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anenome

Desperate for help, Out of Resources, Can ANYONE help/advise?

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Sorry to interupt anything, but I don't know where else to turn. I need advise and I need it FAST! Let me give you the rundown:

Disorders: Schizoaffective (bipolar type 1 mixed); Panic Disorder; ADD; Severe Social Phobia; Acute Anxiety; Severe Agoraphobia; Severe depression Now); Chronic Pain Disorder; severe obstructive sleep apnea; severe EDS/Narcolepsy; late stage hypothyroidism; high blood pressure...and more I'm sure...

Meds currently on (some for decades): Geodon 80 mgs daily; Prozac 80 mgs daily; Clonazepam 6 mgs daily; Neurontin 1200 mgs daily; Adderall 60 mgs daily; Oxycontin 80 mgs daily; Oxycodone 45 mgs daily; Baclofet 75 mgs daily; Lisinopril 25 mgs daily (blood pressure); Synthroid 75 mcgs daily; and some misc.; antibiotics, etc.

Income: Was a writer/designer for about 25 years, applied for disability in 2006 and was turned down but in appeal (as of today, it's still in appeal for back pay). Attorney advised to apply a second time and was given immediately last year, and considered 'lifelong' chronic disorders, but only $1,000 per month. I also took Indiana Medicaid and Food Stamps.

Story 1: I have had no luck with shrinks in a couple years and fired my last one about a year ago. My doctor has been keeping me up on my meds including pain specialist, sleep disorder specialist. But for a year now, I have been trying to find a competent shrink that takes medicaid...but have had no luck. Last two shrinks I saw...one in May 2011, and one in Oct. 2011, both said my conditions were 'too acute' and didn't have the resources etc. to treat me. They also said (and I agree from experience) that my conditions are too acute for places like behavioral clinics and stress centers (been to both several times). And they weren't the first to say maybe the only option left is ECT because I have tried every (or most) anti-psychotics and anti-depressants, and mood stabilizers with no luck.

I only had some luck with Geodon (which I take now), but I've gained about 50 pds and the paranoia and phobias are still strong. Abilify helped some, but gained weight, was maxed out and they took me off it.

No luck with anti-depressants.

Part 2: Because I had lost all hope for disability long ago, when I finally got it last year, I was in such bad shape (I was hospitalized 3 times in 5 months before and after I began getting it.

Indiana medicaid sent me a letter a couple weeks ago saying I should have reported that income. Stupid me!! I figured...disability, both federal/state run; knew situation, etc. I thought it would automatically be known by state government, but I guess not.

So, they immediately, without warning, cut my food stamps from $200 per month to $50 per month, and the biggie; they cut my medicaid and gave me a spend down of $300 per month before they provide anything.

I immediately appealed it, but nothing has been set yet.

The Problem and hope for advise: About 8 months ago, I was pretty much homeless, but came across a so-called 'friend' I knew since grade school. Known her over 35 years. She was informed of the situation, and gave me an offer I couldn't refuse..I had no other choice. (Keep in mind, we are just friends, not lovers or anything like that). After a couple months of talking, she made an offer of: I move to Lebanon, In close to her and she would be my provider until I could get the mental and physical help I needed and was stable...including help cleaning, finances, pay my bills, laundry etc. (I can no longer do daily tasks), and all I would have to do is find and establish a rapport with a shrink, therapist, doctors etc. I warned her it might take several months in my condition, she said 'quit worrying about it'...so I put my trust in her.

She took everything I made including food stamps and medicaid covering everything except a $36 monthly copay for meds and found an apartment, got me set up etc. and budgeted everything so I would end up with about $150 to $200 per month left over (on good months), but after about 2 weeks of me getting in the apartment she bailed on me and won't have anything to do with me. And with my disorders, I can't do it all myself. I have also had two unsuccessful back surgeries and my pain specialist wants me to see another specialist for a third surgery.

I can't do it. (Don't forget I have extreme agoraphobia; social and socio phobia (fear of public places as well as people in general). So I rarely go outside unless I have to.

But with these cuts medicaid did to me, instead of just $36 per month for meds, I have to pay everything until the first $300 is paid. I DON'T have it! Like I said, I barely have $150 to $200 left per month and much of that is for emergencies like: higher utility bills depending on season etc., other meds; food that the $200 per month food stamps wouldn't take care of (yes, it's next to impossible to live off of $50 for a 7 day week of groceries, especially when you can't make it to the grocery store and you just live off frozen overpriced shit from the 24 hour CVS pharmacy across the street).

So with this new spend down and cut in food stamps, I figured at minimum, I would end up at least $75+ in the hole every month. I can't afford two of my meds let alone 13!

I live very cheaply. I don't have a phone, I don't have cable TV, no entertainment except the computer (which is my only way of contact with society).

I have exactly 30 days of meds left, still no shrink, I've tried every resource I can come up with and I'm at a dead end.

I still need part time live in help...I go a month+ without a shower or brushing; I have no clothes; I don't have a washer or dryer; I don't even have broom or vacuum cleaner...shit, I don't even have a bed...I sleep on the couch.

I am waiting for replies from my last two possible resources. A social worker/case manager, and because of everything else, I going to try to find a psychologist I can talk to and maybe he can pull some strings.

Does anyone have any suggestions? Is it possible to go to another country as a visitor and get proper medical treatment without losing my disability? Is there a law or exception for people like me to get this spend-down reversed? ANYTHING!!!????

I'm so sorry to take up your time, but I just have absolutely nowhere else to turn and I'm afraid I'm just going to end up being another statistic in a very short amount of time. A mentally ill nobody living on the street. I won't last two months. I am not street wise. I was decades ago, but not anymore.

Again, I'm so sorry to bother you, I just don't know what else to do.

Any suggestions would help and I thank you in advance...sincerely.

Steve

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I'm really sorry that you are in a bad spot. I know how it is as I'm almost there myself.

You have to pay the first $300, and this occurs just once a year, right? I would say that this constitutes an emergency. The case worker should also be able to help you. You can also try consulting with legal aid about your options. There are patient assistance programs by the drug companies which can help you get the drugs you need for little or no cost. That's how I get my Abilify since I don't have insurance. There is a website, but I forget what it is called. I hope somebody who knows will come along. As a last resort, if you go off your meds and end up in the hospital, they should help you find a way to get your meds. Generally, they won't discharge you unless they have assured your continued care.

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I second trying to get your meds through the drug companies. I get Pristiq, Lamictal and Abilify through them. There is no cost.

I understand where you're coming from. I've been hospitalized 5 times, 3 times this year, within a 2 month period. I've tried tons of meds. I had to have ECT when I was 21. It's very discouraging.

jt07, is the website called bridgestoaccess.com?

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jt07, is the website called bridgestoaccess.com?

That could be one site, but there is another one that has all the prescription help available on one site. Ok, I found it over at the crazymeds site. Here it is:

www.needymeds.org

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Another thing you might check out, anenome. In TN we have something called CoverRX. (I believe it's just TN but I may be wrong). It covers a bunch of different meds for a low co-pay (like $4 or something). Maybe your state has something similar to that.

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Another thing you might check out, anenome. In TN we have something called CoverRX. (I believe it's just TN but I may be wrong). It covers a bunch of different meds for a low co-pay (like $4 or something). Maybe your state has something similar to that.

Do you have to be on TennCare for that? I've been struggling to get meds for over ten years and this is the first I've heard of it.

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Nope. I was on SSI for my mental stuff for 4 years. My husband started making more (of course, not enough to afford insurance) and I lost my SSI and TennCare. I got approved for CoverRX a few months ago. You just print off an application and send it in. I think it takes about 2 weeks. http://www.covertn.gov/web/cover_rx.html

It doesn't cover everything, but it covers a lot.

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Get a roll of quarters and start making phone calls to every governmental agency, EVERY, agency: call your local food banks and temporary housing authorities. Call all the churches in your town and ask what possible assistance they can offer.

In exchange for food and assistance volunteer your time and expertise. Use your coping skills to get around panic, anxiety, and agoraphobia.

Remember, that just because you are in dire straights no one owes you anything. Take/make the initiative and you might find that a few hours volunteer work each week will not only turn your life around, but it might just shake the belief that you seem to be clutching tightly that there is some kind of "elite" conspiracy that keeps you downtrodden and in debt.

Good luck.

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