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Delayed Sleep Phase Syndrome


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So my doctor diagnosed me with something called Delayed Sleep Phase Syndrome, and I've never even heard of that before he told me about it. But after I heard what he had to say, I realized it described me PERFECTLY, and if I only would've heard about it before, I wouldn't have waited seven years to do something about my weird sleep habits.

He gave me a list of things I should do to help me start getting into a normal rhythm, but it just isn't working... I'm supposed to go to bed by 11pm and get up by 7am, but even when I do fall asleep at 11pm, my body tells me to sleep through the entire day anyway!

Does anyone have any experience with this disorder? Are there any meds out there that could help me?

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Google it. There's some good stuff out there about it. My pdoc and I are pretty sure that's my problem, as well. I'm having good luck with Rozerom (we've got a thread going on about this med on this board somewhere). I'm still taking Ambien or Sonata, but the Rozerom seems to be helping me get on a somewhat normal sleep schedule. I would still stay up all night and sleep all day if I could, but it's helping.

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  • 5 weeks later...

"DSPS", and remember you're speaking with an anti-societal (though not always anti-social) Aspie outcast here, is just a disorder where you can't awaken early enough to satisfy everybody else's needs.  </bitter>  To fix mine, my old pdoc gave me Provigil 200mg to wire me up in the morning, and 150mg Trazodone to knock me back out at night (no hangover worries at that dose for me).  Recently, the new pdoc and I added 0.5-1mg of the big K to help out, as I'm slipping into the big D, which really screws up my sleep schedule, adding naps midday and disallowing deep sleep at night. :-X

The treatments I got worked fairly well; when I was actually employed, I left my Provigil right next to my alarm clock (10 feet from my bed so I had no choice but to get off my ass and turn the damn loud thing off!) with a glass of water, and took my 'fix' at that point.  7:30 AM was too early for me to awaken for work, and Provigil helped wire me legally and with a doctor's permission ;-) so I could enter the workday at 9 AM like a good little societal monkey. </further bitterness>  Even though the c*nt I used to work for full well knew I had DSPS, she'd throw hissy fits at me arriving at 9:15-9:30 (even though she even had told me, many times, that I was a 'knowledge worker' and could show up whenever I wanted, provided I worked my 40 hours each week!).  Dammit, I brought Dr. Sandy Vagina up again.  Have to drink again.  Bad herrfous.  (Please, don't think it's your fault, though, it's 100% mine!!! ).

Anyways, the traz would knock me out within 30-60 minutes of taking it, so I generally dosed at 10-11 PM to get a good night's rest before wiring myself with the Provigil in the morning.

The crux of the whole treatment plan was to force me awake at a time society wanted me to be awake, and knock me out, forcing me to sleep, at a time where I could awaken with reasonable alertness at a time society wanted to.  Damn society. </even more bitterness>

And to let you know, my 'defective' natural sleep cycle generally wants me to wake up around 10 AM and return to bed at 2-3 AM.  Bad, bad societal monkey!!!

Did I mention I'm bitter? ;-)

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Heya Niz,

DSPS is when your sleep time is out of phase (at a different time in the 24 hour clock) than the expected normal for the school/work world.

Like, going to bed at 1am and waking up at 10am.

All/most teenagers have it.  Plus, some adults.  And, people who skip time zones a lot.

Ask your psych about melatonin.

Apparently, the German version is well-regulated and well-controlled.

I've spoken with psychs who import it for patients with DSPS.

--ncc--

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  • 2 months later...
  • 3 weeks later...

This sounds just like me. It can take ages for me to get to sleep, then of course I wake up late. I feel ashamed of it and (slightly contemptuously) envious of all the 'Morning People'

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  • 2 weeks later...

Be careful with the melatonin--it can aggravate depression. I have DSPS too, and the only thing that's helped is zopiclone. I've been on it for eight months, and it's as effective as it ever has been. I still have a pretty whacked-out schedule, but zopiclone has majorly improved the quality of my sleep and kept my schedule from rotating around the clock like it used to.

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  • 2 years later...
Guest abhorsen

Hello, Im new here.

Ive have sleep probs 4 as long as i can remeber, i full asleep at 4am and waken at around 2pm, 4 alarm clocks fail to wake me and ive tryed all the get 2 sleep early wake early tips over and over again....

This has taken its toll on most aspects of my life...... education, emplyment, relastionships, social life ect....

Ive been told the only way to get a possable diagnose is to see a phyciologist....... Id be greatfull 2 hear of any exsperances or simply what 2 espect from meeting this phyciologist.

My thoughts where that a sleep therapist of some sort would be the answer or am i jumping the gun here?

Thanks abhorsen

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  • 2 months later...
Guest Guest_Misty_*

I've had dsps for 12 years now.

Only know about dsps for 5 years.

My doctor gave me melatonin, wich helped me. Good luck.

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  • 7 months later...

I suspect I have DSPS. I don't usually sleep until midnight to 2 am, and otherwise sleep normally, as in, I don't have insomnia if I sleep my natural sleep schedule. I've tried 50mg Benadryl to help me fall asleep, nothing. I slept the normal schedule then it gave me more energy the next day. Definitely seems like Benadryl is a morning med for me :/

Do any of you take trazodone for DSPS?

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Have you tried taking more Benadryl?

I don't know if I have DSPS for sure. Pdoc suspects I do. Insurance isn't too keen on covering sleep studies.

I took trazodone to sleep. I found it too sedating, personally. I've also taken Seroquel. Too sedating. Tried melatonin. Didn't work, though pdoc said that a lot of people have success with it. I think the thing I tolerate best besides Benadryl is Ambien. Even then, it makes me do funky things in my sleep.

You could try Rozerem and see how that goes.

One non-med thing that I find helpful is a dawn simulator. It also simulates sunset. It's not one-hundred percent effective, but it helps.

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I don't think I'd get any benefit from more Benadryl. Going to be making a doc appointment tomorrow to see if I can get Imovane, Rozerem, or something. Of course it takes a week to get in to see my doc, and I need to sleep now. ;)

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I had heard about this a while ago and it was just like a light bulb went off for me. THIS is what I have! I am NOT just doing this. I am NOT lazy. I KNEW IT! And now I have proof because it is actaully something with a name, and it fits me so perfectly that my husband can't even deny it.

I will naturally go to bed at around 4am and sleep until at least 10:30 (to 11:30). Doing so means I wake up feeling well rested. Any time I attempt to change this natural schedule, I run into major problems. I was in nursing school... getting up at 5am to be there on time? Probably one of the big reasons I dropped out (along with a near mental breakdown, likely not helped by the crappy sleep schedule) You see, even though I had to be awake for 5am.. I still couldn't sleep before midnight, and I had to force myself, with difficulty, to do so.

Even when I *should* be exhausted, such as after a day or two on only 5 hours of sleep a night, I still cannot sleep properly until I can get into 'my' schedule. So even if I managed to go to bed at say, 10pm, I could sleep all night, but I wouldn't feel rested at all. I would yawn constantly all day and just feel drained. Like I could barely stand for most of the day. And then night would fall and all of the sudden, I would be awake-- really awake. And then I would go to bed at 4am. And if I got to sleep until 10am-- I would feel just fine.

I always joked that I was just on Australian time (we lived there for a year and I am pretty much awake the same hours as my friends there-- yay for facebook so I can chat with them at those odd hours). I pretty much am just a nocturnal human and that is all there is to it.

Or, as friends sometimes tease me, I am actually a vampire. That's why I am so white and like to live in dark places, lol.

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I've always had my sleep schedule dictated by work or classes when I had them five days a week, but now I have classes only two days a week.

I rarely if ever go to bed before midnight, even if it means less sleep. Hell, it's 0320 and I have class at 10, and I'm nowhere near sleeping.

I get the total awake at night thing, I hit energy at 9 pm, every night.

I don't know what to do about it. Studies of "treating" DSPS are successful in the short term, but we eventually shift back to late nights naturally. I could occasionally take something to sleep, but the OTC stuff totally doesn't work for me. Hell, this 3am+ plus kick started when I took Benadryl and it kept me up O.o. At least I didn't sneeze or itch ;)

P.S., my natural bedtime is anywhere from midnight, if I'm being good, to 3-5 am if I'm being bad or I have no reason to get up.

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So I went to a walk in clinic yesterday, told them I couldn't sleep and couldn't see my usual doc for a month, they gave me 15 zopiclone.

It makes me sleep early without making me overly tired after ;)

The clinic doctor didn't ask any questions or anything. It was like, have rx, bye!

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I've had DSPS since I was 13 (I'm 19 now). Of course I've failed high school (twice) and have no job. It's 6 AM and I feel like going to bed. I normally wake up around 6-7PM. I have seen a sleep specialist in a hospital and what she told me to do is take the time you normally wake up, say 6 pm, and set an alarm half an hour before that (5:30PM). When it goes off get up and into the shower straight away, after the shower go outside and sit in direct sunlight for an hour. The sunlight helps reset your body's sleep clock (stops production of melotonin). The next day set the alarm half an hour earlier still (5:00PM) and so on until you get to your goal sleep/wake pattern. Once you are there you need to maintain your bed/wake time for seven months without fail to kind of set it as your default time to sleep. This means weekends, holidays etc. too. You must be very strict. After seven months you should be able to be a bit more flexible.

If you're looking for a sleep med I can only recommend Remeron for this situation as all other sleep meds stop working for me if I take them every night. I am about to get some from the doctor today. The drawback of Remeron for me was that while it would put me to sleep every night I needed 12 hours of sleep and couldn't get up before 11 AM. I also woke up very groggy and was somewhat tired during the day.

I'd like to try Provigil but I need to find a doctor who's heard of it lol.

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  • 1 year later...

I have this disorder. I am 52 and it has taken me all these years to figure it out. Doctors were no help at all, I found it on the internet. I have been searching for answers for years. there is no "cure" or fix, it is genetic. We are different. For me it is lonely, isolating and depressing. I am on disability and sell stuff on internet at night even though I have a masters degree. I don't want to get you down. I do try to be positive, spend as much time with my family and outside of the house as possible during the hours I am up with everyone else. At least now I can give up the struggle of looking for a fix. you have to organize your life around your sleep cycle. Get night work, etc. Be creative. I take Lunesta to help me fall asleep, usually between 4-5 AM. No side effects. Doesn't make me groggy. I have tried other meds and didn't like them. I wonder if I did not have to get up at some point during the days what would happen to my sleep cycle. I am quite sure I am not on a 24 hour rhythm. I have had this problem all of my life and it has been hell being constantly sleep deprived and eventually breaking down. Don't try to fit yourself into the round hole if you are a square peg. It won't work. I wasted so many years doing that and feeling like crap. I now feel like I am free to be me and I don't have to make apologies because when I explain the syndrome to others they seem to understand. I thought for years I had fibromyalgia, well maybe I have that, too, but I most certainly have DSPS. Chin up and live how you must to feel okay. Make friends with the stars!

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I find sleep med/provigil combo to work best for some if they WANT go get back on natural rhythm.

For some folks, melatonin, if it does not cause depression (for me it doesn't) to be very helpful. It's what your brain isn't making at the right time, so it really can be the sensible option.

Dark therapy can have the same effect. For dark/light therapy, psycheeducation.org (Dr. Phelp's site) really has the most info. It's geared towards bipolars but I do imagine it might work for this condition as well....

You CAN live with it, or treat it.

I give my kid melatonin. All tenagers have this problem in my opinion. It's been shown they do actually make melatonin at weird times (later) SO ALL their complaints about not being tired and not wanting to wake up are totally true. Schools should either start later for them, or they should all be treated.

I did it becauese my poor kid would toss and turn til midnight, then fall asleep in school all morning. He likes the melatonin, it has long term effectiveness, he climbs into bed by choice at 10 p.m. and wakes up at 6:30 no problem and is awake and perky all morning. PRoblem solved. it's way better than what it was.

Soem people just do not respond well to melatonin at all which means there may be some other thing going on I guess (I would have no idea what). Eh.

Anna

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