all that, but fairly hateful. I'm hoping it will even out and I can work on getting rid of the extra weight (no laughing, please) and perhaps enjoy the benefits of the med. Otherwise, it is outty.

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