Epilepsy Information and Support Sites

[AirMarshall]

This is a starter. I promise I'll update it after my next appointment. 

Feel free to recommend reliable sites that have helped you.

Cheers,

AirMarshall

[Maddy]

Here are some links I like and use alot:

http://www.emedicine...URO/topic74.htm

I have alot more that I'll add later.

Edited November 19, 2009 by sorrel
remove broken links

[Penny Century]

This site is also good... somewhere inbetween emedicine and epilepsy.org in it the amount of depth it goes into

http://www.epilepsy.com/

and here is the link to the National Institutes of Health information page on epilepsy

http://www.ninds.nih.gov/disorders/epilepsy/epilepsy.htm

Edited January 8, 2006 by Penny Century

[Maddy]

Here is a link to a very comprehensive list of seizure types from epilepsy.org.

Maddy.

[Maddy]

Here are some more sites that may be of interest to some of you:

http://www.ilae-epilepsy.org/

http://professionals.epilepsy.com/homepage/index.html

http://www.pni.org/neuropsychiatry/seizures/

http://www.nlm.nih.gov/medlineplus/epilepsy.html

Just thought I would update this while I was thinking about it.

Haven't done so in a while.

Hope it helps someone out there.

[Maddy]

Very in-depth information on SUDEP (Full-text article with charts and graphs):

EEG and ECG in Sudden Unexplained Death in Epilepsy

Here is the PDF:

http://www.blackwell-synergy.com/doi/pdf/1...80.2004.05503.x

Here is the Table of Contents for the Issue that I got the article from:

Epilepsia, April 2004 - Vol. 45 Issue 4 Page 301-400 -- Table of Contents

There are many free full text articles available for viewing. Granted, the material is somewhat dated, but it may be of some help to someone.

[toronto_girl]

I know there are some Canadians on the site (quite a few as I found out recently).

When I was first diagnosed with Epilepsy I used this site:

http://www.epilepsy.ca/

(They talk about SUDEP, research, medications, treatment options, support groups etc.)

And yes, it is bilingual.

It also has a list of Canadian Treatment Centres ACross Canada (This is really helpful!)

http://epilepsy.ca/eng/left_menu/moreinfo.html#anchor138618

And incase no one has already mentionned it: this is the link for the wonderful Epilepsy Foundation (both US & CAN) They do some terrific works for people like us.

www.epilepsyfoundation.org

[BangBangSami]

I don't know if this would be the right place to ask, but I suffer from Pseudo-seizures, which is obviously not epilepsy. Would any of you happen to have and places where I can find more info?TIA .