Jump to content
CrazyBoards.org

Recommended Posts

Hi there, although I'm a new member I've been lurking the forum for years .

 

Long story short , I've had a psychotic break/near death experience that lasted for about a year , that occured in 2013 . Although I'm over 90-95% of it, I'm still suffering a backlash in terms of constant to variable anxiety throughout the week . I've also haven't slept naturally since the event occured in 2013 . So basically my body's used to feeling anxious for so long that its the new normal and ditto for the insomnia .

 

I have a psychiatrist that I see 1x to 2x a month and am seeing a good experienced therapist twice a week (both work in the same office). I want to sleep naturally again .

 

Anyways after trying multiple (sedating) anti psychotics , anti depressants, anti convulsants , 6 different benzodiazepines, z-drugs , antihistamines and belsomra , my psychiatrist decided to put me on Xyrem . I'm on the max dose of 4.5 grams twice nightly .The first two months were heaven, it truly was the holy grail . Absolutely zero side effects and completely unoffensive like a hypnotic benzodiazpine . The major payoff was that I was sleeping 8-10hrs a day and feeling so incredibly rested (like natural sleep since it only improves sleep architecture and induces natural sleep)I didn't need to take medicines like nuvigil and adderall to stay awake/function during the day and totally went off of the stimulants . My physical and mental abilities were 100% again . Workouts were great with all the new energy and school went from difficult to moderately easy now that my brain was finally recovering at night .

 

Problem is that due to increasing situational anxiety due to school/(I guess how the near death experience makes me act to stressors ?) The 9g a night barely keeps me asleep for more than 3-4 hrs . The Xyrem pharmacist said insomnia people like me can use higher doses , as he's seen up to 13g a night . Problem is that the doctor said he will aboslutely not go past 9g a night . He will not Rx me any controlled CNS depressants with the xyrem (benzos, z-drugs , belsomra even friggin Lyrica is off the table) He's given me zyprexa since it has helped my anxiety and insomnia in the past however that antipsychotic leaves me with carry over sedation in to the day and dumbs me down (in an engineering science major) . The zyprexa does keep me alseep with the 9g of xyrem but I need a whopping 10mg to 7.5mg depending on my anxiety and stress level .

 

Fast forward to today , as I lost my insurance with the xyrem prescribing psychiatrist and xyrem medication .  I saw one sleep doctor at a sleep clinic and he said my insomnia was out of the scope of his practice, despite asking for xyrem and showing him my med records showing him I was Rx'ed it for months with little issue . 

I have an appt. with another specialist at a sleep clinic in NJ who Rx's Xyrem june 7th . And in case that lady is a spineless waste of money , I have two other sleep doctors lined up with appointments in late july who also prescribe xyrem in late July.

 

Any tips on how to get this med back to helping me ?? 

 

I'm officially on 4mg Klonopin, 40mg paxil, 200mg Lamictal, 1mg Halcion (useless now) seeing different therapist and psychiatrist for insurance reasons

Edited by Dale Garrison

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Sign in to follow this  

  • Similar Content

    • By SheltieUnderdog
      I'll get to the coinciding physical symptoms eventually. I have always had trouble sleeping through most of the night like the majority of people do with ease and very naturally sleep through the majority of the day when most people are awake. I honestly have always preferred not to see the morning (I find it utterly depressing) except I am obligated to get places like doctor's appointments, stores, and restaurants before they close for the day and I would like the be awake and ready to leave my home by the early afternoon on a consistent basis. Since I was 12 years old, my addiction to being nocturnal and having an abnormal or irregular circadian rhythm has gotten progressively worse. So much to the point where I will fall asleep as the sun is rising and wake up when it's setting or it will be dark again by the time I wake up! I am being deprived of too many things, missing doctor's appointments, or not being able to get my car to the auto mechanic before he / she closes for an oil change. I eventually want to get a part-time job (currently living on SSI) and i imagine that my job would take place in the late afternoon or the evening shift but how could I even hold down a job that was a full-blown a graveyard shift under these circumstances!? My insomnia which can be attributed to the fact that I was formerly diagnosed with bipolar 1 with psychotic features and am now diagnosed with schizoaffective disorder, ocd, and add (possibly adhd). Sometimes if I stay awake later than I really want to (preferably between 1 and 3am to be able to wake up by the early afternoon) then I will just remain awake into the next day in order to guarantee that I will make the appointment or obligation and get to it in a state of sheer exhaustion barely able to follow the doctor or specialist as they're explaining things to me. Sometimes I have gone two or even three nights in a row without getting any shuteye because the appearance of it being nighttime awakens me. The only time that my insomnia (but not the sleep apnea or chronic migraines) was under better control was when I was on court ordered injections which were anti-psychotics and along with outright despising the process of getting those injections, I had a plethora of other side effects like akathisia (inability to sit still), lethargy, fatigue, sedation, and severe weight gain at the same time. I've been on Latuda 20mg for a couple of years now with little to no side effects and I plan to stay on it and never be subjected to having to take anti-psychotic injections ever again after my experiences with them when I had to involuntarily take them by court order.
      Now I also have some other issues going on in addition to the insomnia and nocturnal sleep cycle. I have ehlers-danlos syndrome type 3. I was diagnosed with severe obstructive sleep apnea after a sleep study ordered by my pulmonologist in the beginning of 2018 shortly after I got off of the anti-psychotic injections and I was 308 pounds (my heaviest ever weight, my height is 5'8). As of December 2019, my weight is 281 and I've been at a weight set-point since the end of 2018 where my weight is no longer fluctuating anymore (cannot easily lose or gain weight). I hated the mask / cpap machine or was cpap intolerant and sent it back to the surgical supply company within a couple of weeks. My ENT is not recommending the oral surgery or UPPP procedure because of how severe the sleep apnea is and I don't want a tracheotomy. He said that I'm too obese to use Inspire. I can't find an oral surgeon who does maxillomandibular advancement surgery. The obstructive sleep apnea and tmj syndrome which I've suffered from for over a decade combined are giving me chronic migraines and still sometimes when I take my prescription strength pain relievers from my rheumatologist. I wake up feeling like I was hit by an 18-wheeler stumbling to the bathroom sink with my eyelids glued together (look up the medical term blepharitis, I get that in my sleep too). Sometimes the migraines are so bad that I will force myself to eat and drink a small amount and take something like Excedrin PM or other types of nighttime pain relievers and fall back asleep and wake up again slightly less messed up because I had more rest even later in the day. Another major problem is that even if I somehow get a better nights sleep one night, the next night I will be so energized once it gets dark that I will do another all-nighter until the sun is coming up and the cycle or revolving door starts all over again.
      I used to be prescribed sedatives like Trazadone and Clonazepam but my new psychiatrist (been seeing her for a little over a year) insisted that I come off of them until the sleep apnea was successfully treated because me taking them before going to sleep with that medical condition was too dangerous. I recently found a dental sleep specialist hours away from where I live which designs oral appliances specifically for treating sleep apnea and tmj syndrome and I've been trying to set up an evaluation but they are forcing me to do another sleep study at home because the last one I did at the sleep lab was in March 2018. I recently went to my local CVS and picked up generic Benadryl or diphenhydramine 50mg and I found something recently at 7-Eleven called doxylamine succinate which is labeled as a strong sleep aid. I am sleeping with a wedge pillow and I eventually want to invest in a bed with an adjustable mattress to keep myself on an incline.
      If anyone else has any input that you think could be helpful on how I could fend off the insomnia and be less nocturnal on a consistent basis, it would be appreciated.
    • By kitties
      Hi, I am kitties.  I am a newbie here, but not to illness.  I have chronic pain 24/7 in my back and neck.
      Mentally....here are my diagnoses (got a second and third opinion....all objective and a consensus of the exact same diagnoses.)
      Bipolar 1 with psychosis, extreme, treatment resistant, rapid cycling.   Mixed features predominant.  Never had a remission to date...just a couple of weeks with my bipolar disorder.  “Normal” for a few weeks a couple of times per year.  No anxiety remission.
      OCD, GAD, Panic Disorder, Social Anxiety disorder, PTSD...I think that is everything.   Oh, I am significantly affected by a very strong dose of agoraphobia stemming from my PTSD and Panic Disorder.
      I have a great psychiatrist and I e been in treatment with him a since 2006.  I had a great therapist that had a co-transference issue and I ultimately ended my therapy with him. I have tried four therapists since firing the aforementioned therapist - but I unfortunately have lost faith in the process.
      I am a night owl by nature and it has really ramped up since being declared disabled in 2009/SSDI/cannot work.  I struggle with having a “routine,” although I have read that one with bipolar disorder tends to be more stable with a routine.  I’m easily overstimulated so I like the quiet and darkness..
      I know I have an eating disorder (anorexia, restricting type), but I politely yet firmly said I have had “eating issues” but I have no desire to “go there.”  My psychiatrist respects that although I am subject to a monthly weigh-in and I self-manage it.  
      I am currently relapsing right now, unfortunately. But, I have had it for so many years that I know at what weight my body and mind take a turn for the worst.  And I have to rein it back in and stop losing (meaning eat more).  I’ll never seek treatment as the recovery model, IMO, is ridiculous.  Kudos to those that have been able to “recover.”
      I take a bunch of meds, mainly psych meds  
      I like to read, Enjoy spending time with my boyfriend.  Internet.  I like learning things, I am currently and reading up on world history (pre-USA).  I keep up with psychology and sociology.
      Thanks for reading if you made it this far.
       
    • By candi71
      I am so very lost, angry, hurt, depressed, explosive, and drowning.  I was put on latuda or my bipolar and depression acting up...  I hate new meds for this reason.  I started having my ptsd dreams again, ate everything in site and craved sugar omg terribly,  have been depressed, cant color which i love to do, just wanna sleep, explosive anger, crying jags, hate life, nothing makes me happy, everything just sucks.  Im so angry cause i feel like i did before i went on any meds, 20yr ago.  
      Im so confused i just feel like im grasping at air.. I was in the er the other night and they basically sent me home after giving my dose of larzapam i didn't take in the afternoon cause i doesn't help.  My theory of   it is it didn't help before the latuda what is gonna make it work coming off latuda or after off.. I remember why i drank now.. I didn't need to feel this then.. I want to drink so bad and wont cause I've been clean 6 yrs April will  be 7 and i worked to hard to get here and refuse to prove others right.  Im so so messed up i cant sleep cant watch TV cant color yet dont want to do any of the above either but if i dont sleep i hurt... has anyone felt this way..  It sux cause the battle to find meds to work will start tomorrow cause my liver doesn't process meds it flushes them out.. oh well sorry just needed to vent and hope someone can help
×
×
  • Create New...