Adderall link to debilitating pain/joint/muscle damage

[bizygal]

Hello everyone, I am female age 49, have been on Adderall for ADD 3+ years.  Starting at 5mg tabs twice daily and now at 10mg tabs twice daily.  Adderall has changed my world, the focus is incredible and it really helped with work as a magazine publisher.  I can no longer do my job because of severe arthritic symptoms.

*I had a conversation with a college professor in the pediatric medical field, he stated that new evidence shows that Adderall can cause debilitating joint/muscle pain and damage, weakness, and maybe permanent damage in some patients.  Apparently, new study information was published in 2018 stating joint/muscle injuries and pain in children taking Adderall.  Can anyone help me find the study? 

I want to know about your adult experience.  Is this happening to anyone else taking Adderall?

My question is...  Should the company that makes Adderall be warning doctors 'not' to prescribe to people with pre-existing conditions???  Does anyone else out there have symptoms like I do???  Anyone else out there have arthritis before taking Adderall and have arthritic symptoms quickly become debilitating???

My Symptoms:  Within the past two years, my arthritis symptoms have quickly changed from mild to severe and debilitating, to the point where twisting the cap to open a bottled water is unbearable.  Holding a fork while eating dinner is painful.  I fight through the pain while tying shoes, doing dishes, standing for more than 5 minutes etc...  Every joint is affected, shoulders are the newest pain that began about 9 months ago and now shoulders are so bad I need assistance putting on my winter coat.  If I must be active, for example vacuuming, doing dishes, wrapping presents and walking through the mall for 2 hours, all in the same day, the following 1-2 days I suffer with double the pain/inflamation and fatigue!  My hands, feet, hips, shoulders, neck/back and arms hurt, I drop and break baking dishes by accident because it is painful to grasp.  These are just a few examples of the issues.

My History:  I was born with 'Stickler Syndrome', a genetic connective tissue disorder which causes early arthritis.  At age 32 I started feeling stiff, at 35 I started taking celebrex, and still take it.  At 47 and 48, I was doing great, walking 12 miles over 3 days on a trip to New York City.  Stiff yes, but not much pain.  This year my body has changed to that of a 105 year old or worse.

An arthritis specialist did a battery of tests for all the common causes, rheumatoid, lupis, lyme and others.  All tests negative.  X-Rays show osteoarthritis in all joints.

Please let me know if anyone else is experiencing this!

Edited December 30, 2018 by bizygal

[bizygal]

I did find this, published this year.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5035814/ 

But maybe I have some rare condition?  Just hoping I am not alone, would love to talk with someone with similar issues.