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My psych doc has called two times to see if I started on the Latuda.  I haven't.  I originally wanted to wait until the Seroquel and Pamelor left my system before I started anything new.  That was 3 weeks ago.  Now experiencing inking in of paranoia, insomnia, fear, anxiety, depression, more migraine and it's preventing me from starting Latuda. 

I have some key appointments I have to keep between now and the end of the month that I absolutely cannot cancel.  I don't want to start Latuda and experience overwhelming side effects that will scare me from leaving my home to make these appointments.  However, living in agony with these symptoms is horrible and I know I need to start on the Latuda.  After todays appointment, I will have 10 business days until my next appointment, I could take a small sample and see how I react for a few days. 

I'm also still spending like crazy, have maxed out all my credit cards, applied for more.  I know I am doing this to comfort myself.  However, I am now sending back more than half what I am buying, but I am in trouble with one credit card.  I called my bank and asked for help and they agreed to suspend my credit card until I get it under the credit limit.  All this spending started after I watched my neighbor pass away and since then I have not been doing my daily walk because the only path I can use with my rollator is right where she passed away.  I just haven't been able to get myself beyond this. 

I tried starting with a trauma therapist but that ended badly, she wanted me to discuss my past traumas in detail during the first and second meeting and half way thru the second meeting I flew out of her room having a panic attack.  I kept warning her I needed to work on grounding and she wouldn't, so won't go back.  She hasn't called to see why I haven't been back, so will let that one go. 

I'm a basket case right now. 

 

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Latuda really improved my depression and squashed my paranoia and delusional thoughts.  I would still be on it, if it didn't give me akathisia.   

You obviously have have a good Dr. that cares if he/she is calling.  Don't let yourself suffer needlessly.  Just tell the Dr. how you feel and maybe you can get something you are more comfortable taking. 

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I have never used Latuda, but have a good friend in his 60s who started it a few weeks ago, and says his mood and anxiety level is much better (he is bipolar 2)....He has experienced no bad side effects, and is taking 40mg a day in the morning.

 I understand the fear of trying a new medication, but if your pdoc of 30 years thinks Latuda could help you, I would encourage you to at least give it a try....

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3 hours ago, Iceberg said:

I'd agree with the others- try it. I'm assuming your doing a low dose to start out 

I am going it tonight and see how it does.  Thank you for your encouragement.  Yes, starting out at a very very low dose.

5 hours ago, CrazyRedhead said:

I have never used Latuda, but have a good friend in his 60s who started it a few weeks ago, and says his mood and anxiety level is much better (he is bipolar 2)....He has experienced no bad side effects, and is taking 40mg a day in the morning.

 I understand the fear of trying a new medication, but if your pdoc of 30 years thinks Latuda could help you, I would encourage you to at least give it a try....

Hi Red ~  Going to start it tonight and see how I feel tomorrow.  May start every other day with a tiny amount and then see.  He also wants me to start Trasadone too but want to do one medication at a time.  Is it better to take this in the morning, somewhere I thought my psych doc said it can be activating which might worsen insomnia.  He's on vacation until next week otherwise I would call and ask. 

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6 hours ago, gb84 said:

Latuda really improved my depression and squashed my paranoia and delusional thoughts.  I would still be on it, if it didn't give me akathisia.   

You obviously have have a good Dr. that cares if he/she is calling.  Don't let yourself suffer needlessly.  Just tell the Dr. how you feel and maybe you can get something you are more comfortable taking. 

Hi gb84 ~  Can you describe how the akathisia affected you, is it the restlessness?  Did you take it during the day or night?  It sounds like it was designed for you to help with paranoia and delusional thinking, too bad you could not take something to help with the akthisia.  I asked for  Cogentin to help with that, did you ever try Cogentin?

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24 minutes ago, Dewey said:

Hi gb84 ~  Can you describe how the akathisia affected you, is it the restlessness?  Did you take it during the day or night?  It sounds like it was designed for you to help with paranoia and delusional thinking, too bad you could not take something to help with the akthisia.  I asked for  Cogentin to help with that, did you ever try Cogentin

I'm afraid to describe it as I'm worried my experience will keep you from trying it and feeling better.

I took it around 5-7pm with dinner. 

I did try cogentin then propranolol. 

 

Edited by gb84

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1 hour ago, gb84 said:

I'm afraid to describe it as I'm worried my experience will keep you from trying it and feeling better.

I took it around 5-7pm with dinner. 

I did try cogentin then propranolol. 

 

Don't worry gb84, already looked up akathisia. I suffer from nighttime restless legs and restless limbs and have felt the inner restless while on Risperdol which is why I had to stop it, even with the Cogentin.  Started Latuda tonight, 1/4 of a 20 mg tablet with dinner and will do that every other day until I am sure I can take it daily.  I am ultra sensitive to medications and I want this to work. 

Thank you for sharing your experiences with Latuda *smiles*.  I'm sorry it did not work for you.  These damn side-effects !!! Arugh !!! 

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1 hour ago, Dewey said:

Don't worry gb84, already looked up akathisia. I suffer from nighttime restless legs and restless limbs and have felt the inner restless while on Risperdol which is why I had to stop it, even with the Cogentin.  Started Latuda tonight, 1/4 of a 20 mg tablet with dinner and will do that every other day until I am sure I can take it daily.  I am ultra sensitive to medications and I want this to work. 

Thank you for sharing your experiences with Latuda *smiles*.  I'm sorry it did not work for you.  These damn side-effects !!! Arugh !!! 

I didn't have any real side effects till I got to 80mg.  It started with leg movements, then akathisia.  I just have a problem taking any antipsychotic that ends in "done."  Don't know why, I guess they don't like my brain.

Go slow if that makes you more comfortable.  If you end up having problems taking a full dose at one time, then you can definitely split it up.  But definitely ask your doc if you run into a problem.

I just got to the point where I didn't want to risk it any more. 

I hope it works for you, because it is a really good med.  No weight gain is a nice thing as well. 

 

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14 hours ago, Dewey said:

 Is it better to take this in the morning, somewhere I thought my psych doc said it can be activating which might worsen insomnia.  He's on vacation until next week otherwise I would call and ask. 

My friend that takes  Latuda, whom I mentioned above, takes it in the morning, because he said it is activating for him......However, I have seen some folks here that take it in the evening.

I would say if you take it in evening, and have trouble sleeping, try taking it in the morning.

Edited by CrazyRedhead

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6 hours ago, CrazyRedhead said:

My friend that takes  Latuda, whom I mentioned above, takes it in the morning, because he said it is activating for him......However, I have seen some folks here that take it in the evening.

I would say if you take it in evening, and have trouble sleeping, try taking it in the morning.

Thank you Red *appreciation smiles*.  Last night was okay, slept well, so will see as the days progress.   However, woke up feeling horrible all over, so going to take it much slower and see. I am soo ultra sensitive to medications in general. Olanzapine was the only drug of that class I could tolerate until dizziness set in.  I liked how I felt on Olanzapine overall, no side effects except for alot of dizziness that accumulated as the weeks progressed.  But then, I was combining it with Pamelor, so Olanzapine is always an option for me to go back on if Latuda doesn't work.  Again, thank you Red for following me on this. 

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I noticed an odd thing today.  I could not be in bright light.  I was sitting in a parlor talking with a neighbor and could not keep my eyes open, it was too bright, so I sought my apt, drew the curtains and then my eyes felt okay, but my vision was distorted and could not read.  It wasn't until tonight that my eyes felt okay to come to the computer.

A very odd reaction or just a coincidence. 

Just did not feel well on that tiny dosage.  I know I am not giving it enough time, but I really felt ill and did not want to leave my home but stay in my recliner recovering. I also had this other weird thing going on, it felt like bugs were crawling all over my scalp and kept waking me up the night I started Latuda.  Now that was weird too. Never have experienced this before. I took some Benedryl and it went away, but came back after the Benedryl subsided. It's slowly going away now that the evening is upon me. 

 

 

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Did not take any Latuda last night and woke feeling much better, physically.  Will try it again over the weekend and see if those strange symptoms reappear again.  If they do, I won't be able to take Latuda.  I may go back and try Olanzapine and see if the dizziness reappears. 

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Started Latuda last night and the same reaction: feeling like bugs crawling over my scalp, insomnia. Then during the daytime hours, light hurt my vision along with the feeling of intense fatigue and sedation.

Will talk to my psych doc about this drug, what a disappointment as we were so hopeful this would work. 

When I looked at the side effects online, it did not mention these reactions I am having. 

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That's too bad it's not working out for you.  I'm really liking vraylar now that I'm on 3mg.  Except for insomnia the first few nights, once I started taking it in the AM I haven't had any side effects at all. 

Maybe give it a try if you decide to stop latuda. 

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6 hours ago, gb84 said:

That's too bad it's not working out for you.  I'm really liking vraylar now that I'm on 3mg.  Except for insomnia the first few nights, once I started taking it in the AM I haven't had any side effects at all. 

Maybe give it a try if you decide to stop latuda. 

Ohhhhhhhhhh, I wish something would work for me, sigh.  I have never heard of Vraylar.  Just looked it up.  I'll ask about it, thank you.  You are lucky that this is working for you. 

Took 1/2 of a 50 mg tablet of Trasadone and so far, no bad side effects. 

Thank you gb84 for your suggestion *smiles*

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2 hours ago, Dewey said:

Ohhhhhhhhhh, I wish something would work for me, sigh.  I have never heard of Vraylar.  Just looked it up.  I'll ask about it, thank you.  You are lucky that this is working for you. 

Took 1/2 of a 50 mg tablet of Trasadone and so far, no bad side effects. 

Thank you gb84 for your suggestion *smiles*

Just watch out for yourself.  I don't think your going to find an AP without side effects.  Also, vraylar only comes in capsules, so you can't break it apart like latuda to take a smaller dose.  Maybe based on the side effect profile, AP's might not be the solution for you.  Like I said, I had insomnia for the first couple nights.  Based on the half life of this drug, I have no idea what might come in the next week or longer.  Please tread lightly.  

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On 10/20/2018 at 11:44 PM, gb84 said:

Just watch out for yourself.  I don't think your going to find an AP without side effects.  Also, vraylar only comes in capsules, so you can't break it apart like latuda to take a smaller dose.  Maybe based on the side effect profile, AP's might not be the solution for you.  Like I said, I had insomnia for the first couple nights.  Based on the half life of this drug, I have no idea what might come in the next week or longer.  Please tread lightly.  

gb ~  Thank you for your response gp *smiles*. AP's are soo calming to my mind and keep my anxiety in check.  The only AP that I could take for any length of time was Olanzapine, but for some reason it started causing dizziness.  Anti-depressants don't work, been thru all of them, along with the SSRI's and SNRI's (too activating).  I have always been ultra sensitive to medications (my psych doc always rolls his eyes when he hears from me - like - here we go again - the dance of medication).  Since going off of Olanzapine a month ago and off of Pamelor as well, all my symptoms have come rushing back in.  Then I put a topical flea preventative on my cat and of course I had a reaction to that medication (broke out in rashes, hives and itching all over - been living on massive doses of Benadryl last three days).  My psych doc is coming back this week from his vacation and I'm supposed to see my headache specialist this week and when he see's I am not on any antiseizure meds (except for Klonopin), he's going to start throwing drugs at me.  Today, fighting thru a migraine, they are now back every 5 days.  No fun.  I felt intense dread this morning (now I know why), yesterday had all the prodrome symptoms (tried to ignore them) and here comes the migraine with aura today.  So, basically I am fighting to stay afloat with just Klonopin, for now and that is way not enough to handle mood. I live now in constant fear, paranoia, intense large emotions, mood swings, irritability, confusion, dissociation land and so on.  Oye, it's soo fun to be me.  Good luck with your trial of vrylar.  Keep me posted how you do. 

On 10/20/2018 at 11:45 PM, looking for answers said:

perhaps you just need to give the drug a chance for a set period of time. without cutting it in half, or taking it every other day

Thank you for your reply, looking *smiles*.  I could see out of my eyes, my vision was significantly impaired those two times I tried it.  Weird side effect or interaction.  Waiting to hear from my psych doc what he thinks happened.  I over-react to most meds, it scares me and with the level of anxiety I deal with, medication scares me away from staying the course. 

Edited by Dewey
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