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Hi there, although I'm a new member I've been lurking the forum for years .

 

Long story short , I've had a psychotic break/near death experience that lasted for about a year , that occured in 2013 . Although I'm over 90-95% of it, I'm still suffering a backlash in terms of constant to variable anxiety throughout the week . I've also haven't slept naturally since the event occured in 2013 . So basically my body's used to feeling anxious for so long that its the new normal and ditto for the insomnia .

 

I have a psychiatrist that I see 1x to 2x a month and am seeing a good experienced therapist twice a week (both work in the same office). I want to sleep naturally again .

 

Anyways after trying multiple (sedating) anti psychotics , anti depressants, anti convulsants , 6 different benzodiazepines, z-drugs , antihistamines and belsomra , my psychiatrist decided to put me on Xyrem . I'm on the max dose of 4.5 grams twice nightly .The first two months were heaven, it truly was the holy grail . Absolutely zero side effects and completely unoffensive like a hypnotic benzodiazpine . The major payoff was that I was sleeping 8-10hrs a day and feeling so incredibly rested (like natural sleep since it only improves sleep architecture and induces natural sleep)I didn't need to take medicines like nuvigil and adderall to stay awake/function during the day and totally went off of the stimulants . My physical and mental abilities were 100% again . Workouts were great with all the new energy and school went from difficult to moderately easy now that my brain was finally recovering at night .

 

Problem is that due to increasing situational anxiety due to school/(I guess how the near death experience makes me act to stressors ?) The 9g a night barely keeps me asleep for more than 3-4 hrs . The Xyrem pharmacist said insomnia people like me can use higher doses , as he's seen up to 13g a night . Problem is that the doctor said he will aboslutely not go past 9g a night . He will not Rx me any controlled CNS depressants with the xyrem (benzos, z-drugs , belsomra even friggin Lyrica is off the table) He's given me zyprexa since it has helped my anxiety and insomnia in the past however that antipsychotic leaves me with carry over sedation in to the day and dumbs me down (in an engineering science major) . The zyprexa does keep me alseep with the 9g of xyrem but I need a whopping 10mg to 7.5mg depending on my anxiety and stress level .

 

Fast forward to today , as I lost my insurance with the xyrem prescribing psychiatrist and xyrem medication .  I saw one sleep doctor at a sleep clinic and he said my insomnia was out of the scope of his practice, despite asking for xyrem and showing him my med records showing him I was Rx'ed it for months with little issue . 

I have an appt. with another specialist at a sleep clinic in NJ who Rx's Xyrem june 7th . And in case that lady is a spineless waste of money , I have two other sleep doctors lined up with appointments in late july who also prescribe xyrem in late July.

 

Any tips on how to get this med back to helping me ?? 

 

I'm officially on 4mg Klonopin, 40mg paxil, 200mg Lamictal, 1mg Halcion (useless now) seeing different therapist and psychiatrist for insurance reasons

Edited by Dale Garrison
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