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Luvox second time 6 years later


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 Ocd,depression ,anxiety

Luvox-14+ years 125mg

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Prozac 60mg 5+ years 

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Zoloft 125mg---severe eye pain

Now back to Luvox 50mg

Detailed thread

In addition to Luvox

18 g Inositol 

2600 mg Nac

Ocd is under control. Unfortunately my eyes hurt. 

I have been to 

3 opthamologists 

1 glaucoma specialist 

1 retinal specialist

I have burning and pain.. in both eyes. I don't have dry eyes. My prescription has not changed. 

Oct 14 ,I have a meeting with a neurological opthamolgist.

I'm very fortunate that I have the support from members of this forum.

 

Edited by 300.3
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When you took Luvox before at 125 mg, did you have any eye pain at all? It's just so weird that these meds are causing that. I'm glad you are going to see another eye doctor.

I guess what's really weird is that you didn't get eye pain until you got up to around 100 mg of Zoloft if I recall correctly, and now you have it at only 50 mg of Luvox which I believe is a less potent SSRI than Zoloft. Were you taking brand before and are now taking generic because I'm wondering if you aren't getting some sort of allergic reaction to the filler materials. Hm.

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On Luvox generic at 125mg I never had pain.

Over 100mg Zoloft i was having extreme pain.

Now I'm back on generic luvox and have pain, burning,strain, at this low dosage. 

1-10 of eye pain 1 being the worst

Zoloft 125mg about a 2 on the scale

Luvox 50mg about a 5 on the scale.

 

A blessing is that 50mg Luvox is holding my Ocd at bay. No bad thoughts. Im able to go a few days without taking .5 Xanax also.

Not sure why but my dreams have become extremely vivid also.

Edited by 300.3
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  • 2 weeks later...

Well my experiment is done.. 

 

Sept 22.    25mg luvox                                  +      12.5 mg               

   +  6.25 .g

Eye pain just about all gone.
 

So I take a whole 25mg plus a half 12.5mg plus a 1/2 of 12.5

43.75mg luvox eye pain is just about not there. 

Sad no doctor believed me.

 

I feel like shit but no ocd.. I guess my body needs to get used to less ssri now? It's trying to regulate?

Edited by 300.3
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  • 4 weeks later...
  • 3 weeks later...

I might have an opportunity to take part in a study for Ocd 

http://columbiapsychiatry.org/ocd/treatment/adult-research

I emailed a few universities and they replied. they currently have an open study that involves intense Ex/Rp and I would continue medication. it would require me to go to NYC 2 times a week for 12 weeks. I'm sure less often after the initial 12 weeks. 

I have a phone interview tommorow which is the first step.

 

 

 

  

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Thanks mikrw...

So I made it through the phone interview. They want to speak with me so I have an appointment with a psychologist this  Monday at 2:30 and 4:30 I have an appointment with their psychiatrist . I'll let you know how it goes..

I don't think I have anything to lose if I do get accepted. If anything ill have tool set  to deal with my obsessions hopefully.

After emailing specific people at other universities I got another reply back from a top OCD  research doctor . He is giving me the opportunity to speak with him on the phone on Dec 1. Also the opportunity to speak with him in person for money I don't think I would ever spend.

 

Edited by 300.3
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  • 2 weeks later...

Well I did go to the city and met with the psychiatrist and  therepist which seemed like forever.

They were very nice and it was nice to be some place that just specializes in ocd.

I had an appointment tommorow where they were supposed to draw blood and perform an ekg and other tests. this was to determine if I was healthy enough to take part in the study.

Well I just received a phone call that the doctors spoke again today and I will not be able to take part in the study.

I can only assume it is because I'm different and not a clear cut case. Also I kept telling the therepist I would most likely not be accepted.

My worst part in my life with ocd was when I was younger and I had pure compulsions .  I think they would rather treat that instead of obsessions . I'm not sure . . I also told him I know I would come with baggage lol.. 

I'm upset . .. very upset . . to be in a place that had all books and posters of brains with ocd.. I have never seen a place like i was in before. People knew ocd lingo i felt at home. I was overwhelmed and happy when I was in the section of the building that just delt with ocd.  

 

 

 

 

 

 

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300.3, I am sorry that you got cut from the study. I understand your hurt and frustration after having been in such a good place for people with OCD. However, try to keep in mind that it was only a study. Once over, you could find yourself back at square one again. So on the one hand it's sad and frustrating while on the other hand it might be for the best. Try not to let it drag you down.

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Thanks jt.. you guys have a way of making me feel better.. 

I agree it was just a study.. I didn't hope to be cured just to get better tools to deal with obsessions..

I know we all differ with opinions but one thing that put me off which was a small thing .. If I did make it to the point it improved my ocd significantly they expected to wean me off my drugs over a 4 week period!! I said wow .. you expect to rip something that my body has been so accustomed to for so many years ?? he said well we can extend it to 6 weeks .. At that point I was like whatever in the end the choice to stop meds was up to me.

I just wanted more coping tools so I could lower my dosage if anything. 

They plan on giving me referrals most like for cbt that is located in nyc. Which most psychiatrists and therepists don't accept insurance . .

 

 

 

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Well after some calls and asking around most of the doctors in nyc don't take insurance . . don't ask me why. driving to Manhattan every week? is really not doable if they don't take insurance. I was going to change my hours at work from 12-8 for the trial but to for this I can't

That was a favor my boss was offering to help me.

 

Side question.... Lexapro 10mg =to 50mg Luvox =to 20prozac?

 

 

 

 

 

Edited by jt07
Removing names of doctors and therapists
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23 hours ago, 300.3 said:

Well after some calls and asking around most of the doctors in nyc don't take insurance . . don't ask me why. driving to Manhattan every week? is really not doable if they don't take insurance. I was going to change my hours at work from 12-8 for the trial but to for this I can't

That was a favor my boss was offering to help me.

2

That sucks... :( Sorry to hear that. That was very nice of your boss to be willing to do that for you, though.

23 hours ago, 300.3 said:

Side question.... Lexapro 10mg =to 50mg Luvox =to 20prozac?

According to the equivalency chart on crazymeds.us (which is where I got my source from when I told you about equivalent dosages), yes. But you have to keep in mind that each medicine has their unique pharmacology.

E.g.:

  • Lexapro: clean, quintessential SSRI with not much else affinity for many other receptors or transporters
  • Luvox: SSRI + potent σ1 receptor affinity
  • Prozac: SSRI + 5-HT2C receptor antagonist (yielding norepinephrine and dopamine disinhibition, making it a norepinephrine-dopamine disinhibitor too, or NDDI), as well as other pharmacological actions, such as increasing the concentration of circulating allopregnanolone, a GABAA positive allosteric modulator, and a σ1 receptor agonist (less potent than Luvox). I believe there's some affinity for the 5-HT3 receptor, negative allosteric modulation I believe. At higher doses, norepinephrine reuptake inhibition (NRI) may be possible.

So switching from one SSRI to another at an "equivalent dose" doesn't guarantee an "equivalent" effect.

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Mik 

Yes , as I said I emailed a shit load of people looking for answers ..

 

 Christopher  suggested 2 medications and during the whole conversation spoke about Riluzole only to answer a few of my questions.

1  lexapro which he uses for his patients

2 Anafranil 

All the studies done thus far have been with patients already on some kind of medication. So it been primarily used as an augment agent. He also said the the blood work for liver? needs to be done frequently . 

So I explained to him about my current eye issue. that's when I mentioned the numbers I know about the antichorgenic properties. 

 

Then he spoke to me about the other terms I mentioned to you

Edited by 300.3
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