Thread I didnt start that was broken off from another thread so the person who did it could pontificate on a topic that had nothing to do with me

[mellifluous]

i didn't start this thread, it was started from a post i made. now that i'm more stable i am not ok with having had my name attached to what was given as the title to this thread.  i did NOT select that title and i'm especially not ok with having it attributed to me.

 

my question WAS: i'm diagnosed with schizophrenia, but from perusal notice most posting in this section are diagnosed with schizoaffectvie or bp1. is it the case that most here are not diagnosed with schizophrenia?

 

thank you.

Edited August 11, 2015 by mellifluous
Because it's about time

[mellifluous]

soz on lack of clarity. i just mean more is there anyone else like me, basically.  which, not to say...hmmm.  be eloquent, self....

 

ok, so yeah i'm aware of schizoaffective etc and criteria (and friend who started this account with me, actually, is, well was for years diagnosed schizoaffective bipolar subtype....then managed to get that switched to bp1 with psychotic features and formal thought disorder which is impressive but essentially same thing

 

that's irrelevant.  

 

my point is, yes, aware of various diagnostic criteria and "spectrum" notion of psychotic disorders and voerlap and soforth.  query is more personally motivated in a "am i alone diagnostically, technically" one.

 

does that make sense?

[cfranco92]

I define myself as being schizophrenic and not schizoaffective because I suffer heavily from the positive and negative symptoms of the schizo in my illness. I did the transition from major depression to bipolar 1 to bipolar 1 w/ psychotic features to SZA bipolar type, so I am feel very familiar with my illness. I feel very much that SZA is a part of schizophrenia and when people are uneducated about our illness I explain it to them in that fashion. 

 

I know what being bipolar feels like. What I feel like now is totally different.

[mellifluous]

uh...i'm confused.  did i start a thread on this? fuckmeman...i totally don't remember oing that..though...tha's not really saying anything.

 

i's just more interested in simllitude...not really, like...definitng identity

[mellifluous]

ok, yeah...i'm not saying my identity=schizophrenic.  i's more just lik....f..i need a translatr as must not e making sense. damn

 

but yeah i'mnot wantings to define identity...i'm certain i didn't ... that quesitno wouldn't be something i'd be able to do as a diagnositc criteria thing...

 

i was more asking: is anyoneelse ...

 

diagnosed same

 

in fact, epsecially when in the midst i react rather hostlilye to poeple reducing me to ath particular diagnosis and wasn't

 

i'll try to find someone i know who can maybe make sense of what i was originally asking as from replies...i'm notthat person right now at least

[gewgly]

Mellifluous,  I think I know what you are asking. Correct me if I'm wrong--I know you will!     The titling of this thread is definitely misleading and doesn't really tie into your question at all. You are stating in your first post that you notice that there aren't a lot of people who have identified themselves as schizophrenics here (from what you've seen). You've mostly seen members who have identified selves as schizoaffective  or with other disorders. 

 

What you're asking  is  if there are other people here who are primarily diagnosed with things other than schizophrenia--that include psychotic features.  You are NOT saying that your identity = schizophrenia.  As evidenced by the question in your first post:

 

so, just as a question (andnot a criticism of course), are there others or are folks here primarily navigating other diagnoses that include psychotic features?

 

and in your second post:

 

ok, so yeah i'm aware of schizoaffective etc and criteria (and friend who started this account with me, actually, is, well was for years diagnosed schizoaffective bipolar subtype....then managed to get that switched to bp1 with psychotic features and formal thought disorder which is impressive but essentially same thing...my point is, yes, aware of various diagnostic criteria and "spectrum" notion of psychotic disorders and voerlap and soforth.  query is more personally motivated in a "am i alone diagnostically, technically" one.

 

Am I totally off the mark with your question?

[mellifluous]

whew. yes,that's it.  cheers. x

[puddle of fire]

I think I understand the question, NOT, lol. I'm diagnosed with schizotypal personality disorder on the spectrum. I often feel alone on here as many schizophrenics either disappear or get banned.

I keep trying to find people like me on here. Maybe we are similar, I don't know...I'm medicated and my psychosis went bye-bye. Now they think I have bipolar NOS so I take lamictal. Life is boring without psychosis. I'm so stable I could scream.

Hope you find people like you on here melifluous. I can't seem to LOL but I keep trying.

[melissaw72]

I think I understand the question, NOT, lol. I'm diagnosed with schizotypal personality disorder on the spectrum. I often feel alone on here as many schizophrenics either disappear or get banned.

I keep trying to find people like me on here. Maybe we are similar, I don't know...I'm medicated and my psychosis went bye-bye. Now they think I have bipolar NOS so I take lamictal. Life is boring without psychosis. I'm so stable I could scream.

Hope you find people like you on here melifluous. I can't seem to LOL but I keep trying.

 

Here?  On CB?

[Anna]

I think I do understand the difference.   I have had periods of EXTREME psychosis.   EXTREME, we are talking just as fabulously weird as any schizophrenic could come up with, and I can get paranoid as FUCK.  Forget people talking about me, my family are trying to kill me.

That said, I think one of the toughest parts of schizophrenia are the negative symptoms.   I don't get that at all, I am really freaking lucky.  When I'm not psychotic due to mood (in either direction), when I'm considered "stable", I don't have negative symptoms at all.    And I CANNOT imagine what that is like to deal with, I have absolutely no experience with that.

So I can understand someone saying "woah, I wish there were more schizophrenics for me to talk to,  I'd really like that."   Because there is a part of schizophrenia that I can sympathize with, and try to understand, but empathize with, no I can't.   Because I haven't experienced that reality.

The good news, OP, is that we do have some members with that dx, and hopefully they will chime in and/or otherwise reach out.

Best,

Anna

[Hadeharia]

Aside from the mood component, I don't think that there's a whole lot that separates SZ from SZA. SZA has a better prognosis, but there are people with severe SZA who function worse than people with mild SZ. A lot of people with SZA have negative symptoms, so I don't think that negative symptoms separates the two disorders.

 

I'm a bit confused by this thread, but I've never felt like I couldn't relate to the psychotic symptoms of the people here who are diagnosed with SZA. The only thing that I have a hard time relating to is mania and hypomania, and that's simply because I've never been manic or hypomanic.

Edited April 2, 2013 by Hadeharia

[LordoftheMonkeys]

Schizoaffective disorder is a form of schizophrenia, so a person who is schizoaffective could be considered schizophrenic.  I think schizoaffective disorder accounts for about a third of schizophrenia cases, so it's relatively common.  I'm not sure if most of the people here are diagnosed with psychotic disorders other than schizophrenia, but I've noticed a lot more people with SZA in their signatures than SZ.

[LordoftheMonkeys]

I've always been curious as to why SZA is generally seen as one with a better prognosis. I've seen it quoted in numerous literature, but I'm yet to find out why this is so. If someone has a link to a relevant study, I'd really appreciate it. 

 

Sometimes doctors discriminate between SZ and SZA based on how pervasive the symptoms are.  To be diagnosed as schizophrenic, you have to have a continuous mind disturbance for at least six months, whereas a diagnosis of schizoaffective disorder only requires two weeks of psychotic symptoms.  So yes, schizoaffective people have a better prognosis than schizophrenic people based on those criteria, because they are not psychotic all the time.

[puddle of fire]

Okay, maybe they don't get banned more. Point taken. But I think they tend to disappear (I've talked to a few briefly) more.

I can only guess it's because they feel so much different than the schizoaffective crew because they have constant psychosis.

I'm sure my post will be criticized (another reason I feel people with SZ don't hang around). We just don't make all that much sense and tend to not care about that either. We speak a different language.

Where did melifluous go anyways? heh

dx: Bipolar NOS, schizotypal personality disorder, c-ptsd, GAD

meds: risperdal 3mg, klonopin 2mg PRN, lamictal 100mg

[y58]

I'm SZ and I don't post often, not because of psychosis, but because of lack of motivation and asociality and apathy (negative symptoms)

Edited April 2, 2013 by y58

[Guest]

This is not a contest.  Maybe some reading would help.  I found an interesting article on medscape.  You'll need an account to read the article but getting one isn't a big deal, they're free.  Once you have an account, go to http://www.medscape.org/viewarticle/585155 and read the article on Understanding the "Diagnostic Challenges of Schizophrenia Versus Schizoaffective Disorder."

 

I understand wanting to connect with others that have your same diagnosis.  However, you will find that a lot of people around here have had their diagnosis change.  Getting a diagnosis 100% correct is difficult. The thing to concentrate on is taking your meds and treating the symptoms.  I've never been much on labels.  I'm more inclined to want to treat the symptoms and get me as stable as possible.  You can call it SZA, SZ, BP with psychosis, or anything else you want.  The important thing is doing everything you can to get and remain stable.

[Ahndou]

I think that the major obstacle is that there are many ways to be psychotic, so as such you have a bunch of psychotic people together not really identifying with one another, and silently thinking that the others don't belong.

[enlightened_plutonian]

I don't have sz but I tend to relate a lot to some of the experiences so if I can help in any way then I will likely post. The way I see it is that the psychotic symptoms are the same whatever the diagnosis, and what makes the diagnoses different from each other is things like the other symptoms and how all the symptoms appear. So there is a lot of crossover.

 

I know I am not making much sense. I am trying to explain it simply.

[mellifluous]

Maybe I'm reading too much into this but I feel that people are downplaying SZA.

 

TL;DR: SZA is a form of SZ, stop making it out like it's not.

 

so is that why eyou toos a question i'd asked in a different theread in a time of distress and makde it all about something your wanted to talk about? becauzse i never said any such theing and as someone noted agove, i get that i'm nowt always comprehensible, bhuth i will disagree somehat and say at times ti does bother me.  but ostly i jst dislike being mistcharacterized whcih is pretty muchws status quo but din't expects it here.

 

sadly, QED, i was in eorror ...or my expectations were.

unsure if anothere sugested it was but i sure as hell didn't. 

 

i shudder to think what thats "prize" would look like

 

no thinaks

 

This is not a contest.  

[confused]

There does seem to be more people with other psychotic disorders than with sz posting.  At least for me dx can be fluid, mine changed from bp1 to sza but I think a different pdoc might have another opinion?  I post here mostly about thought symptoms and on the bp board for mood symptoms, but actually my biggest issue now is anxiety.

[mellifluous]

that maskes sense.  ialso the person who mentioned neative sympstoms...those are a bitch

 

has youre diagsnosis chnagend a lot?

 

mine didnt for ages, but ten more recently there's been a question and i'm resistant

 

but mosty because my dearest had the schizoafective (until he pushed for recategoriaztion) and it was just hell.

 

There does seem to be more people with other psychotic disorders than with sz posting.  At least for me dx can be fluid, mine changed from bp1 to sza but I think a different pdoc might have another opinion?  I post here mostly about thought symptoms and on the bp board for mood symptoms, but actually my biggest issue now is anxiety.

[confused]

I don't know that it changed a lot, but it has changed over time.  It took awhile to get the bp dx after I had a psychotic break and adding a mood stabilizer made a world of difference.  Then when I had psychotic symptoms without a mood component well over a month it got switched to sza, That was in 2006 and it's stayed the same since then. 

[mellifluous]

interesting

 

so they'd chalked up your bipolar symptoms to variations on psychosis beforest that?

[confused]

yeah like maybe it was depression with psychosis or a brief psychotic episode.  But, then I complained of too many thoughts.  I couldn't explain it well but he thought it was racing thoughts which I guess it was and when I took depakote my mind got quiet and I could think.

[mellifluous]

i thought i wrote this part but apparently only in my head.

 

i do get what you mean about shiftibng diagnoses.

 

i was firstg diagnosed paranoid schizophrenic, becausae they kinda caught me early in the epiisode

 

then another time i got smacked with disorganized schiziophrenia because caught later when i'm full on formal thoougth disorder

 

and then for some number of years now it's been "undifferentiated" because i have all three major "positive' symptoms but very little negative ones--i would contend none really but clozaril iws the devil...bu that's just me.

 

anyway i just wanted to note taht mine has changed,t oo.  not recently and my whole freak out recenrtly that they'ssuddenly thinking i'd developed something in addition to contend with was ..prolly me just being overly copncerned with nothinb...but, yeah...i've been given different subtypes within the schizphrenia diagnosis so maybe that's kinda similar to you switching from bp1 with pscyhotic features to schizoaffective? i don't know, but seems analogous at least.

 

cheers

 

There does seem to be more people with other psychotic disorders than with sz posting.  At least for me dx can be fluid, mine changed from bp1 to sza but I think a different pdoc might have another opinion?  I post here mostly about thought symptoms and on the bp board for mood symptoms, but actually my biggest issue now is anxiety.

[Clarice]

I have SZ and have never been able to make more than a few posts on any board. I'm one of the people who disappear for long periods of time and then, when people don't remember me, I give up and disappear for good. But that's just me. Also this place is nicer than most boards, so I might stickc around.

[MrTastybutt]

I have schizophrenia.  I went through being labled many things.  Here's how it went for me:

 

situational depression

depression

depression with psychotic features

bipolar (WTH?)

BPD (because I used to cut, maybe?)

undifferentiated schizophrenia

schizophrenia

 

That was only in a few years.

The motivation is a problem.  A big problem.  Time is too.

[mellifluous]

tasty...this ttjreda being tcfreatred FORme..to  uwnj  me   askign if there was anyoe eose diagnosed tie my same diagnosis...only  gtet told who ..read th e post...like..ero proplr str like.."Me"....

 

,,most just indvalidated my question to find otehrs with mgt daingsos aas klegitimate...aslmost susggeionst ip', prejuiced or something..i felt soo unssllcome

 

so  i ,might as wellactuly gteto say why:  i had just finished 17 roudns of ECT to stop the  psoychosis that nothing would touch and...i lost a of time from before due toes=pschosis..and frok the ECT.. i was conufised and feeling alone.

 

 

ECT is more often done fior mood than psychosis.

 

i was lookikgn to see if anyone in teh "ostensible sz" section..had had ECT...and was like me. a  lto o sza set it...ive' ,kknown several..inclindingthe person i started this account with.  

 

i dodn't knonw anyone who, for sz alone..had it

 

my memory was fucked i had two monthts of egative symptoms

 

i think "that' why i stayed at all..not only was i herb  became oouldn't handle being elsewhere (my dear SZA freind i atarted this account with, he completed in may 2011...it was hard to go elsewhere.

 

im just psotiig  theis because...thwi reqly fuming suckked...I enjoy so many opeopel here now...inclludiding some on theis thread.. adnd i have made misgtabess.adn can crfetgaijnly fOi

 

but thiw thread is bascaly evil to me. not a shred of "we care about your situation at all"...and more a....:"you are in the minority..don't fuck with us by asking questions that are about SZ.;legit or no...or we will SHAME YOU."

 

yeh.I HTAT THIS FUCKNGIN THREAD

 

chers.x

Edited September 2, 2013 by mellifluous