saoirse Posted March 14, 2012 Share Posted March 14, 2012 (edited) This may be a long shot, but does anyone else here have some form of hypersomnia? I have idiopathic hypersomnia, which I know is fairly rare.... Anyway, just wondering how you deal with it, how it affects your mental health, etc. Edited March 14, 2012 by saoirse Link to comment Share on other sites More sharing options...
lavender fairy Posted March 15, 2012 Share Posted March 15, 2012 I have hypersomnia where I sleep 10-12 hours a night and still feel exhausted through the day. Pdoc says it's a part of my depression and put me on Wellbutrin to help combat it. Link to comment Share on other sites More sharing options...
Kodos Posted March 15, 2012 Share Posted March 15, 2012 Provigil could be your new best friend. And get your thyroid checked (HST level). Link to comment Share on other sites More sharing options...
saoirse Posted March 15, 2012 Author Share Posted March 15, 2012 Nuvigil made me manic. Or at least I think it did, with the combination of Prozac (I can't tell which one it was). I'm thinking of trying it again because I'm desperate. I went to the Mayo Clinic and they checked everything. Other than my mood disorder, there is nothing "wrong" with me. I'm just persistently exhausted no matter how much sleep I get. Lavender fairy, I hope that the Wellbutrin helps you It helps me a bit. Link to comment Share on other sites More sharing options...
Guest Recluse Posted March 15, 2012 Share Posted March 15, 2012 Oh god. Hypersomnia is the bane of my existence lately. It's a vicious cycle that seems to come and go, and if I give into it, it gets even worse. In my case, it's usually my own fault that the cycle starts in the first place, but once it starts, it's hard to stop it. Here's how it starts, for me: I'll stay up late, then go to bed late, then get up early, then feel tired. I'll take my meds, and feel even more tired. Then I go take a nap that lasts eight or ten hours...and when I wake up, all I want to go is go back to bed...so I do. I'll always set an alarm, and tell myself 'I'll get up when it goes off', but when it goes off, just keep hitting snooze...over, and over, and over again, which means that the rest isn't really productive, so I stay tired and sleepy, and then take my meds again, and go through the whole thing again. Sleeping too much also makes my depression worse, which means I'm even more likely to stay in bed. When I get angry enough at myself to fix the problem, I'll go exercise or something to get myself out of the house. Getting enough sunlight helps too. Not only does it improve mood, it will reset your circadian rhythm. Link to comment Share on other sites More sharing options...
harleyhuny Posted March 16, 2012 Share Posted March 16, 2012 I have similar issues..I stay up late until i'm just to tried and have to sleep. If I go to bed to early then I lay there and my mind races. I try not to sleep to late usually up by 9:00am..never nap during the day, but always tired, fatigued, but when it comes to going to bed I'm wide awake and the cycle goes every night. I take ambein but it works sloooooowly on me..Seroquel (bad reaction)..trazadone, amtriptyline, zyprexa nothing..So I feel like a roller coaster Link to comment Share on other sites More sharing options...
melissaw72 Posted April 21, 2012 Share Posted April 21, 2012 Has your DR ever considered narcolepsy? Link to comment Share on other sites More sharing options...
saoirse Posted April 21, 2012 Author Share Posted April 21, 2012 Yes, I was tested for narcolepsy. I don't have it. They ruled out pretty much everything. Link to comment Share on other sites More sharing options...
notfred Posted April 21, 2012 Share Posted April 21, 2012 Have you had a sleep study ? Hypersomnia is a common symptom of sleep apnea. Link to comment Share on other sites More sharing options...
saoirse Posted April 21, 2012 Author Share Posted April 21, 2012 Yes, I had two sleep studies done. They were puzzled by the results because all that's wrong with me physically is extreme fatigue for no reason. Even had my meds switched around and all. Link to comment Share on other sites More sharing options...
lavender fairy Posted April 21, 2012 Share Posted April 21, 2012 I'm still on the Wellbutrin, but it hasn't helped my hypersomnia much. My sleep specialist is considering putting me on Provigil. I'm a little concerned having read reports of hypomania on it. saorise, it sounds like you've been thoroughly checked out, but lot of medical conditions like fibromyalgia, Chronic Fatigue Syndrome, thyroid issues, and auto-immune conditions could cause hypersomnia. Link to comment Share on other sites More sharing options...
melissaw72 Posted April 22, 2012 Share Posted April 22, 2012 My Dr is thinking maybe he might try me on a stimulant like dexedrine, ritalin, etc, from that class of meds. Not sure if it will work, but I see him in 2 weeks when we'll discuss it. Link to comment Share on other sites More sharing options...
saoirse Posted April 22, 2012 Author Share Posted April 22, 2012 I'm still on the Wellbutrin, but it hasn't helped my hypersomnia much. My sleep specialist is considering putting me on Provigil. I'm a little concerned having read reports of hypomania on it. saorise, it sounds like you've been thoroughly checked out, but lot of medical conditions like fibromyalgia, Chronic Fatigue Syndrome, thyroid issues, and auto-immune conditions could cause hypersomnia. Yes, Provigil is like a slightly weaker version of Nuvigil, I think. Nuvigil made me nuts. I've heard of reports of mania/hypomania on Provigil, too, but of course that doesn't mean you'll go manic on it, as it's different for everyone. I had my thyroid thoroughly checked, and I don't have any other symptoms of fibromyalgia, but I was also wondering about possible auto-immune issues that could be causing this. It has to be SOMETHING, right? It's just baffling/frustrating. I don't want to be on a stimulant for the rest of my life. My Dr is thinking maybe he might try me on a stimulant like dexedrine, ritalin, etc, from that class of meds. Not sure if it will work, but I see him in 2 weeks when we'll discuss it. I was on Ritalin and it worked for a while, but then I developed a tolerance. I'm going to pick up my first Adderall prescription tomorrow. I hope you find something that works for you! Link to comment Share on other sites More sharing options...
notfred Posted April 22, 2012 Share Posted April 22, 2012 Depression and atypical depression are causes of hypersomnia, it seems like you have ruled out physical causes. Link to comment Share on other sites More sharing options...
melissaw72 Posted April 25, 2012 Share Posted April 25, 2012 I'm still on the Wellbutrin, but it hasn't helped my hypersomnia much. My sleep specialist is considering putting me on Provigil. I'm a little concerned having read reports of hypomania on it. saorise, it sounds like you've been thoroughly checked out, but lot of medical conditions like fibromyalgia, Chronic Fatigue Syndrome, thyroid issues, and auto-immune conditions could cause hypersomnia. Yes, Provigil is like a slightly weaker version of Nuvigil, I think. Nuvigil made me nuts. I've heard of reports of mania/hypomania on Provigil, too, but of course that doesn't mean you'll go manic on it, as it's different for everyone. I had my thyroid thoroughly checked, and I don't have any other symptoms of fibromyalgia, but I was also wondering about possible auto-immune issues that could be causing this. It has to be SOMETHING, right? It's just baffling/frustrating. I don't want to be on a stimulant for the rest of my life. My Dr is thinking maybe he might try me on a stimulant like dexedrine, ritalin, etc, from that class of meds. Not sure if it will work, but I see him in 2 weeks when we'll discuss it. I was on Ritalin and it worked for a while, but then I developed a tolerance. I'm going to pick up my first Adderall prescription tomorrow. I hope you find something that works for you! Thanks! Me too. Link to comment Share on other sites More sharing options...
miss clean Posted April 25, 2012 Share Posted April 25, 2012 I am NOT depressed but I have to have 12 hours of sleep per night. If I could just get by on 8 hours I would have more time to read. I am taking trazadone, effexor, fanapt, levothyroxin,amlodipine, and as needed I am taking clonozapem and vistaril. I do feel rested up after two cups of coffee. Does anyone else have to have 12 hours of sleep a night? Link to comment Share on other sites More sharing options...
xxyercutexx Posted May 7, 2012 Share Posted May 7, 2012 I have this too! I know I do not have anything physically wrong with me. I think for me, it is depression, racing thoughts before bed and vivid and lucid dreaming the ENTIRE night non stop every single night. Do you dream often? I wake up feeling exhausted, like I have been up all night because my mind hadn't "shut off" at all. Link to comment Share on other sites More sharing options...
melissaw72 Posted May 7, 2012 Share Posted May 7, 2012 I have this too! I know I do not have anything physically wrong with me. I think for me, it is depression, racing thoughts before bed and vivid and lucid dreaming the ENTIRE night non stop every single night. Do you dream often? I wake up feeling exhausted, like I have been up all night because my mind hadn't "shut off" at all. I dream all the time. I can wake up, coming out of a dream; I can fall asleep and instantly dream. Only times I don't dream are when I am sleeping lightly enough. Idk your Dx, but when schizoaffective, REM sleep is affected and you go into it much faster. Link to comment Share on other sites More sharing options...
chesteroo Posted May 14, 2012 Share Posted May 14, 2012 I grew up feeling tired. Lots of great thoughts, but never really got anything done. Endomorph at the gym and had to push myself for years to change my body shape once in showbiz. Alcoholic who found DRUGS that speeded me up and almost died thirty years ago. Sobered up and led and incredibly interesting life, including breaking into show business in my forties. Six years ago, MD prescribed pain meds and boom. Then my forty five year old wife died in 361 days. I had been given suboxone to counteract a percocet problem and he refused to take me off while she was sick. After her death I spiralled down and was ingesting insane amounts of coffee to stay awake and teach, even though I adore what I do. I am now alone, and yes, probably depressed. The Psychiatrist then gave me 250 mg of nuvigil to combat my fatigue and caffeine addiction and overnight it blasted away a fifty year old social anxiety disorder. I was making eye contact for the first time anywhere (other than the stage or in class). I became overly loquacious, which I thought was great, swam every day, had a sensual life for the first time. It was nirvana, until it got cold and the nuvigil made me hypersenstitive to cold. I treated that with space heaters. The suboxone finally rewired itself and I no longer could take it and went into withdrawal. The shrink gave me a huge dose of seraquel to replace the 3 mg of xanax and 2 mgs of prosom he gave me to unwind and sleep. It was through close friends that I found out that I was manic. I also lost sixty five pounds because I started getting messages that I was full and the pain of arthritis got better! Bottom line, I withdrew from the suboxone, but went to a detox anyway because they said I had post withdrawal shock syndrome: tardive dyskinesia, palsy, taste perversion, tinnitus, etc etc. At the detox, there was no drug in my system, save the benzos I am prescribed and no suboxone. I discovered on my own the seraquel was causing all my symptoms including severe abdominal pain, bloat and sour taste. I left, detoxed from it, went back to the nuvigil because I was so weak and the xanax and prosom. All the symptoms went away except for the abdominal. I have been checked and have a significant "gastritis". The nuvigil lasts for a couple of hours only and I want off. I have reduced the benzos from 3mg of xanax and 1 1/2 mg of prosom to 1 1/2 and 1 respectively. I am wondering if anyone out there knows the best way to get off the nuvigil. I have taken 3/4 of a 250 mg pill for three days, and should I keep going, shaving off the night meds at the same time, or wait. I get depressed when my tongue tastes like acid, which happened again six weeks ago, so I gargle with salt and Hydrogen peroxide, and I have a bowling ball in my belly and Im bloated up 15 lbs and only eat at night lying down. I dont have mood swings, other than how I feel about my physical situation. It only goes away when I am prone. The nuvigil, the drug I thought was the savior of my life, made all my friends and relatives say, "what's wrong with you". I was high! And I am fatigued now almost all the time except throughout mornings. I can hardly keep the house clean. Yes, I live alone now and I am a caretaker and lost the person I caretook, but I have a really decent woman friend now, but she is long distance and I cannot dump all this on her. So thanks for listening. I was simply interested to find a detox schedule for nuvigil, xanax and prosom. Ill take the lethargy, and no one ever died of not sleeping, I just dont want to get seizures. And though Im 63, and fatigued, I can still drop and give you fifty. Maybe Im depressed and its landed in my guts???? Link to comment Share on other sites More sharing options...
melissaw72 Posted May 23, 2012 Share Posted May 23, 2012 My DR (neuro) is putting me on Nuvigil for the sleepiness during the day. I am praying it works, but still am waiting for the prior auth to go through to get the med. If it works I'll post it. Link to comment Share on other sites More sharing options...
anross12345 Posted January 10, 2014 Share Posted January 10, 2014 I am having the same types of issues. I sleep for 16-20 hours every day and my sleep study + MSLT showed nothing abnormal. Stimulants seemed to wake me up physically by not cognitively. I had some odd reactions to Adderall, Riddlin, and Vyvanse including aggression, limb twitching, and insomnia. Provigil and Nuvigil caused me to end up in the ER because my whole left arm went numb and I had tunnel vision. The only thing that seemed to help was Biaxin (clarithromycin) which is an antibiotic that has been shown to reverse hypersomnia (study by sleep specialist Dr. Rye). I tried this and it worked for three months wonderfully but it stopped working. My dreams are extremely vivid and I can wake up and fall back into where I left off in the dream. I also have sensitivity to light. excessive urination, acne, randomly flushed skin, and blurry vision. All of these things were not present before I started sleep excessively.  All of my many tests have come back normal and I have exhausted all medications (stimulants, anti-depressants, hormonal pills, etc).  Is anyone else on Prozac? I'm thinking there may be a connection between Prozac and Hypersomnia. I'm beginning to taper off the Prozac to see if it helps. Link to comment Share on other sites More sharing options...
melissaw72 Posted January 10, 2014 Share Posted January 10, 2014 I'm on Prozac, and haven't ever had any problems with hypersomnia. I am on a lot of meds now in addition to prozac, but when I first started prozac in 1991, it was the only medication I was on. And it didn't give me any problems with sleep. Have you been tested for narcolepsy? Link to comment Share on other sites More sharing options...
Savannah Posted January 11, 2014 Share Posted January 11, 2014 I take Provigil. It has never made me manic. The sleep dr wanted me to take a type of sleep study where they keep you over night and during the following day. They let you lay down several times during the next day and record how fast you fall asleep and your brain activites. I didnt have the money for the test though. Â My pdoc says it could be narcelpsy, but either way the treatment is the same. I quit working a year ago, and it happens a lot less now. I do take a scheduled late morning nap though. Link to comment Share on other sites More sharing options...
melissaw72 Posted January 11, 2014 Share Posted January 11, 2014 Provigil is what saved me. Without it all I do is eat and sleep. I can't hold my eyes open for very long at any given point. If I can, I am lucky that day. But now I only need a couple naps during the day and I am doing a lot better. I hope you start to feel better soon. Link to comment Share on other sites More sharing options...
radicalfeminist Posted January 11, 2014 Share Posted January 11, 2014  I also have sensitivity to light. excessive urination, acne, randomly flushed skin, and blurry vision. All of these things were not present before I started sleep excessively.  i have all of these symptoms minus acne.  i have a horrible problem with daytime sleepiness/exhaustion/fatigue. lots of blood tests - never any indication of a physical problem. pdoc and general clinic docs just brush it off so its hard to get it taken seriously. some days its worse than others - but its extreme fatigue - i don't always fall asleep and i certainly take more than 5 minutes to fully fall asleep. i'll just be struggling to keep my eyes open most of the time and i often feel sort of like i'm half asleep. i hate it so much. it worsens my concentration and motivation. i'm sure it worsens my binge eating too. Link to comment Share on other sites More sharing options...
Tea & Sympathy Posted February 8, 2014 Share Posted February 8, 2014 I have this so bad right now, I hate it so much  I'm worried I may have Chronic Fatigue, M.E. or something as it seems really bad to the point where when out i can barely keep my eyes open.  GP blames my Propranalol & depression & refuses to do anything. I can't live like this again, It's worse than how I was last year  Pdoc wont give me Adderal & things like that for some reason (any ideas?)  Anyone know anything that helps? Kinda desperate :/ Link to comment Share on other sites More sharing options...
CeremonyNewOrder Posted February 8, 2014 Share Posted February 8, 2014 Maybe check your thyroid. That can lead to fatigue. Link to comment Share on other sites More sharing options...
melissaw72 Posted February 9, 2014 Share Posted February 9, 2014 I have this so bad right now, I hate it so much  I'm worried I may have Chronic Fatigue, M.E. or something as it seems really bad to the point where when out i can barely keep my eyes open.  GP blames my Propranalol & depression & refuses to do anything. I can't live like this again, It's worse than how I was last year  Pdoc wont give me Adderal & things like that for some reason (any ideas?)  Anyone know anything that helps? Kinda desperate :/  Have you had a sleep study? Link to comment Share on other sites More sharing options...
Tea & Sympathy Posted February 9, 2014 Share Posted February 9, 2014  I have this so bad right now, I hate it so much  I'm worried I may have Chronic Fatigue, M.E. or something as it seems really bad to the point where when out i can barely keep my eyes open.  GP blames my Propranalol & depression & refuses to do anything. I can't live like this again, It's worse than how I was last year  Pdoc wont give me Adderal & things like that for some reason (any ideas?)  Anyone know anything that helps? Kinda desperate :/  Have you had a sleep study?   All my bloods have come back normal, my thyroid is too :/  I'm not sure how to get referred for one, my GP seems reluctant to admit there's a problem Link to comment Share on other sites More sharing options...
melissaw72 Posted February 9, 2014 Share Posted February 9, 2014  I'm not sure how to get referred for one, my GP seems reluctant to admit there's a problem  My neurologist was the one to have the sleep study done. Link to comment Share on other sites More sharing options...
lavender fairy Posted February 10, 2014 Share Posted February 10, 2014 My Gp referred me to a sleep specalist who ordered the sleep study. You could always ask your GP for a referral if she doesn't come up with it on her own. If she continues to blow you off, it may be time to find a new GP.  For the record, in addition to my MI diagnoses, I have fibromyalgia, graves diesease, and sleep apnea. Link to comment Share on other sites More sharing options...
ejensen1324 Posted March 5, 2014 Share Posted March 5, 2014 (edited)  I had my thyroid thoroughly checked, and I don't have any other symptoms of fibromyalgia, but I was also wondering about possible auto-immune issues that could be causing this. It has to be SOMETHING, right? It's just baffling/frustrating. I don't want to be on a stimulant for the rest of my life.  OH MY GOODNESS. My thoughts exactly. I'm on provigil, after having a sleep study done and being diagnosed with stupid "hypersomnia" because they have no real reason what's going on.  <--- sums it up perfectly.  I'm having a 2nd opinion in April to see what they think. My thyroid levels are all normal. I do have some sort of iron deficiency anemia, but I've been taking supplements for about a year now with no improvement. SOOO I'm thinking that's not the reason either.   EDIT: I work at a job where I sit in a cubical all day-- great place to fall asleep and nap during the day! (and also get fired potentially if caught...) Edited March 5, 2014 by ejensen1324 Link to comment Share on other sites More sharing options...
melissaw72 Posted March 6, 2014 Share Posted March 6, 2014 ejensen ... have you ever been diagnosed with narcolepsy? I have that, and am on a fairly high dose of provigil at the moment. I know you are on provigil now which doesn't help much, but maybe your DR can increase the dose? Link to comment Share on other sites More sharing options...
ejensen1324 Posted March 12, 2014 Share Posted March 12, 2014 ejensen ... have you ever been diagnosed with narcolepsy? I have that, and am on a fairly high dose of provigil at the moment. I know you are on provigil now which doesn't help much, but maybe your DR can increase the dose?  I took 2 different sleep studies--- both gave me no results (save for minor restless leg syndrome). They were looking into it, as well as sleep apnea... but the tests showed otherwise. Link to comment Share on other sites More sharing options...
lavender fairy Posted March 12, 2014 Share Posted March 12, 2014 I tried provigil for a while. it woudl keep me up, but leave me absolutely exhausted, and then I would sleep for days. My ndoc and I agreed that it wasn't a good idea. Link to comment Share on other sites More sharing options...
melissaw72 Posted March 12, 2014 Share Posted March 12, 2014  ejensen ... have you ever been diagnosed with narcolepsy? I have that, and am on a fairly high dose of provigil at the moment. I know you are on provigil now which doesn't help much, but maybe your DR can increase the dose?  I took 2 different sleep studies--- both gave me no results (save for minor restless leg syndrome). They were looking into it, as well as sleep apnea... but the tests showed otherwise.   You can be diagnosed with narcolepsy without the sleep study coming out positive for it, at least that was how it was done with me. He tested me in other areas, kept sleep charts for 2-3 months, described what things were like, how I was affected day-to-day, etc ... everything else he based his diagnosis on. It took over a year to diagnose ... so he was observing me and having me do things for awhile. Link to comment Share on other sites More sharing options...
mtlmec Posted March 16, 2014 Share Posted March 16, 2014 (edited) Six years ago I had a stroke, since then my life has not been the same. I was not phyiscally affected by the stroke (if you look at me, you would never think I had had a stroke). The stroke completely fried my short term memory, destroyed my concentration (I can't concentrate on anything for than a few minutes, kinda like ADD), and affected my attention (I search for words when talking, in a conversation I commonly ask "what was I talking about", I get up and can't remember why I got up). The stroke messed up my speach (it took me a year at a center to speack well again), and it also gave me epilepsy (which is under control with Lamictal). But the symptom that I find the most difficult is sleeping or wanting to sleep all the time. I sleep around around 15 hours per day, and then I'm still tired. Using alarms to wake up doesn't work. The Philharmonic could be in my room and I wouldn't be able to hear them, I'm in such a deep, deep sleep. Waking up is such an ordeal for me, it feels like I am glued to my bed. During tha day I walk around like all I want to do is to sleep. I feel tired always. My mother calls me sleeping beauty.  My Neurologist gave me dexedrine  (which didn't do anything at all), Ritalin (which gave me a very little pick me up during the day, but I had to stop it because it causes strokes), Modafinil (Provigil) (which helped my attention problem, but did absolutely nothing for the my sleep and tiredness problems). I could take a bottle full of provigil and still fall asleep. My neurologist thinks I'm just lazy and don't have anything to do (I am on disability), which upsets me off because it's not true. Is there anything that can help me sleep a normal eight hours and help me with the tiredness during the day? Any comments would be much appreciated.  Meds -- Plavix (a blood thinner to keep me from having another stroke), Lamictal (for my epilepsy), Welbuttrin (for depression) and Provigil (I for my sleep problem. I doesn't work). Edited March 16, 2014 by mtlmec Link to comment Share on other sites More sharing options...
melissaw72 Posted March 16, 2014 Share Posted March 16, 2014 Six years ago I had a stroke, since then my life has not been the same. I was not phyiscally affected by the stroke (if you look at me, you would never think I had had a stroke). The stroke completely fried my short term memory, destroyed my concentration (I can't concentrate on anything for than a few minutes, kinda like ADD), and affected my attention (I search for words when talking, in a conversation I commonly ask "what was I talking about", I get up and can't remember why I got up). The stroke messed up my speach (it took me a year at a center to speack well again), and it also gave me epilepsy (which is under control with Lamictal). But the symptom that I find the most difficult is sleeping or wanting to sleep all the time. I sleep around around 15 hours per day, and then I'm still tired. Using alarms to wake up doesn't work. The Philharmonic could be in my room and I wouldn't be able to hear them, I'm in such a deep, deep sleep. Waking up is such an ordeal for me, it feels like I am glued to my bed. During tha day I walk around like all I want to do is to sleep. I feel tired always. My mother calls me sleeping beauty.  My Neurologist gave me dexedrine  (which didn't do anything at all), Ritalin (which gave me a very little pick me up during the day, but I had to stop it because it causes strokes), Modafinil (Provigil) (which helped my attention problem, but did absolutely nothing for the my sleep and tiredness problems). I could take a bottle full of provigil and still fall asleep. My neurologist thinks I'm just lazy and don't have anything to do (I am on disability), which upsets me off because it's not true. Is there anything that can help me sleep a normal eight hours and help me with the tiredness during the day? Any comments would be much appreciated.  Meds -- Plavix (a blood thinner to keep me from having another stroke), Lamictal (for my epilepsy), Welbuttrin (for depression) and Provigil (I for my sleep problem. I doesn't work).  Have you had your thyroid levels checked? That can sometimes mess with your metabolism if the levels are off.  Also, the other thing that comes to mind is maybe it is the epilepsy? If you google "too much sleep epilepsy" there are links there that might help/guide you in the right direction. Link to comment Share on other sites More sharing options...
Equivilency Posted March 20, 2014 Share Posted March 20, 2014 I have this bad lately. I've had 2 sleep studies in the past so I don't really want to waste money on a third try. I don't know if its my meds or what but it takes me about 14 hrs of sleep just to feel rested.. I wake up through the night too! My docs trying me on wellbutrin but its not helping the sleepiness at all.. Link to comment Share on other sites More sharing options...
lavender fairy Posted March 20, 2014 Share Posted March 20, 2014 My sleepiness has recently gotten better with a drastic increase in my thyroid meds. I found a new GP who has practically doubled my thyroid meds, and I find that I am able to wake up after about 10 hours of sleep with some coffee. Before this increase, nothing helped. I had tried Welbutrin, Effexor, Provigil, and even had sleep studies done to properly titrate my CPAP machine. Link to comment Share on other sites More sharing options...
crtclms Posted April 13, 2014 Share Posted April 13, 2014 I had a sleep study done in my 20s. The dx was primary insomnia. Which makes sense, since I have had it since I started elementary school. In reality, don't know if the insomnia completely stands alone, or is some sort of prodrome for BP illness. Â Nothing has really worked for me. And with the headaches, it is really hard to set up a bedtime routine. Link to comment Share on other sites More sharing options...
mtlmec Posted April 14, 2014 Share Posted April 14, 2014 Six years ago I had a stroke, since then my life has not been the same. I was not phyiscally affected by the stroke (if you look at me, you would never think I had had a stroke). The stroke completely fried my short term memory, destroyed my concentration (I can't concentrate on anything for than a few minutes, kinda like ADD), and affected my attention (I search for words when talking, in a conversation I commonly ask "what was I talking about", I get up and can't remember why I got up). The stroke messed up my speach (it took me a year at a center to speack well again), and it also gave me epilepsy (which is under control with Lamictal). But the symptom that I find the most difficult is sleeping or wanting to sleep all the time. I sleep around around 15 hours per day, and then I'm still tired. Using alarms to wake up doesn't work. The Philharmonic could be in my room and I wouldn't be able to hear them, I'm in such a deep, deep sleep. Waking up is such an ordeal for me, it feels like I am glued to my bed. During tha day I walk around like all I want to do is to sleep. I feel tired always. My mother calls me sleeping beauty.  My Neurologist gave me dexedrine  (which didn't do anything at all), Ritalin (which gave me a very little pick me up during the day, but I had to stop it because it causes strokes), Modafinil (Provigil) (which helped my attention problem, but did absolutely nothing for the my sleep and tiredness problems). I could take a bottle full of provigil and still fall asleep. My neurologist thinks I'm just lazy and don't have anything to do (I am on disability), which upsets me off because it's not true. Is there anything that can help me sleep a normal eight hours and help me with the tiredness during the day? Any comments would be much appreciated.  Meds -- Plavix (a blood thinner to keep me from having another stroke), Lamictal (for my epilepsy), Welbuttrin (for depression) and Provigil (I for my sleep problem. I doesn't work). Looks like I hadn't given Modafinil (Provigil) enough time to work. My neurologist doubled the dose (I now take 400mg per day), and finally it's working. Not only is it helping me with my chronic fatigue, it has improved my memory, my concentration, basically anything having to do with my brain (now I understand why they call modafinil a smartdrug, a wonderdrug). I understand why students take it before exams.  But I have a problem that I think is related to the modafinil I'm taking.  In matter of a few weeks, I've developed gynecomastia, otherwise known as "man boobs". My breasts now look like woman's breats--they've grown and gotten cone-like in shape, the mamary (milk producing) glands have become inflamed and they are very sensitive and painful if touched. If they keep growing, I will  be able to produce milk (yes, men have all the equipment needed to produce milk, it's just the balance between estrogen and testosterone that keeps it from happening). I told my doctor that it must be the modafinil, because nothing has changed in my diet and my medication regimen except the addition of modafinil.. He has ordered blood tests to check my prolactin, estrogen, and testosterone levels.  It's embarrassing. I can't even wear a t-shirt, it's that noticeable. It's just happened so quickly. It's gotten me depressed because I don't know what to do. I've checked all over the internet, and modafinil is not listed as one of the many medications that cause this. There was just one post in a bodybuilding forum from a guy that was taking modafinil and developed gynecomastia.  Have any of the men on this forum who have taken or are taking modafinil (Provigil/Alertec) encountered this side effect?  Your input is much appreciated. Link to comment Share on other sites More sharing options...
Recommended Posts