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crtclms

Anyone With Migraine Want to Share?

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I'm having headaches every day at the moment. I think part of it is I'm tapering off Xanax, which is really hard and uncomfortable. But any headache I get, however small, can turn into a migraine.

It's going to take me several more months to taper all the way off. I hope things get easier.

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4 hours ago, crtclms said:

I'm having headaches every day at the moment. I think part of it is I'm tapering off Xanax, which is really hard and uncomfortable. But any headache I get, however small, can turn into a migraine.

It's going to take me several more months to taper all the way off. I hope things get easier.

I just got over a 2-day migraine.  I can relate to however small the headache is, it can turn into a migraine (for me if I don't head it off with Excedrin first and flexeril ... right before falling asleep.  If I take flexeril without sleeping right after taking it, it can make any headache worse for me.

I'm sorry you've had them every day.

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Ever since having a migraine about 2 weeks ago (it was one that came on so fast that I didn't have time to take pills or even get an ice pack).  And ever since that migraine I have had mini-headaches every day.  Neuro is being a prick as I've been writing about in other threads, and I am hoping he emails back today with some good news ... that he found a med that he is willing to prescribe, and calls it into the pharmacy.

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I have been away for 5 days, and surrounded by people, constantly talking.  Stuff that I am not used to doing. 

Would being in this environment give me more migraines because my head is not used to this?  I have gotten a migraine Saturday night, and then again last night.  And both times I've woken up with them in the middle of the night.

Any advice appreciated.  If I get a 3rd one I'll call/email neuro, but if I can take care of it myself, I'd like to do that first.

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I'm sorry but I don't know enough to say if the changed environment would increase frequency.  I've been meaning to get a migraines for dummies sort of book.

i also meant to post when I got one two weekends ago. The only seeming cause I can come up with is the sun....I was exercising with my dad outside and my glasses are only partially tinted, not full sunglasses.  Next thing I know it, one started.  The migraine went away with imitrex reasonably quickly, but I wasn't sure if sunlight was a known cause?

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9 hours ago, dancesintherain said:

i also meant to post when I got one two weekends ago. The only seeming cause I can come up with is the sun....I was exercising with my dad outside and my glasses are only partially tinted, not full sunglasses.  Next thing I know it, one started.  The migraine went away with imitrex reasonably quickly, but I wasn't sure if sunlight was a known cause?

The sun can do it for me/can make one worse.  I'm not surprised that the sun would give you a migraine.

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I've read that a typical migraine with aura affects the vision of both eyes. When I get migraine "auras" it usually starts in my left field of vision and may travel to the right, or it will start off as dimmed vision in both eyes. The scintillating scotoma always starts in my left eye. Often I don't have a headache which is good, but losing vision is kind of scary.

My vision in my left eye is poorer than my right.

http://www.nhs.uk/conditions/retinal-migraine/Pages/Introduction.aspx

I think being out in the bright sun might have caused me my weird eye thing today while wearing new glasses, and getting overheated a little. Silly me. I am seeing a neuro soon about it. I have had eye appointments that have not found anything wrong with the blood vessels in my eye. I often get these auras when I have finished exercising or had a long day at work.

It seems minor but it's a little weird.

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9 hours ago, wookie said:

I've read that a typical migraine with aura affects the vision of both eyes. When I get migraine "auras" it usually starts in my left field of vision and may travel to the right, or it will start off as dimmed vision in both eyes. The scintillating scotoma always starts in my left eye. Often I don't have a headache which is good, but losing vision is kind of scary.

My vision in my left eye is poorer than my right.

http://www.nhs.uk/conditions/retinal-migraine/Pages/Introduction.aspx

I think being out in the bright sun might have caused me my weird eye thing today while wearing new glasses, and getting overheated a little. Silly me. I am seeing a neuro soon about it. I have had eye appointments that have not found anything wrong with the blood vessels in my eye. I often get these auras when I have finished exercising or had a long day at work.

It seems minor but it's a little weird.

(in bold) It can, but not everyone has that symptom.  My father gets so he can't see.  My eyes get slightly blurry.  But not everyone I know has their vision affected.

I'm not surprised you got the auras when you finished exercising (you might have exercised too much and stressed your body out, causing tension) or had a long day at work (maybe stressful too, tension). 

These things ... the stress, tension parts, will cause a migraine for me if the stressful things happen more than once.  I can usually handle the stress, but some is inevitable.  I was just away out of my own environment for 5 days, and the stress, tension, and lack of sleep of not being home all came together and I got 2 migraines while I was there.  Came home and they stopped.  Also there was a ton of talking and interaction with people, something I am not used to.

So I think all the symptoms you talk about are real, and could cause a migraine, IMO.  I'm glad you are seeing a neuro soon.  And FWIW ... I do not see these things as being weird.  I don't think they are not minor when they all come together and cause a migraine.

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I finally found some relief from migraines with Trokendi XR. I had to get up to the recommended 100mg dose before I got any effect, though. For some reason my neuro started me at 50mg, which did absolutely nothing, and left the dose there, until I called to tell him I was still getting 10+ migraines a month and would he please try the 100mg dose. I know it's just reformulated Topamax, and I have no experience with regular Topamax, so I can't speak to whether or not the XR formulation makes a difference or not. I know it's specifically targeted for migraines and has a 31h half-life so you only have to dose once a day, and side-effects are extremely minimal compared to IR Topamax. The MFG also has a really good PA program, because the shit is expensive!

I sound like a walking advertisement, lol, but I've been on the 100mg dose for 2 months now, and had zero migraines the first month, and only 2 the second, compared to 10+ every month for well over two years (that I've journaled.) Depakote did nothing for me, neither did Trileptal, or Lamictal. 80%+ reduction in the number of migraines is a success, and I hate taking triptans, they all make me feel weird or worse (Imitrex is horrible!) but they work as an abortive. 

If you can find a neuro or pdoc willing to write for it, I suggest giving Trokendi a shot, but start at 100mg (the recommended dose!) I dunno why they even make 25mg and 50mg doses when the guideline for migraine prophy is 100mg...

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