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[rolleroh]

Thanks for having me. I’ll try my best to keep my intro description tight

I’m a man, late 30’s, gov’t-certified physically and mentally disabled by The US of A for about 3-years. Rare congenital vascular anomaly was dormant until early 30s, and came out in style. The cause of many of my issues is still unknown. I was recently made aware of a rare chromosome duplication that aligns w some issues, but no follow-up studies or research of any sort apparently makes sense.

I have at least two large AVMs (arteriovenous malformation) in my left thigh, probably one in left ankle, and likely more to follow. Have not yet found a competent doctor  to manage my care. Many surgical interventions, w minimal success and huge, irreversible failures, followed by lies and disappointment.

A short description of initial onset:

 I couldn’t remember things, had no energy, could not sleep, fainting, couldn’t make eye contact w people, had/have to use catheter  to empty bladder bc internal bladder sphincter stopped working (detrusor sphincter dysynergia), leg weakness, panic attacks, dizziness, abdominal pain, violent constipation via reduced bowel motility, 5th Cranial Nerve Palsy, my right eye turned inward 29 degrees, thyroid hormone skyrocketed, thyroid antibodies off the chart, and seriously a lot more

Only prior health problem was Ulcerative Colitis that had been in longest remission, slight disc herniations in lumbar spine

Psych (Prior):

Generalized anxiety disorder, obsessive compulsive disorder

Psych (After):

Bi-polar disorder, ADHD, PTSD

I’ll discuss the rest of my doctor and hospital experience, meds, and personal nonsense in the appropriate categories. 

Thanks for the outlet. Peace

[Dr. Marshall]

Welcome!

[looking for answers]

3 hours ago, rolleroh said:

Thanks for having me. I’ll try my best to keep my intro description tight

I’m a man, late 30’s, gov’t-certified physically and mentally disabled by The US of A for about 3-years. Rare congenital vascular anomaly was dormant until early 30s, and came out in style. The cause of many of my issues is still unknown. I was recently made aware of a rare chromosome duplication that aligns w some issues, but no follow-up studies or research of any sort apparently makes sense.

I have at least two large AVMs (arteriovenous malformation) in my left thigh, probably one in left ankle, and likely more to follow. Have not yet found a competent doctor  to manage my care. Many surgical interventions, w minimal success and huge, irreversible failures, followed by lies and disappointment.

A short description of initial onset:

 I couldn’t remember things, had no energy, could not sleep, fainting, couldn’t make eye contact w people, had/have to use catheter  to empty bladder bc internal bladder sphincter stopped working (detrusor sphincter dysynergia), leg weakness, panic attacks, dizziness, abdominal pain, violent constipation via reduced bowel motility, 5th Cranial Nerve Palsy, my right eye turned inward 29 degrees, thyroid hormone skyrocketed, thyroid antibodies off the chart, and seriously a lot more

Only prior health problem was Ulcerative Colitis that had been in longest remission, slight disc herniations in lumbar spine

Psych (Prior):

Generalized anxiety disorder, obsessive compulsive disorder

Psych (After):

Bi-polar disorder, ADHD, PTSD

I’ll discuss the rest of my doctor and hospital experience, meds, and personal nonsense in the appropriate categories. 

Thanks for the outlet. Peace

sucks dude. im sorry to hear that. Alot of my issues came about after a bout with MRSA. Medical conditions can F u up

[Gearhead]

Hi, rolleroh. So nice to meet you! Come on in and fall apart with the rest of us. We’re glad to have you.

Please PM me, or any of the other mods, if you have any questions about the site.

Gearhead (admin)