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Southern Discomfort

Anyone with Tourette syndrome or related tic disorders want to share?

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Long time visiting this thread but I thought I'd update on what's been happening since my last post. I have just come back from a trip up to London. I saw one of the best specialists in the country on Tourette's Syndrome and I can now say I have been properly and formally diagnosed with Tourette's. I did have a diagnosis before that from a locum psychiatrist but it's been somewhat informal. 

He said that technically by a text book example I don't have TS but that is how to best describe mine. Adult onset does occur but usually it's the sort that puts people into the A&E department at a hospital because of the severity. For me, it's always been gradual although now I'm getting coprophenomena - swearing tics. Mainly the two finger salute. 

He did say though that he's never heard of anyone ticcing in their dreams. I've since talked to a couple in a Facebook group for people with TS and a few have come forward saying they also experience this. It seems undocumented. 

I have another appointment in 3 months time back in London, in February to see the same doctor. They need to liaise with my psychiatrist over medication. And I've messaged a therapist in Exeter about CBIT and if I can get onto that as an NHS patient. 

Good progress!

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