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Which doc for fibromyalgia?


Croix

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Hi ya'll. So my mom was diagnosed with fibromyalgia last week. She's wondering if she should stay with her GP or see a specialist. Is there such a specialist? Should she switch to a Neuro or go with Pain Management? I don't know anything about it, so I am seeking advice from my crazyfriends.

Right now her GP has her on a mild muscle relaxer and that's all. It ain't doing the trick. She has another appt three weeks from now and isn't sure if the GP knows enough to help her.

Thanks in advance,

Croix

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treating fibro is a pain and it's best to see someone who's treated a lot of patients with it before.

there is a list of docs specializing in treating chronic fatigue and fibro at http://www.endfatigue.com

this is the website listed in the back of the book From Fatigued to Fantastic by Dr. Teitelbaum.  CFS and Fibro are linked syndromes.  Though the title is silly, the book really helped me understand why my body is acting like it is.  I don't know if my doc is on his list (it's a long list) but I know my doc does a lot of the things Teitelbaum reccomends.  There are probably other ways to find a fibro doc if you don't like that list, but i can't think of any other ways right now because er, it's the end of the day and "brain fog" has set in.

Most docs for fibro or cfs will be integrative medicine docs (mds who also use supplements, etc.)  My cfs doc is an internal med doc... i've been seeing him for about a year and i'm slowly starting to feel better.  the recovery process from fibro is a slow one, but it can be done.

best of luck to you and your mom

penny

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Thanks Penny. Mom's been hurting and dragging since Oct. and just now got the diagnosis. She's glad to have some answers now, but still feels terrible. I'm just looking to help her out. I'm gonna go with her to her next doc's appt. You know, be her advocate.

I'll check out the site you listed and see if I can't find her a more experienced doc around here.

Good to know it's not a progressive disease. That'll help put her mind at ease.

Thanks again,

Croix

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if you have time before the doc visit, it would probably help a lot if you read that book or another book on fibro so you could further understand what's going on. 

i think it's great that you're going with your mom.  sometimes docs can be real dicks about fibro because for some fucked reason they think it's all in in the patient's head. (of course i think this is b/c most ppl with fibro are women, but i'm just a conspiracy gal.)

that said, some psych meds do help with fibro.  some ADs, neurontin or lyrica, etc are used a lot with success.  sleep meds are also used a lot as getting the right about of quality sleep really helps with fibro.  anyway, i could go on and on, but i shall stop.

if you have any questions at all, let me know. 

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A a little late in responding to your post, Croix,

But when I thought I might have fibro I saw a rheumatologist. One thing rheumo's treat is disorders of connective tissue. Docs differ but the one I saw was very good, took my complaints seriously, and never once suggested it was all in my head.

I hoope your Mom finds a good doc and she is lucky to have you as her advocate.

Erika

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Thanks Erika. I'm going to suggest that if this doc doesn't work out.

Mom got put on Lexapro this past week. Hopefully it will help soon. Poor mom hasn't had a decent nights sleep in over a month. I'm just glad I convinced her to take them. She really put up a fight there at first. We'll see. Keeping my fingers crossed.

Thanks for info and suggestions guys. Anything else I should know?

Croix

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Croix,

I don't know if you have checked it out but I do have a fibro link pinned at the top of the board. As for treatment options, I was put on Flexeril and it help me. Flexeril is also listed as a treatment option in the fibro link.

Erika

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Erika,

The first thing I did was check out your fibro link on this page. I've been here long enough (Hey, a year now!) to know to check my links for info first so as to not get yelled at by some people who shall remain nameless, lol.

Flexeril is a pretty strong muscle relaxer isn't it? My mom takes a benedryl and bitches that she's sleepy for three days that's why her doc put her on a very mild one. I don't remember the name off the top of my head.

In my last post I was just wondering if there was any tricks/tips I should know. Or advice not posted on Fibro links. You know, from someone first hand. We've found in the past couple of days that the heating pad has helped tremendously.

Thanks so much again for the info. Mom thanks you too.

Croix

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The first thing I did was check out your fibro link on this page. I've been here long enough (Hey, a year now!) to know to check my links for info first so as to not get yelled at by some people who shall remain nameless, lol.

<{POST_SNAPBACK}>

Hope I have not been added to your list!

I'll see if I can find some info from some of the journals I have on-line subscriptions.

Erika

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  • 1 year later...

Some docs consider FM a sleep disorder too. Flexeril at night helps a lot of FMers get the Delta sleep they have been missing out on. I had to discontinue Flexeril due to the tummy troubles it gave me.

Most people with FM see a rheumy but more and more are seeing neurologists too.

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