Possible hypersomnia but with eusomnia?

[Rabidtears]

I just finished doing a sleep study. One was psg and the other was mslt? They were checking for narcolepsy, but my admitting dx was hypersomnia. Anyways, I know with narcolepsy you can have hallucinations, auditory, visual, as well as olfactory. I have had at least one of each. The one dealing with my sense of smell is more of a distortion though. What should be a very unpleasant smell tends to smell rather delightful. I think it's called eusomia. Examples are usually dealing with poop! I smelled bacon at my in laws and they said there was no bacon but was probably dog poop I smelled.

The next instance I walked inside my house and I smelled a strong scent of pancake syrup...I don't allow that because our twins paint the house with it....it smelled delicious though. It was everywhere, the smell was. I told my husband and he said the only thing I could be smelling was the babies because he had just changed their diapers!

The other instance was this morning. I woke up to the heavy scent of pancake syrup again. I told my husband again and he said this time itcould only be the litter box. After a couple of hours the syrup smell went away and the litter box replaced it.

Can you have scent distortions with hypersomnia like you can with narcolepsy?

[melissaw72]

I have a diagnosis related to hypersomnia (don't know how neuro words it in my chart, but I have something like that and I am on provigil for it). 

I do have scent distortions of cigarettes, metal, and smoke like when there is a fire.  And every time I tell neuro about this (or whatever the scent is) ... which doesn't happen too often ... he says to either keep an eye on it, or (usually) orders an EEG to make sure there is no seizure activity going on (I have a history of seizures, but haven't had one for a long time).  NOT saying you are having seizure activity when you smell the distorted smells, just saying that this is the first thing that goes through my neuro's head when I tell him about it.

So to answer your question, I would say yes, based on personal experience, that you can have scent distortions with hypersomnia like you can for narcolepsy.  However, when you smell the smell/s, I would make sure to tell/call your DR during or afterwards just in case there isn't anything else to be concerned about.

[Alien Navel Cord]

25 minutes ago, Rabidtears said:

I just finished doing a sleep study. One was psg and the other was mslt? They were checking for narcolepsy, but my admitting dx was hypersomnia. Anyways, I know with narcolepsy you can have hallucinations, auditory, visual, as well as olfactory. I have had at least one of each. The one dealing with my sense of smell is more of a distortion though. What should be a very unpleasant smell tends to smell rather delightful. I think it's called eusomia. Examples are usually dealing with poop! I smelled bacon at my in laws and they said there was no bacon but was probably dog poop I smelled.

The next instance I walked inside my house and I smelled a strong scent of pancake syrup...I don't allow that because our twins paint the house with it....it smelled delicious though. It was everywhere, the smell was. I told my husband and he said the only thing I could be smelling was the babies because he had just changed their diapers!

The other instance was this morning. I woke up to the heavy scent of pancake syrup again. I told my husband again and he said this time itcould only be the litter box. After a couple of hours the syrup smell went away and the litter box replaced it.

Can you have scent distortions with hypersomnia like you can with narcolepsy?

I greatly apologize, but due to my maturity level, I find this very funny. I love poop stories. Sorry. Anyway, that sounds like it would be pretty gross. One time, I went camping with a friend and in the morning I smelled bacon from another campsite. "Mmm I smell bacon!" My friend said, "No, sorry, that was me."  EW! I was smelling her farts and thought I was taking in the smell of food, so I inhaled deeply. 

[Rabidtears]

18 minutes ago, melissaw72 said:

 

So to answer your question, I would say yes, based on personal experience, that you can have scent distortions with hypersomnia like you can for narcolepsy.  However, when you smell the smell/s, I would make sure to tell/call your DR during or afterwards just in case there isn't anything else to be concerned about.

I'll be seeing a neurologist on the 16th of this month due to uncontrolled eye movement which had me worried about seizures. My eeg and MRI were normal, but doc wanted me to keep my appointment in case he missed anything. 

Thank-you Melissa, it's been hardto find much on hypersomnia in general! 

12 minutes ago, 2Spirals said:

I greatly apologize, but due to my maturity level, I find this very funny. I love poop stories. Sorry. Anyway, that sounds like it would be pretty gross. One time, I went camping with a friend and in the morning I smelled bacon from another campsite. "Mmm I smell bacon!" My friend said, "No, sorry, that was me."  EW! I was smelling her farts and thought I was taking in the smell of food, so I inhaled deeply. 

Lol its fine. It is pretty funny. I always make a face when it's pointed out to me what it is that I am smelling! At least it's pleasant at the time! Haha

[melissaw72]

3 minutes ago, Rabidtears said:

I'll be seeing a neurologist on the 16th of this month due to uncontrolled eye movement which had me worried about seizures. My eeg and MRI were normal, but doc wanted me to keep my appointment in case he missed anything. 

Thank-you Melissa, it's been hardto find much on hypersomnia in general! 

I'm glad you'll be seeing the neuro next week. Sounds like a very good DR, and one who make sure of things. 

I'm sorry about the uncontrolled eye movement ... I would be worried too.  That is great that the EEG and MRI were normal.

Good luck at the appt!