butwhythough Posted July 31, 2013 Share Posted July 31, 2013 I've been on trileptal for 4-5 years. I just recently realized that it's doing nothing for me except cause me to become really stupid, twitch, feel extremely restless, constantly exhausted, have muscle weakness/twitching in my legs, and generally just feel awful. Up until the beginning of this year, I was on 300mg a day. My pdoc upped it to 450mg a day a month later, than a few months after that upped it all the way to 900mg. It did nothing but make me feel absolutely TERRIBLE, and really angry/depressed. Before I could go back and say it wasn't working for me, my pdoc "fired me". Said I had an eating disorder and couldn't see me any longer. Within the following month, I lowered it down to 600mg. Down to 750mg, then after half the month went by lowered it to 600mg. I stayed on 600mg for about 3 months. But 3 weeks ago (which would be the end of that 3 months) I decided to try and go off it completely. Took my last 150mg dose this morning. So my question is.. is 3 weeks too fast to ween off 600mg of trileptal? I still don't feel 100% better and I have read a lot of scary things about withdrawal, problems with sodium levels due to withdrawal, seizures, etc. Link to comment Share on other sites More sharing options...
butwhythough Posted July 31, 2013 Author Share Posted July 31, 2013 Also I started trileptal when I was 14 (19 now)... Could the fact that I've been on it so long from an early age mean the "mental foggyness" or stupidity last forever? It usually got better and was only really bad when my dosage was upped a few different times but this year it hasn't seemed to get better at all... I feel like my IQ )& cognitive ability has been hindered. I've started to have strange headaches in only certain parts of my head as well which I'm going to a neurologist about next week.... Link to comment Share on other sites More sharing options...
Velvet Elvis Posted July 31, 2013 Share Posted July 31, 2013 We really can't help you if you're not working with a physician. That said, in addition to mood disorder symptoms returning, you increase your seizure threshold by a coming off an AC too quickly. I don't know and can't say what "too quickly" is but you need to be careful and possibly consider consulting with a general practitioner to make sure you do this safely. Link to comment Share on other sites More sharing options...
Forbidden91 Posted July 31, 2013 Share Posted July 31, 2013 Find another psychiatrist as soon as possible. And hopefully he gave you refills, if you are taking it for a seizure disorder. Link to comment Share on other sites More sharing options...
butwhythough Posted July 31, 2013 Author Share Posted July 31, 2013 I'm seeing a new one on August 19th. It's for a mood disorder and I'm getting new medications when I go to this pdoc. My concern isn't about the mood symptoms returning though, it's about the other things I stated. Link to comment Share on other sites More sharing options...
crtclms Posted July 31, 2013 Share Posted July 31, 2013 You'll have to consult a physician as to whether or not you are titrating down safely. The mental fogginess won't last forever. You're not concerned about your mood symptoms returning? Why not? Link to comment Share on other sites More sharing options...
butwhythough Posted August 2, 2013 Author Share Posted August 2, 2013 (edited) -Post deleted- Edited August 9, 2013 by butwhythough Link to comment Share on other sites More sharing options...
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