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So, I found out recently that my diagnosis had changed from Bipolar 1 to Schizoaffective Disorder: Bipolar Type. This diagnoses switch was done 2 YEARS ago and nobody told me. Sure, my Pdoc at the time said it might be a possibility, but I was really upset that no one bothered to clue me in. Anyway. The thing is, I've been shuffled around through so many Pdocs and psychiatric nurse practitioners and I have never told them my whole story.
My first ever Pdoc asked if I ever had any psychotic symptoms. I said that I would hear my name being called, and before I could say anything else, they laughed me off saying that everyone experiences that. So, being the shy person I am, I thought that I was being silly and never mentioned it again. My last Pdoc, I tried to be more open with and told them about some hallucinations/paranoid thoughts I had...hence change in diagnosis.
Now I am with a new provider whom I don't trust at all. They don't seem to know how to manage me at all, and every session seems to be more and more a waste of time. I am currently switching to another provider, but it will take a bit before I can go. I'm a little nervous because I've tried so many anti psychotics, and am currently not taking one. Sorry, the point is I am planning to give my therapist all the details about things that have been going on for years. Stuff I never had the guts to say, because I know they will listen to me. I am just afraid that since I never said anything to my new provider (or even in the past) my future provider might think that I am making it up since I found out about my new diagnosis. Maybe I'm overthinking things. I don't know. But the only people on my support team that I trust are my family and my therapist.
Sorry if this is a bit of a ramble. I've been in a bad state the last few days and this has been edited and re-edited for your perusal. If there is anyone out there with the same disorder, or just someone with advice, please help me! There is so little info on Schizoaffective disorder, that I would really like to hear from others, maybe hear some coping skills? Everyone is different, but I am open to anything at this moment. Falling asleep last night was hell. My mind was racing all over the place, with layers of thought over layers of thought. I have to sleep with a light now, because shadows will creep the hell out of me. I have poor memory and forget words/mis-say them. My concentration is shot. I lash out in anger and always have this simmering irritability underneath. I'm starting to get the feeling that something is watching me again.
By Angeni Mai
I'm mostly looking for advice at this moment on how to foster and encourage my significant other's (soon to be married) interests. She seems to want to share a lot of things with me, such as things about other people and all; however, when it comes to her interests, she tells me about them but doesn't include me in them. I know she tries but she also gives up if she even perceives that I'm not interested. Often times it isn't a lack of interest but rather that I may be having a bad day or an having difficulties with things and processing. (I have Cerebral Palsy and multiple mental health diagnoses)
I don't mean to make her feel like I have no interest or I don't want to get along, but is it not ok to indulge in my own thing/ have some alone time? A lot of things I do bother her sensory issues (singing opera, playing jokes, touch randomly without remembering her boundaries because my memory is shit). I want to better our relationship by sharing some in each other's interests but I also still have that need to do my own thing when it is something I know she can't handle. She's also pregnant which makes her sensory issues twice as bad, which has lead to some hard feelings, especially when I would like to sing (as I have a generally loud singing voice as I've sung opera for the past 8 years.
She also has a developmental delay that causes her to need to speak things aloud and get that feedback on social situations and some other things to process them, in which she is quite long-winded most of the time. That has also lead to more hard feelings as it leads to limited time to indulge in anything else but talking from the time we are up until the time she goes to bed. Any other time that's left during the day, she usually insists that we spend it together because she wants to be close but she has also said that if we don't have that closeness each and every day, multiple times a day even (most days) then she and I will be too distant and she won't be able to open back up to me because I'll be a stranger (she has had issues with selective mutism when she was a child is the only thing I could assume she means by she will stop opening up). It may just be a matter of her mental health and I just misunderstood what she meant, however, is it wrong of me to feel like she is somewhat playing mind games/ manipulating me/ twisting my arm for me to pay all of my attention to her?
She is currently visiting from Canada and I live 422 miles away from her home. She has said that things will be different when we go back to Canada in 5 days, but I don't know whether or not I can trust this as I have seen different happen when she's back home and we just talk over video call. She says she doesn't really lie, and I know that, but is it bad of me to feel like she just doesn't really know herself all that well in what she really and needs from a person, especially when she's never really been in a long term relationship before us getting together? I'm really trying to let go of the past but this is just a lot to handle.
Does anybody have any advice on how to cope with these situations? Is it too much for me to continue to wish for and sometimes expect her to understand my needs? Is it too much for me to want to be left alone sometimes (as it helps me to cope with life and process my own emotions)?
I really don't want her or our relationship to suffer because I'm not giving her what she needs.
Thanks for any responses. They are much appreciated.
P.S. ~ Are there any books you would recommend somebody in a relationship with somebody who has ASD reads to have a better understanding of what it is like to have autism or books on how to cope with the differences in their partner?
P.P.S. ~ I know she's not a manipulative person and she wouldn't mindfully force me to do what I don't wish to, it's just I feel backed into a corner most days and I lash out emotionally in anger and start to yell when she's annoying me, most often times at the expense of being called mean when I say something she doesn't view as true and, at the best of times, neither do I. I guess it's just hard when both parties have mental health issues that result in a lot of emotions (and a TON of anger) and developmental issues, and social skills deficits on her end. I love her to death though and just want to make things easier on the both of us, more so on her though.
I kind of made this account on a whim at 3 in the morning on a thursday but i guess i just want to rant
Ive been clean for about two years no sometimes i did little things to hurt myself but nothing i never considered that """self harm""" i guess because i couldnt get in trouble for it// I relapsed for real last weekend and while i was doing it i liked it and it "took me back" i guess// But now i regret it so much, the florida summer is not forgiving and ive been wearing thick crewnecks every day// i forgot how much the aftermath sucked but i still want to do it again// Ive been seeking out triggering content nearly every day stuff on instagram mostly// Its not helping and im getting more depressed every day// I was supposed to hang out with my friend before he left for Europe but i canceled because i was so anxious to leave the house also to go to his house alone// Ive been canceling plans a week in advance, that ive had planned for weeks// i left my house yesterday to go the mall and wondered around for 2 hours alone// mostly this is a rant about how shitty ive been feeling for the past week. sorry// probably never going to post again idk
Recently I had a bought of noise that I wasn't able to fight off well due to being distracted by a personal issue. Of course, the reason I lost footing in the first place was because of the mildly stressful issue.
What I am wondering, is if there is a better way to distract the voices.
I am usually able to mute them by using foundational logic to win. But, when something has me questioning my beliefs in my choices and actions (which is irritatingly easy to do), I am at their mercy. I used to have 'good' voices that would hold my body back from doing anything physically because of the 'bad' voices. I had cleaned them all out a while back while trying to get better. This has left me openly exposed for these sudden surprise attacks on my sanity. I don't want to rely on 'good' voices anymore. This has been used against me in the past for me to psychologically manipulate myself into living how I wanted to myself to live. I hated that. It wasn't only me manipulating myself. It was crazy. I don't even know if it was me doing that to myself or if it was one of the 'bad' voices in particular who had a name. I don't want to believe that he could do that, so I try to say it was myself. It would be impossible for it to be myself manipulating myself... But, this is currently the only way I can move on until I can find actual help.
Sorry about that weird spiral. Yesterday I scratched the word "mistake" into my arm while arguing with the voices and coming up at loss in the battle for a while. While in conversation, I am lost in thought fighting, when I lose something else can get control of my body. I forgot to have a notepad and pencil ready. They so want to make their mark on reality that they will carve their words onto or into anything. I've put up quite a few psychological stops over the years that prevented self harm, but a lot of those were linked to the 'good' voices who would battle with positive noise against the negative noise. One of the other stops I've made is the use of the cyrillic alphabet instead of the latin alphabet with any written discussion having to do with my voices so that they are forced to translate the letters over. This means the word "mistake" was scratched into my arm in cyrillic letters. This used to slow the majority of them down, but not anymore. I've also forgotten the numb feeling and the weird sensation gotten by pain that makes it through the haze, because it no longer registers as pain. I used to use the boiling frog hot water method as a means for pain management due to a chronic condition. Either that or hot wax. I have forgotten all of these important things until now as I write this. It makes me feel pretty stupid for forgetting all of this and getting so comfy thinking I was getting better.
There has got to be a better way to distract the voices and win than to rely on honing 'good' voices. I don't want to rely on voices to fight voices when I am powerless. I want to find a physical means, something more real to help.