enlightened_plutonian Posted April 21, 2011 Share Posted April 21, 2011 Hope I've put this in the right place. I put it here because it is a question related to my Seroquel. Basically, I am worried that the pdoc is going to see how I am doing much better (almost no anxiety, no more thought control, and the 'current delusions' were just a figment of his imagination anyway - I've been without any delusions for 12 months) and take me off my meds 'because I am doing better'. Plus now the sedation is at a good level that I can sleep well and get up at a reasonable time. With sleep deprivation being one of my triggers, this is important to me. I'm not addicted or anything, but this is the best I have been in the last 5 years, and all of my friends have noticed a positive difference. And I do not believe in coincidence. There has to be something in that I am improving on the meds, which is why I do not want to stop them just yet. Timing and all that... My appointment is in 2 weeks time. I didn't think at my last appointment to ask if he intended to keep me on meds long term or short term. Which I know was stupid of me. I'm worried because the thought control might come back if I come off my meds, and that was the underlying problem I needed and wanted help with. Plus the permanent fear of having another psychotic episode and the consequences of that, which will be a massive fear if my thought control comes back. Any input / personal experience is greatly appreciated. Hope this made sense. Thank you in advance. - enlightened_plutonian Link to comment Share on other sites More sharing options...
notfred Posted April 21, 2011 Share Posted April 21, 2011 Sounds like you are a lifer so I doubt anyone will take you off meds. It is the meds that are **suppressing** the voices. Take them away and the voices come back. Your doc knows this. nf Link to comment Share on other sites More sharing options...
Calypte Posted April 21, 2011 Share Posted April 21, 2011 Why would your pdoc take you off meds that are working so well? It sounds like you've only been doing well for a very short period of time, and when it comes to psychosis, I think most docs would want to keep you on the meds for a long, long time -- perhaps indefinitely. Everyone I know of that has been through a psychotic episode has been advised to keep taking the meds for years after all the symptoms had been brought under control. Link to comment Share on other sites More sharing options...
tryp Posted April 21, 2011 Share Posted April 21, 2011 It seems unlikely that a pdoc would take you off meds because you're doing better. that's the end goal of meds, right? Link to comment Share on other sites More sharing options...
mynameisiforgot Posted April 21, 2011 Share Posted April 21, 2011 We only ever stop meds if they aren't working so I would doubt it that your doc would want you to stop the Seroquel. Link to comment Share on other sites More sharing options...
Guest Vapourware Posted April 22, 2011 Share Posted April 22, 2011 Was there talk by your doctor to take you off meds at any stage? From the sounds of your situation, I think it would be pretty unwise for that to happen because it seems like you really need the meds. I think it's a good idea to be honest with your pdoc about your concerns and thoughts with regards to the Seroquel being helpful and perhaps work through your concerns. Link to comment Share on other sites More sharing options...
enlightened_plutonian Posted April 22, 2011 Author Share Posted April 22, 2011 Thanks all for replying. One of the reasons I have this concern is my past experience. I used to a few years ago be on an AD (can't actually remember which one, it was years ago) which I had no (or very little that I couldn't see it) improvement. My depression stayed constant until I changed my circumstances and got myself a stable tenancy. My psychosis was pretty bad for much of this time, but I didn't know back then what was happening to me, I thought I was hallucinating because of the meds and had never had a delusion. I still didn't see my most recent delusions until 6 months or so after coming out of the episode. But some time down the line, I now see things differently. I've gone a bit off topic but what I intended to say is that at that time they wanted me to stay on the meds because I wasn't improving so needed them for longer. Now, however, with me being more honest about my experiences (I didn't think the thought control was that significant, until it got so annoying that I didn't care if there was no way out I just wanted help) I believe I was put on a more appropriate medication (Seroquel). And I believe that I need to stay on this. I have noticed improvements, that I mentioned earlier, within the first few days. And my understanding is that people don't stay on meds when they are well. I stayed on the past AD for over 2 years, because I wasn't improving so they must have thought that I still needed it. So the opposite must be true. If a med has made me well then do I really need to take it long term, or just until I've had a short spell of wellness?? I know that I was stupid for not mentioning this question at my last appointment. I know it was an important question to ask. But it was my first appointment with this pdoc (I'd walked out on all the previous ones for accusing me of making things up or controlling my thoughts whilst I was in the appointment) and I was running on adrenalin, plus also unable to believe that there was help available for what I was experiencing. Hope that made sense. Link to comment Share on other sites More sharing options...
Arise111 Posted April 23, 2011 Share Posted April 23, 2011 If your just starting to feel better than I all the more reason to stay on the Seroquel. If your pdoc notices that which I'm sure s/he has, than I highly doubt you'll come off the medication. Link to comment Share on other sites More sharing options...
jt07 Posted April 23, 2011 Share Posted April 23, 2011 And my understanding is that people don't stay on meds when they are well. Your understanding is incorrect. There is a difference between being made well (cured) and having the disease well controlled by medication. At the present time, a lot of mental illness cannot be cured. In fact most mental illness cannot be cured. Only MI that responds to therapy and coping strategies can possibly be said to be cured, and even then, the MI is never really said to be cured but in remission. There is no medicine that cures mental illness. So your pdoc will keep you on the medicine that is working for you. Don't worry. Link to comment Share on other sites More sharing options...
bpladybug Posted April 23, 2011 Share Posted April 23, 2011 I agree with everyone, your doctor is not going to stop your meds now that you are stable. This is a medication success story. Don't be anxious about this. Link to comment Share on other sites More sharing options...
klingon001 Posted April 24, 2011 Share Posted April 24, 2011 ... Link to comment Share on other sites More sharing options...
enlightened_plutonian Posted May 5, 2011 Author Share Posted May 5, 2011 Update:- Thanks all for all your replies. I saw my pdoc today and he is happy with my progress. And he says I should stay on my Seroquel. So sorry for being all anxious and stuff. Link to comment Share on other sites More sharing options...
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