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Sorry I read through a lot of posts in the middle of last night, but am too restless to read through them again.  BUT!  I did see some posts related to my concern regarding restlessness as a side effect for Vraylar.  I have been taking Vraylar , 1.5fl - 1 wk and  3 fl- 5 days, and am extremely restless.  Would someone please let me know whether this will go away on its own, or is it permanent? I just got off lithium which I took for many, many years...

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  • 4 weeks later...
On 5/9/2018 at 5:06 PM, ponv said:

Sorry I read through a lot of posts in the middle of last night, but am too restless to read through them again.  BUT!  I did see some posts related to my concern regarding restlessness as a side effect for Vraylar.  I have been taking Vraylar , 1.5fl - 1 wk and  3 fl- 5 days, and am extremely restless.  Would someone please let me know whether this will go away on its own, or is it permanent? I just got off lithium which I took for many, many years...

I tried Vraylar last fall -- one of five different meds I cycled through in about two months.  Vraylar, like a few others, gave me severe akathesia the definition of which I had not known prior to experiencing (suffering) it first hand.  Basically, I pretty much felt like I was coming out of my own skin, so to speak.  I was very uncomfortable and very anxious no matter what I did or where I was.  Every chair felt like bricks.  My wonderful couch felt like sitting on pavement and I couldn't sit there more than half a minute.  My bed mattress, which we just bought six months ago and is memory foam, felt like a 50 year old spring mattress.  I get the feeling you might be experiencing akathesia.  You should look the term up and find out.  I think I only took it for 1 1/2 weeks so I don't know if that side effect will go away or not.  I could not stand it so I had to just stop taking it.

Three of the other five meds were similar but I think Vraylar was the worst.  I have persistent RLS which might be a clue as to why I react like that to those meds.  I do tend to react strangely to meds due to my particular chemistry.  Everyone is different though so no medicine is going to affect two people exactly the same way.  You'll have to weight the pros and cons and decide for yourself.  But please do not suffer needlessly.  If your side effects are bad, stop the med and tell your doctor to try a new one.  So many of us suffer immensely just because we're afraid to decide what's right for our own bodies and afraid to second guess the doctors.  They don't know crap most of the time.  Honestly, they get most of their information from pharmaceutical reps.  That much is clear.

I'm an alcoholic with now 16 days into my new, completely sober life.  Back last fall while I was taking Vraylar I was drinking pretty heavily.  I noticed I could drink 4-5 stiff cocktails and would feel absolutely no effect from the alcohol.  I'm certain it was the Vraylar.  I've heard it can do that to some people.  Other psych drugs can have that effect too.

I hope this is helpful.

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I just started Vraylar (day 3 here) and am having trouble sleeping. I can fall asleep, but it’s shallow, toss-and-turn sleep, not the deep sleep I had while taking Latuda. I take it in the morning because I read so many posts about people finding it activating. So far, I don’t feel terribly different aside from the sleep issue. I do have some muscle aches and tiredness, but that could be from anything. 

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7 minutes ago, JenNowo said:

I just started Vraylar (day 3 here) and am having trouble sleeping. I can fall asleep, but it’s shallow, toss-and-turn sleep, not the deep sleep I had while taking Latuda. I take it in the morning because I read so many posts about people finding it activating. So far, I don’t feel terribly different aside from the sleep issue. I do have some muscle aches and tiredness, but that could be from anything. 

I have the muscle aches and non restful sleep as well. It’s actually become harder to stand up straight? And she wants to up it...but I know I kinda need to, too.  Oh well, pros vs cons, as always. 

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5 minutes ago, BipolarSpinster said:

I have the muscle aches and non restful sleep as well. It’s actually become harder to stand up straight? And she wants to up it...but I know I kinda need to, too.  Oh well, pros vs cons, as always. 

How much are you taking? I started 3mg today.

Edit: Just saw your signature, never mind. Sorry  

 

Edited by JenNowo
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5 minutes ago, BipolarSpinster said:

Ooooh I started at 1.5. I wonder if you started too high? Maybe you could talk to doc about what’s going on and see if he/she wants to lower it for a bit.?

Yeah, possibly. She (pdoc) told me to just follow the directions on the starter pack. 1.5mg on day one, then 3mg on day two. I actually did two days of 1.5mg because she gave me two of the starter packs and I didn’t want that little 1.5mg guy to go to waste. I also stopped Latuda cold since I hadn’t been on it long, so that could be contributing as well. Seriously wish I could go somewhere and just rest quietly during these med changes, get one completely out of my system before starting the next. 

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