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Wonderful Cheese,

I think you should really talk to your pdoc and ask about clozapine. It's high time. I was similarly messed up when I was on Zyprexa. I hear in the US it is treated as a last line of attack against psychosis but my own doc gives it out quite liberally. My doc is luckily an absolutely brilliant doctor and he is very aggressive against mental illness of any kind be it depression bipolar or psychosis. I wish your pdoc would wake up and treat you similarly and with seriousness. 

EDIT:-Don't take anything I said the wrong way. If anything disturbs you just ignore it. I am just trying to help.

Edited by the maze runner

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54 minutes ago, the maze runner said:

Wonderful Cheese,

I think you should really talk to your pdoc and ask about clozapine. It's high time. I was similarly messed up when I was on Zyprexa. I hear in the US it is treated as a last line of attack against psychosis but my own doc gives it out quite liberally. My doc is luckily an absolutely brilliant doctor and he is very aggressive against mental illness of any kind be it depression bipolar or psychosis. I wish your pdoc would wake up and treat you similarly and with seriousness. 

EDIT:-Don't take anything I said the wrong way. If anything disturbs you just ignore it. I am just trying to help.

I believe @Wonderful.Cheese Has already tried clozaril at significant doses?

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On 9/18/2020 at 12:06 AM, the maze runner said:

Oh ok. In that case being frank with the pdoc would be the wisest thing to do.

Thanks for the suggestion. I appreciate it. I'll take any help I can get. So I thank you.

On 9/18/2020 at 12:00 AM, Iceberg said:

I believe @Wonderful.Cheese Has already tried clozaril at significant doses?

Yes. It's true. I do wonder about how my clozaril trial was handled but that's a whole different story. 

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6 hours ago, Wonderful.Cheese said:

Thanks for the suggestion. I appreciate it. I'll take any help I can get. So I thank you.

Yes. It's true. I do wonder about how my clozaril trial was handled but that's a whole different story. 

Clozaril has been my most effective single med. my parents described it as “making me a whole new person.” Took me awhile to get there as (for some reason I. Can’t imagine) they are reluctant to start teenagers on cloz. It’s helped, but it is also a fucking pain in the ass to manage.

with regular bloodwork and dealing with the REMS, the fact that it is somewhat slow so we have often overshot dosing changes, the sedation and hypersomnia it is easy to imagine why the dropout rate is so high and that many docs are probably botching the trial 

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3 hours ago, Iceberg said:

Clozaril has been my most effective single med. my parents described it as “making me a whole new person.” Took me awhile to get there as (for some reason I. Can’t imagine) they are reluctant to start teenagers on cloz. It’s helped, but it is also a fucking pain in the ass to manage.

with regular bloodwork and dealing with the REMS, the fact that it is somewhat slow so we have often overshot dosing changes, the sedation and hypersomnia it is easy to imagine why the dropout rate is so high and that many docs are probably botching the trial 

I don't know what I would do without Clozapine. All the blood work, REMS, frequent pdoc appointments, its all worth it. 

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4 hours ago, Butterflykisses said:

I don't know what I would do without Clozapine. All the blood work, REMS, frequent pdoc appointments, its all worth it. 

 Just curious if you get excessive sedation and weight gain? Clozapine works really well for my symptoms but I can't take the side effects and will probably discontinue it soon which is scary because I've basically tried everything. 

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8 hours ago, CeremonyNewOrder said:

 Just curious if you get excessive sedation and weight gain? Clozapine works really well for my symptoms but I can't take the side effects and will probably discontinue it soon which is scary because I've basically tried everything. 

I only get sedation when I take my bedtime dose. I take 25mg in the morning and 300mg at night. The bedtime dose will put me to sleep within 1-2 hours. I don't really have day time sedation, surprisingly. I have had a large weight gain from it, and it is HARD to lose the weight. But, when weighing the pros and cons, clozapine's benefits will keep me on it. I have tried everything as well, it stinks. I think the med closest to it is Zyprexa...? Not to sure but that would be my second choice, if God forbid I had to get off of Clozapine.

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