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Fibromyalgia?


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Ok,

Right now I'm in the proccess of seeing specialists to eliminate any other conditions before I accept my dx of Fibromyalgia.

I fit all of the symptoms except for one. My gdoc told me that once you have it, it stays at a certain level and doesn't get better or worse. My problem is that it seems to be getting worse. Any ideas?

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Ok here is my opinion ,and you can take it as that, BUT WHAT YOUR DOC SAYS WAS COmplete and utter bs. YOu know why I say that, bc my sister has fibromyalgia and so do I, and like her, mine is progressing steadily worse, and my sisters used to be tolerable and now hers is so bad, she can barely do anything...you can have fibromyalgia, and nto have it the same all the time, it can go from good to bad...it took my sister years to do it, only took me a few months to get bad..not as bad as her, but still not great at all.

there is my 2 cents worth.

PERSONALLY i hope you dont have it, i t is a sucky disease, that never leaves you alone..

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  • 2 weeks later...

Ok,

Right now I'm in the proccess of seeing specialists to eliminate any other conditions before I accept my dx of Fibromyalgia.

I fit all of the symptoms except for one. My gdoc told me that once you have it, it stays at a certain level and doesn't get better or worse. My problem is that it seems to be getting worse. Any ideas?

I've heard about other people's doctors saying the same thing. I disagree, and here's why: it can come and go, and in my personal experience, each flare could be better or worse than others. Currently I'm not in a flare, but I know that one day I'll be in one again, and it'll keep happening unless there's ever a cure for it. My rheumatologist's opinion is that it can get better or worse.

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  • 1 year later...
Guest musicnotes99

Fibromialgia can definitely get better or worse. Stress, lifestyle, work can all affect it, or just for no apparent reason at all. I have fibromialgia and so does my mum and we can definitely vouch for the fact it DOES vary in severity. There is still not enough known about it and for years women with Fibromialgia were dismissed as faking it or as having a mental illness. Today it is finally recognized so we need to keep pushing it for research and broadening our knowledge about it.

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  • 4 weeks later...

I think what your doctor said is misleading. I was diagnosed with fibromyalgia in 2004. Originally, it was really difficult to live with and seriously impacted my life. I was biking 5 miles a day and then in a few short months couldn't walk half a mile. However, over time, and through trial and error, I've learned to manage my fibromyalgia and am back on my bike, although I don't do 5 miles a day very often any more. I avoid foods that unsettle my tummy (IBS is often comorbid with fibro and can aggravate it), avoid caffiene, stay active, and try to eat a pretty balanced diet. Sleep hygeine (going to bed and getting up at the same time every day, getting enough sleep) makes a really big difference, although my sleep is currently fubared (thanks, bipolar type II). I also take 50 mg of Ultram once a day, as needed, which can be every day if it's been a bad week or every two weeks (this summer was pretty good).

Has my level of illness increased or decreased? I'd say no. But I've learned how to avoid flares or stop them before they really get going (with Ultram). I had to make huge lifestyle changes and maintain them for several years, though.

Everyone's experience is different, of course. Some people find the discomfort of fibromyalgia itself prohibitive in terms of making lifestyle changes. But this diagnosis is not the end of your life. It can be manageable.

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Wow. I never thought this post would come up again. It's probably a good thing though cause I've since seen the specialists and gone the rounds with PT and other things. I'm trying tai chi and if that doesn't work I'll try accupuncture as a last resort. I tried ultram but it didn't help. It also doesn't help that my mental issues make me lay around a lot.

The pain has consistently been getting worse. I'm so stuffed up with lortab it's not funny. My knees are bad and that's not part of the fibro. My back is especially bad but no cause can be found.

Thanks for the advice

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