Looking for an opinion on something. I was put on Cogentin (Benztropine) 50mg a day for a neuroleptic crisis some years back. Almost immediately, I had visual hallucinations and even reported them to the nurse, who ignored it. Things spiraled out from there and my bizarre behavior got largely ignored, thanks to being under-insured. Eventually, I developed a heart arrhythmia so I was required to cold-turkey it. I don't wish benzodiazepine withdrawal syndrome on anyone. I had been on the medicine as well as narcotic-vicodin for about a year at that point. However, it made me wonder if having a paradoxical reaction to that specific hypnotic might be related to an underlying diagnosis?
My entire nuclear family, save for myself, each has at least three comorbid conditions a peice. They have all gone to years of therapy but I guess for not wanting to throw flame onto a burning trash fire, I was excluded. As a side note, I was also one of the kids who got placed in the drug trial for Ritalin--for adhd which my mother was told I didn't really have. I also ended up in the open market trial for Abilify some ten years ago, unknowingly. Ritalin made me catatonic and depressed. Abilify was a rather similar experience to Ritalin, except I also experienced anhedonia and dissociation. So technically that's three poor responses to frontline medicines...
Any thoughts would be appreciated.
I have been taking 1-2 Klonopins a day for a few years and prior to that more Ativan prn than Klonopin. Recently it seems all I have needed was 1 mg a day of Klonopin. I have also been wanting something shorter acting for prn use. So I proposed to my pdoc that we change my benzo script to 1 Klonopin every day and 1 Ativan as needed. So I get 90, 1 mg Klonopins and 60, 1 mg Ativans in a 90 day period.(I get 90 day fills on all meds except Schedule I I) Pdoc seemed to like this. It seems to be working fine.
Latuda is off the table for now due to the weird reaction. We were considering Depakote, but psych doc just called and nixed that idea due to my NAFLD and chronic hyperammonia issues. So, he wants me to start back on Zyprexa tonight and to call him tomorrow to see how I am doing. He has been calling me daily over the past two weeks. Several neighbors are suggesting assisted living, but my psych doc is saying no way, I'm not at that stage yet. However, my mother started dementia at my age, but his position in this is that when on Zyprexa, it cures the confusion and other debilitating symptoms at least for awhile. He says that if I had early dementia, I would not respond to the Zyprexa as well as I do.
My neighbors are now concerned due to my inability to think straight and confusion which they are picking up on. I have known this for sometime and have expressed my concern many times over my brain feeling like it is falling apart and unable to function in the real world. Finally my psych doc is taking me seriously.
Dissociation is with me all day long, extreme anxiety and fear/panic/dread all day long, confusion is there all day long, just feeling unwell with these chronic migraines is keeping me in bed 3 days out of 5 days. This is not a functioning life for me. I am afraid to leave my apartment, I am afraid to hear from my neighbors that I am confused and not functioning well. These daily reports are just overwhelming me. I now turn off my phone, close my blinds and live in a shroud of secrecy.
I will be seeing my headache/neurologist/seizure doc this week and will bring this up to him as well. I hope I can make the appointment.
Just sitting here after taking .5 mg of Klonopin to take the edge off. Will start the Zyprexa this evening or sooner.
Just a few points about my environment. Two neighbor threatened my life here (verbally), neighbors that I get close to pass away suddenly (one right in front of me) (I live in an independent living facility and I am the youngest here - most have varying degrees of psychosis/dementia - hard to live with). I went to a party last week and I sat alone at my table while others crowded around with each other excluding me. I left and came home very depressed. I am an easy target where I live, bullies come after me. I have no trust with anyone who lives here anymore. Have been here a year and can't connect with anyone, very depressing, so I stay alone in my apartment. I do not drive and with my agoraphobia, leaving my home and venturing out alone is very very scary to me.
Just not a life that I want to keep living. I have to get on something to help calm down my brain so I can function in the world. I have been on most medications now and nothing works or the side effects are too harsh. It's just becoming too hard now to function in this world.
Well, thanks for reading *smiles*
So I saw my psych doc today and he feels the best reactions I have had to control most all my symptoms are in this class of medications. Where I do not like this "named" class, I will give this one drug one more try. I have been on them all but this one. All the others I can take for short bursts of time. We are trying to find something I can take long-term.
Starting tonight with 20 mg of Latuda. I also asked for Cogentin to help with the horrible muscle spasms and rigid muscles. Mail order will eventually get me the Trasadone to help with sleep and Cogentin for muscle issues. I asked for Xanax and he wouldn't allow that since it's too short acting. I tried to convince him I need something for emergency purposes and he still said no.
It's been 6 months since I have seen my psych doc and in 40 minutes he went thru all my back history, last 30 years to try to find something to help me. He also wrote to my landlord stating that my new kitten is my therapy cat and can therefore not charge me any pet deposits nor fees. I love him for doing that for me !!!
So, after 35 years of treating me I asked... am I BiPolar or what am I? He said basically I suffer under the umbrella of chronic PTSD, tramatic brain injury and childhood abuse. The symptoms I continue to have will not go away, but need to be treated, great, huh? At least he was truthful. Settling in for the long-haul or what's left of my life. Somehow I was magically under the illusion I would be cured, lol.
I have thought about this for a long time but have never signed up. I have bad social anxiety and some attention issues/going mentally blank from anxiety.
1. Has anyone done this for therapetic reasons?
2. Anyone brave enough to make a contract between us, if I do it, you will too? It would mean the world to me to have a buddy.