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For the last three months I have been lowering my Seroquel dose.    Well longer than that. Due to long term use I developed cataracts and my cholesterol is very high. 

Over about a year I dropped from 700 to 400mg.  Easy peasy. 

This last 400 has been awful. I am going slowly.  I get so sick.  Sweats, headaches, can’t eat, can’t sleep.   Like no sleep.    So I get to none.  Made it.  Doing well.  Two weeks out things are not good at all. 

I cant even explain how my head is acting.    Not good on the mood spectrum (BP 1) I moved back to 50mg.  (Pdoc is on board) I can sorta sleep and other physical symptoms minimized. 

I am rapid cycling and I am sure I am not hiding it well at work. 

Looking for some insight into others experiences. 

Did you get off successfully? 

How long till negative symptoms were gone?

Did you have to change to another AP?

Thanks for any shared experiences in advance . 

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I got off seroquel much quicker. Like in the span of 1-2 weeks maybe. I had no issues. I was put on clozapine cross titration so that’s probably why the fast titration off seroquel XR.

Anyway. I clozapine failed and my WBC count paradoxically increased so off that.

Onto vraylar which broke my brain and gut and I couldn’t sleep a wink at night which led to hypomania.

Off that and I started taking my PRN zyprexa zydis daily up to 10 mg. I’m doing better now on it. Losing weight and sleep at night. I don’t sleep eat anymore like with seroquel, I have a little bit more motivation, less depressed overall by a little, so things are improving, my head feels more clear, I’m not quite as psychotic as I was before, etc. I’m still on Abilify too.

But I cannot go without a sedating AAP I’ve found. I just break down and don’t sleep and risk full blown mania. Had I not stopped vraylar that was the path I was heading towards. Scary. 

I wish you well on your journey, dragon. 

Edited by Wonderful.Cheese

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8 hours ago, Wonderful.Cheese said:

I got off seroquel much quicker. Like in the span of 1-2 weeks maybe. I had no issues. I was put on clozapine cross titration so that’s probably why the fast titration off seroquel XR.

Anyway. I clozapine failed and my WBC count paradoxically increased so off that.

Onto vraylar which broke my brain and gut and I couldn’t sleep a wink at night which led to hypomania.

Off that and I started taking my PRN zyprexa zydis daily up to 10 mg. I’m doing better now on it. Losing weight and sleep at night. I don’t sleep eat anymore like with seroquel, I have a little bit more motivation, less depressed overall by a little, so things are improving, my head feels more clear, I’m not quite as psychotic as I was before, etc. I’m still on Abilify too.

But I cannot go without a sedating AAP I’ve found. I just break down and don’t sleep and risk full blown mania. Had I not stopped vraylar that was the path I was heading towards. Scary. 

I wish you well on your journey, dragon. 

Came off very fast but was in a hospital setting. Was switched to zyprexa (low dose) 

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I've come off Seroquel a couple of times in the past after being on it for years from doses ranging 50-300 mg. Each time coming off is a bit easier; first time was actual hell. I had the nausea and vomiting, anxiety, chills, insomnia, no appetite, etc. but it absolutely gets better with time. If possible I recommend using a PRN sleep aid (and maybe an anti-emetic like Zofran) because for me the insomnia and nausea were the worst. If you don't have access to that, some Benadryl (diphenhydramine) may help. Good luck!

Edited by mjs190

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This is my first time trying in over five years.    700 to 0 is the goal. 

Sorry your withdrawal sucked.  Mine seems to be the same.   Overall the physical is not as bad as the beginning of the taper.  But I seem stuck at 50mg.  That’s not even therapeutic level. 

When I try to go under 50mg my head gets messed up with symptoms. Go figure. 

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15 hours ago, dragonfly23 said:

@Wonderful.Cheese @Iceberg

Can I ask how long you had been on Seroquel?

10-11 years I had been on it; first seroquel IR then the XR. But I was cross tapering with clozapine as I said so maybe that’s why I had an easier time getting off seroquel XR? Not sure. I was taking 600 - 800 mg (mostly 800 mg) during my duration on seroquel. Hope that helps. 

Edited by Wonderful.Cheese

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11 hours ago, Wonderful.Cheese said:

10-11 years I had been on it; first seroquel IR then the XR. But I was cross tapering with clozapine as I said so maybe that’s why I had an easier time getting off seroquel XR? Not sure. I was taking 600 - 800 mg (mostly 800 mg) during my duration on seroquel. Hope that helps. 

Maybe cus I didn’t cross taper.   Things are getting bad.  So I think the taper was a bad bad idea 

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