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Myoclonus and Partial Seizures caused by Seroquel, Maybe?


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I'm not really awake right now and I'm not really "braining" at the moment, but FWIW every AP/AAP I've ever been on (including Seroquel) dropped my seizure threshold through the floor. My seizures are mostly absences though. I'll try to come back and give a better answer after I wake up a bit more. Sorry.

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I haven't taken very many antipsychotics (only Risperdal and Abilify, before I was diagnosed with TLE), so I don't have too much experience with them. This is kind of useful/interesting, though. I've only had myoclonic-type stuff from Neurontin, but I'm kind of weird, so that's not really anything to go by.

Generally, seizure activity is only for a minute or two, unless you go into status epilepticus, which is a kind of a big deal. When I had myoclonic stuff going on, it wasn't constant for that long, but I'm not entirely sure of all of the details, because it tended to happen when I was half asleep or completely asleep. With anything else, though, it's been pretty brief for me.

Speaking of coffee, though, it did seem to help me when I eliminated all caffeine. For some people, it can have a noticeable effect, and for others, not so much. For me, it took stopping it for a couple weeks or so, then trying having some again to tell what it had been doing to me.

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  • 1 year later...
Guest PiccoloWeaponX

I hope you are still checking this post eventhough it's been posted for a while. My boyfriend started Seroquel to treat his bipolar. But he was only on it for a month or less and the myoclonic jerks started. He has been off it for almost two weeks, but he seems to be getting progressively worse. Sometimes he has over 10 jerks a minute and they hurt. He can't drive because the jerks sometimes take his foot off the clutch. The hospital did a bunch of tests of him and hopefully we will find our by next week what is wrong. I have a couple questions 1.How long were you taking the Seroquel until the jerks started? 2.How long after you stopped taking the pills that the jerks stopped? 3.How bad were the jerks? Did they hurt you?

Thank you so much. I hope you can help answer some of these questions. I am worried sick about him.

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  • 9 months later...

I hope you are still checking this post eventhough it's been posted for a while. My boyfriend started Seroquel to treat his bipolar. But he was only on it for a month or less and the myoclonic jerks started. He has been off it for almost two weeks, but he seems to be getting progressively worse. Sometimes he has over 10 jerks a minute and they hurt. He can't drive because the jerks sometimes take his foot off the clutch. The hospital did a bunch of tests of him and hopefully we will find our by next week what is wrong. I have a couple questions 1.How long were you taking the Seroquel until the jerks started? 2.How long after you stopped taking the pills that the jerks stopped? 3.How bad were the jerks? Did they hurt you?

Thank you so much. I hope you can help answer some of these questions. I am worried sick about him.

Interesting to read all this - my partner took seroquel for the first time last night in the hospital and when I went to visit him today, he told me about seizures last night for a very long time and how sore he is today....good thing for the internet and google...it allows us to see what other experince.

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  • 4 months later...
Guest DeAnna

I hope you are still checking this post eventhough it's been posted for a while. My boyfriend started Seroquel to treat his bipolar. But he was only on it for a month or less and the myoclonic jerks started. He has been off it for almost two weeks, but he seems to be getting progressively worse. Sometimes he has over 10 jerks a minute and they hurt. He can't drive because the jerks sometimes take his foot off the clutch. The hospital did a bunch of tests of him and hopefully we will find our by next week what is wrong. I have a couple questions 1.How long were you taking the Seroquel until the jerks started? 2.How long after you stopped taking the pills that the jerks stopped? 3.How bad were the jerks? Did they hurt you?

Thank you so much. I hope you can help answer some of these questions. I am worried sick about him.

Interesting to read all this - my partner took seroquel for the first time last night in the hospital and when I went to visit him today, he told me about seizures last night for a very long time and how sore he is today....good thing for the internet and google...it allows us to see what other experince.

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Guest DeAnna

I started taking Seroquel in February and began tonic clonic sezures by March 10th and again May and recently yesterday, (AFTER I took a Seroquel to sleep!). I KNOW Seroquel is to blame now......

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Guest lyndall

Yes, I have been taking seroquel to and for many years I to have been having seizures.

I am taking 200 mg at night and seizing during the night or anytime I have been asleep, it is concerning me as I have been on the medication for a long time and been well for a long time, so dont wish to get off it my specialist is sending me to a neurologist so, will await his advice

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  • 4 months later...
Guest David Almond

I was put on this medacation so I could sleep at night. I told my Doctor that I had siezsers and he said it was no problem. Two days later I had to go to the hospital. At first it was my left side i couldn't move any of it. Then came the seizsers the hospital told me i was going through withdraw . I was not I know what that is. Should I look more into my Doctor giving me this stuff?

blueface_98@yahoo.com

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I have myoclonic jerks from Seroquel. They are pretty benign, however. I have them maybe once or twice a day, mostly in the evening at my current dose of 800mg/day. If I go higher than that, though, they get much worse, and will continue all night, keeping me awake.

I'm sorry your're having such a horrible time.

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  • 2 weeks later...
Guest retta shelton

Hello:Yes to answer your question has anyone else had a similar episode.the answer is YES,I had seizures in206&207 while taking seroquel for my Bi/Polar condition.i would like to tell you my story if I may.I was diagnosed in the late 70,s with manic depression(bi/polar brain disorder)I was placed on lithium at the time as seroquel was not yet maufactured.In 2006 I became toxic and my shrink put me on 300 mgs 10 to 12 at bedtime she said it followed the guidlines for treating Bi/polar conditions.(no sob story just the truth)I was homeless for about 5 mos in 2006.In the shelter I was rushed to ER because I was having seizures multiples, and was in bad shape.allso i gained over 100lbs.Then I became a type 2 diabetic and my thyroid is shot!!I still have to take this lousey drug because to stop would mean i would crash and burn!!So(just for a update)I did my research and found a lawyer who specializes in seroquel law suits. and we go to court this spring or summer.I was one of the luckier ones I did not DIE.But my life is not my own,as the bi/polar demon is still there.It runs throughout my entire family back many many generations.I do suggest that you talk to your health provider about tappering off not just going COLD TURKEY!I was placed on lemictal as well and so far i am doing allright Thank God.There is no side effects with this drug,I am able to stay up until 9 or 10 p.m. and when i go to bed i drift right off to sleep and when I awake,i am no longer a zombie.As a post script,I now only take 100 mg,s at bedtime and next month I will be off it for good.If you have any questions feel free to drop me a email and i will respond ASAP Take care and good luck Rita shelton redmond oregon oregonrita1@yahoo.com

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I too have dealt with two different forms of seizures for many years. I was diagnosed with Bipolar Disorder four years ago, and was placed on Lithium Carbonate, 200 Mg. of Seroquel, and 25 Mg. Zyprexa daily. I was then diagnosed with Pseudo Seizures, non-epileptic seizures. I went through a week-long seizure study. I spent five days hooked up to 25 leads on camera 24/7. I have been hospitalized at least 15 times for symptoms pertaining to my seizures and Bipolar disorder. The severity and frequency of my seizures increased to a level that forced me out of work. I am still, after three years, waiting to be released to go back to work. I am struggling to survive off of SSI. My bills barely get paid monthly. The origin of my seizures was never found, simply played off on stress. Well, with everything I have been dealing with medically, I have nothing but stress I am dealing with. I have to go a minimum of six months seizure free before I get released to go back to work. I am lucky to make it two weeks.

The new Seroquel commercial alerted me to start researching the correlation between Seroquel and seizures. This information has me stunned. The seizures have absolutely dismantled my life. I am only 29 years old, and I live like I am 75. I am limited on the activities I can participate in. Nothing physical, nothing strenuous. I had no idea that there are so many people who share my story. My question is, what do we do next? Does life somehow go on for us? Do the seizures ever subside if they are indeed caused by the Seroquel? I have many questions right now. Is my GP the best person to speak to?

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My wife started having muscle twitches /convulsions / partial epilepsy / myoclonus when she ran out of her Effexor on a visit to see her mom. It went away when she got her meds refilled, but returned when she stopped using the medication a couple months later. Its been a year now since she was weaned off of Effexor and she still suffers from the myoclonus. I have found that this is a side effect of a lot of different antidepresants or medications that affect the brain in one way or another. It seems to be a permanent side effect. Oh by the way doctors are idiots this is a listed side effect of effexor if used in combination with MAOI medications. She wasn't on any of those meds but they should have been able to connect the dots not just tell her she needed psychiatric help. The doctors couldn't even tell her it was myoclonus. She had seen seveal doctors incuding a neurologist. I discovered what it was while searching for efeexor and epilepsy link. We thought it was some kind of odd stress tick or some degenerative nerve disease. Its worse during her monthly cycle when she is unable to cope with stress. She also has pcos which caused her depression to begin with so she started taking natural progesterone to fix her hormone problems, which happily greatly reduced her depression and myclonus as well as many other symptoms of pcos(poly cystic ovarian syndrome). I found that doctors often treat siezures with progesterone in infants because it has basically no side effects other than drowsiness and water retention. It can be bought at a local natural herbs store for like ten dollars a tube fyi. Her myoclonus hasn't gone away entirely although it has been confined to the time she suffers pms. The episodes aren't nearly as frightening, violent or frequent thanks to the natural progesterone.

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Note: I am a co-morbid bipolar/OCD sufferer. I started having leg pains and tunnel vision on Seroquel after a couple of weeks of use. That turned to massive agitation. My doctor told me to not stop the medication and I eventually had a seizure a few weeks ago. It almost killed me; God knows what it did to my brain. I recommend stopping the medication of you ever have these sort of symptoms.

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  • 4 weeks later...
Guest Rita shelton

Hi yes I allso had these episodes-I was rushed to ER and I had three seizures while in ER I am allso BI/Polar.However my situation is this I was placed on Seroquel because I became toxic with lithium.When i was placed on seroquel I however did not recieve the warnings that come with this drug,But yes you get your sleep as it works on the neuro-transmitters in the brain that are for the most,put to sleep.The dizzines is from getting up to quickly,you have to roll out of bed slowly.My psyche doctor put me on lemictal which is a very good for treating bi/polar disorder,regular blood tests are needed,because with any anti/psycotic(sp?) we have to be careful not to get to much.the seizures-will lessen in time,But you need to talk to your doctor about another anti psyche medication,be wary of seroquel,it builds up in the body and you can allso become diabetic Type2 and gain alot of weight.I allways talk to my psyche doctor about my meds are they working are there any Bad side effects?etc.lemictal keeps me very stable and I have not had a episode while I am on it,however each person is different-there are 2 other drugs to be wary of,abilify,effexor,they have a very long list of side effects,of course we all are very different as to how these drugs affect us.please stay in close contact with your primary physican,let him or her monitor your meds regularly! good luck-this too will pass,as we bi/polar people know it is a on going thing,I hope you get your meds straightened out.R shelton

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  • 3 months later...
Guest lizard

I took a very low dose of seroquel for insomnia and a mood stabilizer for BPD. The next day I hallucinated, heard things that weren't there, felt very suicidal, and then the "tremors" and stuttering came. They "tremors" were only in my right arm. Theay lasted for almost 8 hours. If I sat on my hand/arm the "tremor" wold travel to my head. Also coinsiding with this I could barley speak and had a sutter was so bad no one could understand what I was saying. I discotinued the seroquel on my Dr. orders, but that night I countinued to have severe facial twitches. The next morning I woke up throwing up violently and the stutter and right sided "tremors" came back. They once again lasted for about 8 hours. I went to the ER had my system flushed, saw a toxicologist and a nuerologist. I am currently still undergoing to tests with the nuerologist. I had an EEG last week and I am waiting for the results. Are these "tremors" seizures? Oh, also, the ER doctor diagnosed me with stuttering - what a genius.

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If it's only in your arm it's not a seizure I don't think. That sounds more like a Dyskinesia of some kind. They are extremely rare with Serequel, particularly at low doses, but it's not beyond the realm of possibility.

A dopamine agonist such as the ones used in the treatment of Parkinson's might help.

The Wikipedia page sucks. Don't bother with it. I might make some edits to it later.

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  • 3 months later...
Guest mrivera85706

i have a siezure disorder due to a motorcycle accident years ago , but have been seizure free for over a year. That is until i started taking Seroquel and they started again, so you are not alone. I either have to discontinue this drug or take a seizure med again, which i have been med free for over a year as well. I have Grand Mal, or full body seizures. As I findout more i will post more

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  • 4 months later...

Obviously if the doctors don't know, I don't expect anyone to be able to diagnose me, but I was wondering if anyone has had similar experiences?

Last August, I had an episode that the ER doc called myoclonus (though he was honest about the fact that he really wasn't sure). I had just started taking Seroquel and Elavil to treat bipolar disorder. As the months went by, although I never experienced the same kind of muscle jerks, I went on to suffer from debilitating seizure-type episodes that my GP, paramedics, and an ER doc all said sounded like complex partial and simple partial seizures. (I experienced two distinctly different types of episodes, repeatedly and at separate times.) Not particularly on my doctor's advice, I stopped taking all my meds in January and seemed to be episode free for at least a month. During that time, I saw a neurologist and had a clean EEG. The neurologist said that it really wasn't clear what these episodes were, and he really didn't have much to say about them, nor was he able to give me some direction as to what meds I could take for the bipolar (i.e., my pharmacist strongly cautioned me to avoid lithium, which my GP prescribed after I went off the Elavil and Seroquel). I had one simple partial type event two weeks ago, while I was totally med free.

Anyway, I've been getting progressively more depressed and anxious, sleeping only four hours a night for the past week. On my new GP's advice, I took 25 mg of Seroquel on Monday. I desperately needed the sleep and was going out of my mind. I slept for 18 hours, which wouldn't be unusual for me and Seroquel, and woke up today feeling pretty out of it and dizzy. I had a coffee, then I started to feel very shaky, weak-kneed, and my left shoulder and arm starting twitching. Over the course of an hour and half, it progressed from my shoulder into my neck and torso. My mouth twitched and kind of writhed, as well. I went to a walk in clinic, where the doctor kind of looked at me like I was crazy, then to the ER, where the jerks finally subsided before I got in to see the ER doc. At that point, I honestly just felt tired, sore, and embarrassed, so my aunt drove me home without seeing the doc.

I'll go see my regular doctor as soon as I can get in, and I guess I'll call my neurologist tomorrow and see what he says, but.... I feel really defeated, depressed, and confused. Has anyone else had myoclonic jerks that lasted as long as an hour or two? Or, alternatively, similar symptoms that weren't actually myoclonus? From Seroquel? Or coffee, for that matter?

I feel like they look at me like I'm crazy, and I know it could all be in my head, but I've lost a lot because of how ill, disoriented, and memory-impaired I've become over the past six months, and I think I'd have to be a hell of a masochist to be doing this to myself, you know?

I have been dealing with this same problem I also have bypolar disorder and have been taking the sereoquel for over 7 years now And Almost every night now I seem to get sudden rushes that feel like brain seasures or some type of electrical current surging into my brain.Its not because im bypolar or paranoid is real It sometimes hurts and sometimes i feel like it is actually going to kill me .Im wondering if anyone might have an answer as to what might be happening ?I also drink lots of strong coffee during the day and smoke alot .Im just wondering if sereoquel may be to blame for this .It also only happens when im lying down.Like you i cant go off my meds or i will be awake all the time My bypolar gets so bad when im not on it i go drinking and stay awake for days on end

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