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crtclms

Anyone With Migraine Want to Share?

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Is this the right thread for bitching about bad doctors too? :angry: Sorry this post is going to be long. To make you understand first I have to explain our twisted health system-which I'm grateful for anyway since it's *mostly* free/not very expensive.

 

I don't know how it works in USA or any other place, but here in Italy whenever you have an health problem first you go to your family doctor who visits you for free and can give you some medicines/tell you to see a specialist/do exams etc... GP's are free. Then your meds can go from free-if you have some disorder like major depression that is on the disabilty lists of your region or you are really poor, to low priced, if they are over the counter or generic and/or you're a little more rich, to fucking expensive for brand names and a financial situation that is slightly better. Seeing a specialist and doing tests is similar; you can wait a looong time. sometimes even +one year, to do that for free-ish, pay a little and go to a specialist working at the hospital/do tests at the hospital,or pay a lot for private practice.

So one of my family doctors (the assistant which is the one treating me for migraines actually, but can't do some things because she's only the assistant), sent me to a neurologist and I went to a private one.

 

She diagnosed me with migraine without aura with a risk for chronicization to treat with a triptan, a caffeine/NSAID/antiemetic mix, nutritonal supplements and an antidepressant. Migraine is not on the disabilty lists, so she said we could "pretend" that I was taking the AD for a anxious-depressive disorder. I have had various depressive episodes in the past and depression is one of my main symptoms during the attacks indeed so it made sense.

 

Then for a reason I don't know (yeah, our health system is complicated :huh: ) I couldn't just go to the pharmacy and take the meds. No, I had to go back to the family doctor and she had to the prescriptions. 

 

Well first she tells me that if I don't have a diagnosis by a pdoc for major depression she can't fake it. Even if I had any other form of depression she wouldn't treat it with AD's. Yeah, she was aware of AD's being used for migraine prevention but she didn't buy it. Now it's true that it's still a bit of an experimental thing, but many neurologists prescribe this kind of treatment as you know, and they are often specialized in treating migraines. She's just a family doctor. :angry:

So she couldn't really refuse me a prescription recomended by a specialist, but she refused to "pretend" I had major depression and since migraine is not considered a disability I have to pay the full price for the drugs. 

 

 

Then,in a sweet/cutesy voice à la Dolores Umbridge (my mom made the comparison-think of having Umbridge as your doctor, pretty scary  :lol:) she said that she isn't into drugs anyway and I could try many other things like a gluten/dairy free diet and meditation and acupunture. 

I've been on a gluten/dairy free diet since January and while I will keep being on it since it does wonders for my IBS, it didn't really do much for migraines. I also wanted ALONG with other therapies to try complementary treatements because I'm not a fan of popping too many pills either and I know they can be really useful too.

 

Actually I wanted to ask her for advice about them. Well guess what, since she basically tried to coax me/blackmail me into doing reiki or acupunture with her-privately and for a price of course :P-I won't.

 

But maybe she will get her wish about major depression: I'm vulnerable to depression, I'm doing with an almost chronic condition which is disabling and  isn't considered so,I can't work but I can't have any financial help other than asking my parents to loan me some money and they don't have much either so I feel guilty too; put all these factors together and voilà: a proper mood disorder. Are you happy now, doctor? Well, I'm not.  :angry:

Edited by chiaragtl

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Your GP sounds like an real winner. Not only is Cymbalta used to treat migraine, so are tricyclics. In other words, your GP is not current on the literature, and/or has her head up her ass. And reiki is make-believe, as far as I'm concerned.

 

Has your neurologist talked to you about Topamax or Depakote?

Edited by crtclms

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And I'm on disability for Chronic Daily Migraine, so I guess I'm lucky I don't live in Italy.

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A front just moved past. My migraine started instantly.

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Water, we have a front moving through, and I "feel" it, but I think I'm going to be spared a full blown migraine. As I've said elsewhere, we are more sensitive weather instruments than any used by NOAA.

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does anyone else feel more "electric" during attacks? it's not metaphorical, i'm talking about static in your hair, clingy clothes. 

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does anyone else feel more "electric" during attacks? it's not metaphorical, i'm talking about static in your hair, clingy clothes. 

 

No, I don't.

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I don't either. Could you be unwittingly rubbing against things while you creep (that's how I move) around? I toss and turn, and rub my head against the sofa cushions, and things like that. That would work up some static.

 

Of course one thing about migraines is that there is a never-ending panopoly of symptoms.

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I also don't have any kind of electric feeling with my migraines.

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maybe it's because of the rubbing, hair pulling and because when there's static in the air/bad weather already it can actually be a trigger.

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Ugh, I'm having the worst headache I've had in months. I took some midrin, and it takes the edge off of it, but I'm still in a lot of pain.

 

Weather headaches are the. worst.

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Ugh, I'm having the worst headache I've had in months. I took some midrin, and it takes the edge off of it, but I'm still in a lot of pain.

 

Weather headaches are the. worst.

I'm sorry. They are.

 

Woke up with a migraine. Today we had bright sun, high pressure.

Took my pseudoephedrine and all is well. Didn't even need the fiorinal.

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Another bad one today. This level of intensity has become unusual since I started taking zanaflex prophylactically. But as I said, weather headaches are the worst.

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I posted this in SZ Forum but it is for here too:

 

Around noon I started getting a headache and all of a sudden the pain became so damn intense with pounding with sharp pains.  I took 2 muscle relaxers (didn't know if it was tension headache or not), and fell asleep.  (I couldn't even hold my head up because of the pain).  Woke up and it was actually slightly worse.  I have an ice pack on my head right now, but that is just taking the edge off.  Idk what to do otherwise.  This is serious shit and it won't go away.  Last time it was this bad was when I ate chocolate (which I am allergic to and get migraines from when I eat it).  I looked back to what I ate today and nothing out of the ordinary.

 

I need every ounce of distraction that I can tolerate to do until this pain goes away.

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I'm sorry, Melissa. I have what is obviously a rebound headache. I lost track of how often I was taking pain meds, so I can't take anything for it. And it is too hot to use a heating pad.

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Thanks, crt.  I fell asleep again and woke up with less pain.  I find myself tip-toeing (if that makes sense) though because when my heals touch the floor just hard enough it will trigger a little head pain.  And no loud noises.  But overall I am better than before.

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I've had residual pain from yesterday all day today.  I currently have an ice pack on my head as I am typing this.  The damn thing wont go away.  Tomorrow will be an even busier day for me, and I don't want any lingering pain.

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Migraine is gone.  Finally.  Damn that was a long 2 days.

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