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66 year old woman committed suicide after Invega Sustenna?


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I have been forced to take Invega Sustenna for almost a year and am now trying to deal with its horrible side effects after having stopped it 3 months ago. I have been searching online for more information about coming off this drug and have found this:

https://www.mediguard.org/medication...invegasustenna

Look for a poster name Sukilena Quin. She posted complaining about Invega Sustenna side effects, about how it is similar to latex poisoning, and suicide. That post was from 2012.

This is an article I found that happened just earlier this year:

http://blogs.sfweekly.com/thesnitch/..._quin_fire.php

A 66 year old woman by the name of Sukilena Quin from San Fransico was killed in an apartment fire set by herself.

I did a bit more digging and found that this was indeed her.



I am scared. I am also going through some really nasty side effects of this horrible drug and I am losing hope.

 

What do you guys think about the death? Think it was related to the medication she was on and that she could no longer take it anymore?

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I'm really sorry you're still struggling so hard with this, but I'd imagine that pretty much every psych med has any number of suicides blamed on it. I don't think anyone can confirm whether it was the med or not. Have you spoken to your doctor about how much you're continuing to suffer?

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People generally don't commit suicide by setting fire to their apartment. My guess would be that she was in the middle of a psychotic episode when she set fire to her apartment. I doubt that Invega Sustena caused this, but of course, I'm not a doctor.

 

Edit: Hagar is correct. Many psychiatric drugs are blamed for suicides never minding the fact that we who take them are all crazy.

Edited by jt07
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I'm tired of hearing fear mongering about Invega on this site. If you don't like getting an injection then be med-compliant and work with your doctor on finding an appropriate medication. And stop reading anti-psychiatry loony propaganda. Invega has personally helped me and in combination with other meds has kept me from being suicidal.

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I don't know, most of what she seems to have posted are little more than crazed ramblings (Latex poisening?). I think jt is probably right. She probably set the fire in a psychotic state rather than to commit suicide.

 

"...Where did the gay community come from if not the chicken egg industry?" - That's from her blog. 

 

ETA: Also, is it really likely that the depot form of Invega is so much worse than the tablets? It's the same thing, just the depot is given against people's will, and a lot of those people are prone to paranoia. I think if you forcibly inject a paranoid person with anything, even a placebo, they will have all kinds of terrible effects. 

Edited by mcjimjam
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I'm tired of hearing fear mongering about Invega on this site. If you don't like getting an injection then be med-compliant and work with your doctor on finding an appropriate medication. And stop reading anti-psychiatry loony propaganda. Invega has personally helped me and in combination with other meds has kept me from being suicidal.

 

I don't think Narshe means to be fear mongering.. Narshe is himself afraid and has obviously been searching EVERYWHERE for answers to his problems. Narshe is looking for support like the rest of us.

 

 

 

"...Where did the gay community come from if not the chicken egg industry?" - That's from her blog. 

Narshe, maybe this lady had a few more issues than just the Invega? I hope you start feeling better soon.

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The funny thing is was when I was admitted to the hospital for my psychosis I was compliant with meds. I took everything they gave me there. Once I was released and was out on CTO (Community Treatment Order), I had to start seeing a pdoc on a regular basis. The first appointment there they said that because I wasn't compliant (wtf) so they had to give me Invega Sustenna. I tried to explain to them that I hated needles, always have, and that I would rather just take the pills. They didn't want to hear any of it. I could not prove that I was compliant and ended up having gotten 10 of those injections.

 

I am not making any of this up. I had a brief psychotic episode and thought that antipsychotics were going to help me. The pdoc only told me that it may cause Tardive Dyskinesia in a small percentage of people. That was the only thing he told me was the side effects. I then learned a few weeks after my first injection that it wasn't the truth and now I have a long list of side effects. I explained to my pdoc after every month before my injection that I was feeling worse. He finally let me off the injection 3 months ago.

 

I am glad that Invega worked for you. You took the pill form, I would assume. I guess it's just not for everyone because I cannot live like this and have never suffered this much before in my life. I am not even going to get into details on how close I was to end it while having to feel like this.

 

It is not fear mongering when it happens to you. 

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Ok This is messed up. I just found out just now after having searched her name online and found her facebook. She is on my facebook friendlist for some reason. I have added more than 1000 people on my facebook friendlist and forgot how I met them all. I think it's because she's into Buddhism which is why I have her on my list....!

 

RIP Sukilena... 

 

Also I have been reading her posts on her facebook account and I think you guys are right. I think she was dealing with more than just Invega Sustenna. Her posts are pretty out there... I think she was in a bad place mentally when it all happened.

 

She posted stuff like these:

"SALT IV causes the hysteria around me: this is the name of a TREATY LEFT ON OUR MOON BY ONE OR MORE GOVERNMENTS STARTING WITH THE AMERICAN, "USA". Treaty had to do with extra-terrestrial remains linked to those from all our planets CLONING LABS"

 

 

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Yeah, she sounds like she was quite ill. I honestly feel pretty bad that we are posting her words from facebook and her blog on this site though. She wasn't stable at the time, and now that she's dead, she can't defend herself. 

 

Anyway, I'm sorry Narshe that you experienced so many side effects and felt/were coerced into taking Invega Sustenna. Do you take anything now?

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Yeah, she sounds like she was quite ill. I honestly feel pretty bad that we are posting her words from facebook and her blog on this site though. She wasn't stable at the time, and now that she's dead, she can't defend herself. 

 

Anyway, I'm sorry Narshe that you experienced so many side effects and felt/were coerced into taking Invega Sustenna. Do you take anything now?

 

Thanks Parapluie,

 

Right now I am supposed to be taking 30mg of Mirtazapine per night, but I haven't been doing that. I was reading up on SSRI and its long term side effects and got scared and stopped it after 3 days. My pdoc still prescribe them to me but he doesn't know that I haven't been taking the antidepressant. This is because I have also read from many others that antidepressants will not do anything for neuroleptic induced anhedonia.

 

I realize that I may have been a bit too pessimistic about my recovery and have been looking into too many horror stories about Invega Sustenna for my own good. It's just really difficult right now for me to be logical, feeling the way I am feeling now. It just has been a really difficult year for me. I have been living like this for an entire year now.

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I'm sorry to hear you are suffering so much. There are a lot of people here that can relate to your symptoms. Feel free to post in the schizophrenia board about your problems as well, as some people may be able to chime in about what has helped them.

 

You know, anhedonia is actually a symptom of schizophrenia. It's a well known negative symptom, I do believe. So, this anhedonia could very well actually be a symptom of your illness and not related to the meds at all. 

 

Yes, antipsychotics can cause a certain dullness. But if you've been feeling like this for a year, I would wager a bet that it's your illness. 

 

I think you should give the mirtazapine a try. Like all meds, it has side effects. But, you never know, it may help you. You can only know if you try. 

 

I understand your fear about taking medications. They have a lot of scary side effects sometimes. But remember, when people post online it's either because they LOVE the med or HATE the med. Mostly HATE. So, you're more likely to hear negative experiences. There are members here who take mirtazapine with no issues. 

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Yeah I have been thinking that I should at least give Mirtazapine a try. I will talk to my pdoc tomorrow about it just to be sure he wants me to be on this still.

 

I am aware that anhedonia is part of the negative symptoms of schizophrenia. However, I am more than 100% certain that my anhedonia was caused by the injections because it all started a week or so after my first injection and has been gradually getting worse over the months with more injections. I also met another fellow of similar age who was also diagnosed with schizophrenia at the hospital. We became friends outside the hospital and he has been taking Invega Sustenna too and is also suffering from anhedonia. With anhedonia as a negative symptom of schizophrenia, I believe that even then cigarettes or alcohol would still work for you. However, after Invega Sustenna they all stopped working. It all happened at the same time as when I got anhedonia.

 

I will definitely check out the schizophrenia board. thanks :)

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Just a point: mirtazapine is not an SSRI and does not have the blunting effect of SSRIs. I take it, and for me it is very helpful -- even helpful in offsetting some of the side effects from the SSRI that I also take. So I recommend that you take your doctor's advice and try mirtazapine. It's very sedating at first, but you get used to the sedation fairly quickly.

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You really do need to talk to your pdoc about not taking the mirtazapine that you were prescribed. Your pdoc is under the impression that you have been taking it. You need to partner with your pdoc. You need to work together to figure out what is best for you. If you aren't telling your pdoc what is going on then he/she cannot help you to the best of their ability. If you have fears about taking meds then work with your pdoc. Maybe you could agree on a schedule to get to 30 mg more slowly, rather than starting out on 30 mg. It might be if you increased it slowly then you'd feel more like you're in control. I've always felt that the patient/pdoc relationship needs to be based upon mutual respect and honesty. Over the years, my pdoc and I have come to an understanding. He'll make suggestions. I'll make suggestions. At the end of the day, we both realize that unless we can come to an agreement then it won't work. Either I won't take the med or he won't prescribe it. It's much easier to come up with a plan we can both agree upon.

 

Can you tell I have a lot of opinions on this topic? :) Seriously, give it a try. 

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Just a point: mirtazapine is not an SSRI and does not have the blunting effect of SSRIs. I take it, and for me it is very helpful -- even helpful in offsetting some of the side effects from the SSRI that I also take. So I recommend that you take your doctor's advice and try mirtazapine. It's very sedating at first, but you get used to the sedation fairly quickly.

 

Thanks, jt07~ That is interesting to know.

 

Maybe I will give it a shot tonight and take one before bed. Maybe it will help with my insomnia, who knows.

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You really do need to talk to your pdoc about not taking the mirtazapine that you were prescribed. Your pdoc is under the impression that you have been taking it. You need to partner with your pdoc. You need to work together to figure out what is best for you. If you aren't telling your pdoc what is going on then he/she cannot help you to the best of their ability. If you have fears about taking meds then work with your pdoc. Maybe you could agree on a schedule to get to 30 mg more slowly, rather than starting out on 30 mg. It might be if you increased it slowly then you'd feel more like you're in control. I've always felt that the patient/pdoc relationship needs to be based upon mutual respect and honesty. Over the years, my pdoc and I have come to an understanding. He'll make suggestions. I'll make suggestions. At the end of the day, we both realize that unless we can come to an agreement then it won't work. Either I won't take the med or he won't prescribe it. It's much easier to come up with a plan we can both agree upon.

 

Can you tell I have a lot of opinions on this topic? :) Seriously, give it a try. 

 

 

Hey Sylvan :)

 

To be honest with you after reading what you guys have said sofar I have been thinking about giving mirtazapine a shot. I think you are totally 100% right that I should be honest and upfront with my pdoc. I think it was a mistake for having been taking the antidepressant and didn't tell my pdoc about it. It's only going to end up hurting me in the long run.

 

It's just that Invega Sustenna left me with such a bad impression with psychiatric drugs that I have been too scared to try anymore of them. I will try to be a bit more responsible and honest.

 

You do have a lot of opinions on this topic, but I feel that they are valid opinions. I think your inputs have been really helpful and I really appreicate it :)

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LMFAO Invega IS risperdal. Risperdal shot is once a fortnight while Invega sustena is once a month. Its like comparing Seroquel XR to Seroquel.

No, Invega is one active metabolite of Risperdal. A more apt comparison would be Pristiq to Effexor.

Edited by jt07
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In cymbalta's initial trials, a person committed suicide.

That doesn't mean that cymbalta caused the suicide.  It's quite possible that this person would have committed suicide anyway.  And people who are on cymbalta are from a population that is probably somewhat more likely than average to commit suicide than average.

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