Jump to content
CrazyBoards.org

Sleep Dysphoria


Recommended Posts

I need help. Ever heard of this?

After 9-14 hours of sleep (I've always been a 12-12 sleep hour hypersomniac), during the day I will have these episodes. All of a sudden, after a regular day of energy, I will get extremely tired (in the morning, afternoon, or evening). When getting tired I will get vertigo, increased vasovagal, feelings in my stomach (nausousness), chest (heightened heart rate and trouble breathing) and head (headaches and dissociation). I will be ill-coordinated (can not walk in straight line), extremely fatiqued (can barely keep my eyes open), my legs will feel heavy and weak, and all this will last until I am able to lay down and sleep.

After 1-3 hours of sleep I will be fine. I will wake up just as energized as I was before I fell asleep. But, if I am awakened before "my time" or during one of my sleep episodes, I will have the above symptoms times 10. I call that episode (when awaken too early), episode #2 (which my Neurologist called Vertigo).

But even without the "vertigo" (episode #2), it still revolves around sleep. Sudden uncontrollable sleep, and possibly vegetative sleep.

Note: I've had the sudden sleep spells by itself before (without all those symptoms, I just suddenly fall asleep), as well as I had the stomach/chest/head episodes alone before, without the sudden sleep.

Any takers? Come on! This could be fun.

Twitch

Link to comment
Share on other sites

I have vaguely similar problems (and I see that interestingly, that you are in fact one of the few Provigil patients who actually has something like narcolepsy!).

Though, I never had most of those "panic" symptoms you're talking about... you might want to speak with your pdoc about having a panic disorder. My mother has very similar problems.

Also could be that you're on the wrong stimulant(s) at the wrong dose(s). Those things are powerful. Again, check with your pdoc.

I see you're also on a corticosteroid (Florinef). Those can dork with you psychologically as well as physically. You might want to check w/your prescribing physician about that one.... then again, I have this random hatred of corticosteroids, after I found out that chronic inhaled usage of them is well-correlated with stunted growth in children (I took practically gallons of Flonase spray for years).

Now... I have vertigo too, but not until some virus started munching out parts of my brain 2 years ago... I think that's different from your issue.

So you might want to look into panic disorder, as well as your meds...

Link to comment
Share on other sites

Thank you for your reply herrfous.

I do have Panic, or Panic Disorder. But It's not Panic. It's actually very different from my anxiety and panic. I think the panic symptoms you are looking at are the symptoms that my Neurologist is looking at for Simple Partial Seizures.

As for the Florinef, I was just prescribed that yesturday (although I have had it before, months before for a short trial). So it's definitely not the corticosteroid.

Yeah, my Vertigo takes me back. I've always (since a toddler) had inner ear and throat problems, causing the Vertio and ill-coordination.

And the Provigil is actually a coincidence, haha. I just happen to be on Narcolepsy meds for ADHD, when in retrospect I'm having Narcoleptic symptoms.

And the stimulant, the only stimulant im on is Provigil. For one, Ive been off of it for a week and a half now (problem with the insurance company), and still have these problems. And two, I'm taking Provigil because of just that, its the least abrasive of the stimulants.

Do you think I should see a sleep specialist, or not? I don't want to dig into Tricare to get a refferral when it isn't needed.

Twitch

Link to comment
Share on other sites

Thank you for your reply herrfous.

I do have Panic, or Panic Disorder. But It's not Panic. It's actually very different from my anxiety and panic. I think the panic symptoms you are looking at are the symptoms that my Neurologist is looking at for Simple Partial Seizures.

SPS is also something that is considered, and I'm glad your neuro's looking at that. Also, I think absence seizures share a symptom or two of what you're suffering from.

Do you think I should see a sleep specialist, or not? I don't want to dig into Tricare to get a refferral when it isn't needed.

I wouldn't hesitate to go see one, especially if narcolepsy is an issue. It's possible that some good persuasion by your neurologist to Medicare/aid can make your Tricare approval easier.

I'm supposed to be seeing one, after I go to my GP for the referral. Or, at least I'll be getting the basic study done and giving my soon-to-be Neuro and Pdoc the results. They're interested in finding out how badly (if at all) my sleep centers are damaged.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

×
×
  • Create New...