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Longest migraine?


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A classic migraine has a prodrome, aura, headache, and postdrome.

I mean, in theory.

The prodrome would be like, you might have physical or mood indications that you are going to have a migraine- you might get moody or restless, you might have GI symptoms, you might get food cravings. You might not have this stage at all.

The aura is usually a visual disturbance, but can be other stuff.

The headache.

The postdrome, which is like the prodrome only after.

I have a few questions:

Is anyone set off by strobes?

Do you get a postdrome?

What is the longest your headache+postdrome has ever been?

I had something tha I think was a "classic" migraine recently but I never get classic migraines so I'm not sure but this is now a "just curious about everyone else" question.

I went to a show that hadd really intense strobes and I used to get set off by flashing lights a lot but not for a long time, but I got a headache following that.

It was pretty bad, but wasn't debilitating or anything and it lasted through to the next evening ish. Then later that night I felt a little nauseated. Then I woke up the next morning SO nauseated that moving was an issue and that lasted most of the day and I wasn't really 100% until the next night.

So.. I mean that's a long time.

But I've read it can last a couple days.

But I'm just wondering, in practice, if peope have experienced this?

K, thanks. :)

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Longest migraine I had was 11 days before I went to the E.R. to get meds.

And the postdrome lasted the last 6 days of that.

And I am VERY set off by strobes. If you're prone to headaches/migraines, intense strobing can set something off with the eyes that triggers the migraine.

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I usually drug up before I get bad otherwise I don't stop vomiting until the pain stops and that can last a while. I remember my mum having migraines for 2-3 days sometimes. She always went to hospital if it lasted that long though so I don't know if it would have lasted longer.

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I don't believe I've ever had a migraine, but I currently have a headache that has been continuous (24/7)for over three months. It varies in intensity, but is never as bad as what friends have told me about their migraines. I went to see my internist the day before yesterday and he wants to try one more treatment with meds to rule out a couple kinds of headaches. If that doesn't work, he will set me up for a Cranial CT scan to look for an aneurysm. As you can imagine, that is really affecting my anxiety problems.

Tommy

edited for spelling

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I've had one last 9 days when I was forced off abilify due to insurance forcing me to have a second drug fail before letting me resume abilify for BP II. I was cross tapering ONTO Seroquel at the time so I don't know what it was, could have been a combination of things. It hurt like forever it felt like. In hindsight I would definitely go to the ER if this repeated.

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Right now I am having Chronic Daily headache, but not all of them are migraine. I have both classic and whatever the other is. I get auras sometimes, but I *always* get prodromes. Any one, or any combination of the following: Odd taste in my mouth; Running into things because I can't judge depth; "Alice in Wonderland" auras; weakness on one side; ataxia; osmophobia, photophobia, nausea, etc. Oh, and often it will affect my language, word finding difficulties, or incorrect syntax.

Including a prodrome, headache, postdrome, that wasn't during this CDH period was 3 day prodrome, 5 day headache, and 5-6 days postdrome. I should have gone to the ER, but DH can't drive.

Very bright light gives me migraines, but I haven't noticed it with strobes. But that sounds more than plausible.

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I currently have a headache that has been continuous (24/7)for over three months. It varies in intensity, but is never as bad as what friends have told me about their migraines. I went to see my internist the day before yesterday and he wants to try one more treatment with meds to rule out a couple kinds of headaches. If that doesn't work, he will set me up for a Cranial CT scan to look for an aneurysm. As you can imagine, that is really affecting my anxiety problem.

Well I really suggest getting a regular X-Ray of your sinuses before the CT. I had a headache that lasted for 4 months. Turned out I had a deviated septum that was pressing on a nerve. It's not common, but it does happen. I can say that Astelin (a nose spray) helped since it made that area kind of numb. Anyway, it's something little that would be best to rule out before dealing with all the CT business.

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My longest migraine lasted 5 weeks, and that was in 2009. It was truly awful.

I get pre-migraine headaches as a warning, and then 30-90 minutes later it's just like someone shoved me head inside a vice and twisted it tight. At this point, I generally start feeling very nauseous and sensitive to light and sound. After the migraine is over (mine have been averaging 7 days in length) I am weak, find it hard to talk coherently or walk. I have no desire to eat or drink anything. If I've taken a lot of fioricet for my headache, it generally chews up my stomach lining and I get a good 2-3 additional days of stomach pain.

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Ugh gizmo, that sounds hellish, I am so sorry. I like fioricet, but I REALLY like it, if you know what I mean, so I can't have it around. It is weird, it is the only prescription drug that I have the urge to abuse.

I don't even want to think about a multi-week migraine, I just hope it never happens to me.

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Is anyone set off by strobes?

no hormonal fluctuations are the aboslute reason for my migraines they ride the moon right along with me ..and significant weather changes will trigger a horrid migraine...like now after a long gloomy season ..when the sun finally returns that is pretty much a given I will have a full blown migraine the first sunny day after this long period of gloom

Do you get a postdrome?

yes but it usually lasts just a few hours and if I drink tons of water it passes easily..when the migraine breaks I am so relieved the prodrome is just a reminder of how much the headache hammered me

What is the longest your headache+postdrome has ever been?

about 3 days for me if I can not break it in 3 days I go in and get what I call knock out pills ..secobarbital ..never narcotics for me I get an old fashioned knock out with secobarbital ..two tablets and sleep for 24 hours

the son I lost lived with absolutely horrific migraines that lasted months sometimes ...his entire puberty was a blurr of pain and prodrome ..I ache just writing this ....he had to be admited one time a picc put in and sedated for a week with DHE, thorazine and toradol to break the cycle ..I have such heartache for what he suffered with those headaches

people who suffer migraines need more empathy and understanding ..when someone tells me "I have never had a headache" all I can think is ..."omg consider yourself entirely blessed!!!"

as an addendum here and may be a matter of interest but the tree pollen triggers so many headaches all my drop ins yesterday at work were having migraines..even with all our rain all the trees are shedding and people seem to be triggered more by trees and mold than any other allergen ..at least in my world ...grass and weeds just are not as bad ..that is why I think the weather turning sunny ..besides the sudden light ..the pollen is high here when it is not raining so that may also be the trigger

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My aura and postdrome, when I get them, are usually mood related - extreme depression or irritablility, not related to a mood episode. Strobes don't bother me, but very bright light will on occasion. The longest migraine I ever had was about a week I think, and it was pretty awful. Fortunately that was a long time ago. I don't tolerate triptans well and get rebound headaches from most other rx meds, so I'm pretty much stuck at this point with caffeine and aspirin, since NSAIDs don't go well with my Li, but for a very bad one I'll take the ibuprofen and cut back on Li for a couple of days, with the approval of my pdoc.

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  • 6 months later...

It looks like I am going to be the unlucky winner of this little contest. I lived for years with undiagnosed migraines and tried unsuccessfully to treat them myself with large doses of NSAIDs. This has unfortunately led to the tendency for my migraines to "transform" into a chronic, mid-range severity condition that can last for weeks to months. Three years ago, at just this time of year a headache started that continued daily for more than nine months, and for which nothing could give me complete relief. Transformed migraine sucks. After the first two weeks of the headache, I went to my PCP thinking that what I had always assumed were tension headaches might be migraines after all- I wanted a script for Imitrex to see if it would help. She wanted an MRI first, especially since I was having more pressure at the base of my skull than I usually did with my headaches. Due to a bad scan and worse read of the MRI I was told that I had a brain tumor and a previous stroke, then told that I didn;t after a second scan leaving me freaked out and totally confused. The Imitrex that I finally received made me sick, but did nothing for my headache. I named that migraine Khan after the character in the Star Trek movie that put those creatures in the guys ear. Nine months, a third MRI, a lumbar puncture and two neurologists later, and Khan went away, I am sure of his own accord, and not because of any of the interventions that we had attempted, which included:

Topamax 100mg twice a day

Klonopin 0.5mg twice a day as needed

Maxalt

tizanidine 2mg tid as needed

percodet 1 tablet as needed

My pain was so chronic that most of the time I stuck with the preventative, only taking out the big guns when Khan really came out to fight. I needed the meds to work when I really needed them to.

Since Khan went away my headaches have slowly gotten better. I went from having 5-6 headaches, to 2-3, to in the last 6 months having weeks when I didn't notice any headaches at all. (That doesn't really mean that I didnt have any- after all, when you live with as many as I do, you learn to ignore the really small ones)

Then this week happened.

On monday I was assigned a job that I really hate. No strobing lights, but a lot of noisy alarms and tracking monitors that have to be watched. I don't have to do this job very often, but when I do, it is a pretty good bet that I will go home with a migraine. Monday was no exception. I didn;t play around with this one, I had to work the next day, so when I went to bed I pulled out the whole arsenal- I took a Maxalt, the tizanidine, and the percocet and hoped to sleep it off.

The headache was still there on Tuesday, but it was worse. Work was not pleasant, but I made it through. That night I took the Tizanidine and a sleeping pill, again hoping to sleep it off- but I had Wednesday off.

Wednesday came, and the headache was still there. I got up and ate. Luckily with this headache I don;t have much nausea, though I am both light and temperature sensitive; at about 12:30 I took a maxalt and a tizanidine and went to bed, hoping to sleep it off.

Two hours later I woke up because the headache was worse. I got up, took the second Maxalt, and called my headache specialist as per my headach plan- I am now at the end of my headache strategies, with no tools left. I of course found out that my neurologist is out of town for the rest of the week. I left a message both for him and the neurologist on call, added a klonopin to the maxalt and went to bed. At 5:30 the on call doc called me back and instructed me to add a percocet and try to sleep it off.

Thursday came and the migraine is still in the background, though not as severe. I get ready for work, only realizing when I go to walk into the building that I am wearing two different shoes. I try to work for a couple of hours before coming home and sleeping for most of the day. I realize that I have slept for far more of the week than I have been awake.

The headache is still lurking- I can only hope that this is all postdrome that I am experiencing now because I have had postdrome like this before. I am really foggy. I really hope that that is the case and that Khan's son is not here for a protracted visit. It is the right time of the year, I just don;'t think that I could take it.

Sorry for the long post

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Eight days. That was when I went to my doctor and said that something needed to change. Before that, I was having migraines literally all the time - I'd have maybe one or two days off and then five days of horrible migraines.

Now I'm on the pizotifen, which works okay-ish, but always poops out when I have my time of month... So a week of horrible pain, then three weeks of moderate pain.

I hate migraines.

N

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ALD, transformed migraine sucks. You have only tried one type of medication as prophylaxis. If you are still having 3 or more days of migraine a month, you should discuss trying something else.

If you are still experiencing transformed migraine, you might want to look into a headache center. If there is one near you, hopefully the waiting list is not very long.

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I just got back from the ER, and as far as I can remember (memory is failing) I've been living with the most brutal headache I've ever experienced for the past 9 days...I'm now on a plethora of drugs imitrex, vicodin, etc which may help. We shall see...

As far as what it felt like:

Imagine your mind going through a cheese grater as every part of your personality is torn apart and your consciousness is divided into a million little pieces...waking up I don't come to and my ego is dispersed. When I do come to, the pain feels like an icepick, live wire, you name it, jabbing through my left eye and brain behind..It (is *still somewhat*) and was the most horrible pain I have ever experienced and I've had chronic pain for years where this comes and goes in intensity. Appendicitis was a joke compared to this pain threshhold, maybe a 5 on my newly formed scale .

Migraines run in my family but my symptoms lead me to believe that I may suffer from cluster headaches which are described medically as the most painful condition a human being can experience. (http://en.wikipedia.org/wiki/Cluster_headaches). I can only hope that the medical field holds some cures for this because it's not called "the suicide headache" sarcastically...Use this for some schadenfreude if you can, everything is relative...

Oh and here's a stream of consciousness writing I wrote during a somewhat medium ranging intensity of this if you're interested:http://existentialraplol.tumblr.com/

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Longest was 4 days, I think, and then I went to urgent care and got a pain meds shot and an anti-nausea shot. Which...while I still had a headache (I always have headaches all the time--not sure why :/), it broke the migraine and I felt a lot better. I don't get post-dromes, I don't think? Not sure.

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Longest aura, about 30 min.

Longest migraine, about 3 days.

That 'bruised" sensation afterwards, longest about 4 days.

I'm down to about one migraine every month or even a little less. Which is very cool.

Looks like I got off easy in this category.

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Having a killer one at the moment, but since I've gone on the pizotifen I have far fewer, now every fortnight or so instead of every two days, and they generally don't last as long. Before, I could have them for six, seven, eight days without relief.

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  • 3 weeks later...

Recently I have been having a lot of success with acupuncture for my migraines. On my first session I went in with a migraine that was over three weeks old, and left migraine free. Yesterday I went in again with a migraine with the same results. I am going to the acupuncturist to be treated for other conditions as well, but it is a major plus that I have found a non-med treatment for migraine.

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  • 3 months later...

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